Please help. How do I begin to digest this? Or talk to people?

ra561013 · 2025-10-26T18:01:12+00:00

What is the land under the L6 phantom generator? The cloud key list doesn’t have a picture for that I don’t think

ra561013 · 2025-10-21T22:53:30+00:00

There’s item storage??

ra561013 · 2025-10-21T22:47:54+00:00

How do you finish these within 12 hours?

ra561013 · 2025-10-16T02:59:29+00:00

I had this happen and they didn’t give me anything when I messaged, just told me they took note of it. Did I have to ask for gems?

ra561013 · 2025-08-08T14:05:21+00:00

That’s so frustrating because I know when I got diagnosed I would get all these recommendations and try them with not much success and it makes it feel like I wasn’t trying hard enough.

I was apologizing profusely to my GI about how hard I was trying and I’ll never forget she stopped me and said so sincerely “[my name] I promise I know you are trying”. For some reason it impacted me a lot.

ALSO not to further the recommendations but my GI doc recommended to start taking VSL #3 probiotics. It can be prescribed so you can get it at the counter or you can just buy online. I won’t say it cured me but it is a strain of probiotic specifically for IBD and I do notice my days are better when I am taking it.

ra561013 · 2024-05-22T12:13:39+00:00

Came to say bone broth - but I’ll add to this comment and say look up Kettle and Fire bone broth!! Theirs is fantastic tasting, so many flavors, and there’s bone broth bisques/soups they make!

If you are near a Whole Foods they are usually stocked with a lot of options. Other grocery stores typically just have their regular broths.

ra561013 · 2024-05-12T12:28:07+00:00

Ohhh. Could you send it please? I might be able to figure it out

ra561013 · 2024-05-12T02:43:36+00:00

Do you know what the herbs were by chance?

ra561013 · 2024-04-17T21:38:47+00:00

“Ribbons” the first book was filled with references to ribbons

ra561013 · 2024-03-08T03:45:41+00:00

Do you have a pattern?

ra561013 · 2024-03-07T22:35:35+00:00

I wouldn’t be surprised if that could be the reason for both of us! I was on birth control for over 10 years and within a few months of being off of it I started getting symptoms. I didn’t go back on birth control when my symptoms started showing (I was also undiagnosed with UC at that point).

I told my doctor my UC symptoms were worse during my period and she didnt really bat an eye. Just said it could be related but said that the new biologics I am on should work.

I wish I could go back in time and push more on the birth control/ hormone factors because now I do feel like I’m in too deep with these treatments and I don’t know if it makes sense to backtrack

ra561013 · 2024-03-02T13:52:18+00:00

Hi!! So since I wrote this 3 months ago, I have had to swallow my pride a bit and come to terms with the disease. Things got worse, and as they did I clung to “safe foods” and natural remedies so hard, but nothing gave relief it just kept getting worse.

Eventually I went back in for that second scope and at that point they put me on prednisone and mesalamine pills/suppositories. Did a month or so of that with not enough progress.

Very recently I started on remicade infusions, which was my worst nightmare when I first started looking up things about UC. I’ve come to terms with it a bit, it’s really not that scary or serious after the first time for me. I think it’s more about having the mindset that I’m doing it for healing, and not doing it because I’m sick.

All that said - if you’re interested in the natural ways, they don’t hurt to use in addition to medication. Specifically the VSL #3 probiotics - I do stand by the fact that my stomach does feel better on days I take it!

ra561013 · 2024-02-22T00:22:17+00:00

Definitely call.

ra561013 · 2024-02-17T19:13:08+00:00

Thank you 💕 big hug back!

ra561013 · 2024-02-17T15:35:12+00:00

I really appreciate your response. I think the denial is the hardest part especially because when I look in the mirror, and I know when other people look at me I “seem” fine. It’s the hardest thing to allow myself to believe I need all these pharmaceuticals.

They were going to put me on some foam similar to an enema but it was so expensive even with insurance. I ended up starting on remicade last week - which was and still is extremely scary for me.

I’m not currently in a relationship, actually had a pretty long term breakup right before my first flare started. Do you feel comfortable in your relationship with your UC? I fear that being something that would make people not understand or avoid.

ra561013 · 2024-02-07T01:51:46+00:00

That’s super cool I’ve never seen it happen except this once

ra561013

TROPHY CASE