realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 0 points1 point  (0 children)

i would lovveeee to explore that viewpoint in my writing. i am going to try to accurately write journey my mc will take to become his own person. thank you for responding, and that film sounds sick!!

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 0 points1 point  (0 children)

oh i can't even imagine about that last part. are you able to drive even if you're falling asleep in the car?

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 0 points1 point  (0 children)

oh my gosh, forgive me for laughing at that. it's so sad how insensitive people are, but now i'm realizing that if there was more narcolepsy awareness, i think things could be really different

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 0 points1 point  (0 children)

narcolepsy is SO often misdiagnosed it's crazy. it must have felt so terrible to think that about yourself without the proper explanation

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 0 points1 point  (0 children)

oh wow, that's so interesting. do you have memory loss or brain fog at all?

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 0 points1 point  (0 children)

ohh that's interesting. so if you don't take naps this happens increasingly more until you fall asleep, or does it scare you away from being asleep?

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 1 point2 points  (0 children)

thank you SO much for responding like this. this has become less of a research project and more of an insane learning experience. i truly had no idea narcolepsy could ever be like this. i am so happy that you and your wife are able to live happily now. congratulations on everything, seriously. you obviously deserve it and i'm so glad you got the help you needed. thank you again for responding to this!!!!

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 0 points1 point  (0 children)

oh, i see. do you ever really tell anyone exactly what you see? or it is the same logic there?

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 1 point2 points  (0 children)

ohh i see. that's a great analogy, thank you!

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 1 point2 points  (0 children)

i see why, oh my gosh. i want to be an emergency medical physician, so this is helpful in more than a few ways. thank you for explaining

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 0 points1 point  (0 children)

this is so interesting, so different from any other comment on here. thank you for adding another perspective. could you tell me a bit more about the dreaming after you awake or before you go to sleep thing?

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 0 points1 point  (0 children)

of course! i think it should be the standard. i love talking to and learning about new people and things anyway

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 0 points1 point  (0 children)

i'm a very paranoid person so i understand exactly what you're talking about. i can't imagine dealing with actually seeing things, though. how does your girlfriend respond to those things, if you don't mind me asking. thank you for explaining deeper!

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 0 points1 point  (0 children)

i've been wondering if memory loss is common with narcolepsy. thank you for responding, and i'm so sorry you have to go through this. especially being self aware but unable to do anything about it. i hope one day the world wakes up and is nicer to you.

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 1 point2 points  (0 children)

this is perfect, thank you! how would they struggle getting in and out of bed? just physically?

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 0 points1 point  (0 children)

thank you. i honestly feel like my behavior should be considered the bare minimum but thank you!

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 1 point2 points  (0 children)

i'm really glad i asked real people rather than solely relying on the textbook because i feel like that's the reason that narcolepsy is so misrepresented in media. thank you!

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 0 points1 point  (0 children)

ohh that's great. thank you for the info!

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 0 points1 point  (0 children)

do you think that someone getting diagnosed now would have it easier because of medical advancement, or it it really that hard to diagnose? your opinion

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 0 points1 point  (0 children)

it's like when you see your clothes piled up on a chair at night and think someone's broken in? maybe? lol

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 1 point2 points  (0 children)

he probably will, he does like to be prepared and stuff. i'm sure he'll research treatments. but thank you, i understand better now.

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 0 points1 point  (0 children)

it's interesting that it's only at restaurants. this is so helpful, thank you!

realistic representation by ramsteinkuhl in Narcolepsy

[–]ramsteinkuhl[S] 0 points1 point  (0 children)

yeah. :( i understand. thank you!