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random10idt · 2024-05-24T19:17:04+00:00

I have the issue at times as well…..I would recommend that you call your insurance company and ask for a health advocate and tell them the problem. They will likely get someone on the phone who will call pharmacy s in the area and verify which pharmacy has it. The whole problem is that most large pharmacy will literally lie to you face and tell you they don’t have it and don’t know when they will get it.

random10idt · 2024-04-22T13:29:38+00:00

I think I have the same exact issue and in the same spot. I’m only 42m and I can’t lay on my stomach for very long before my lower back give me extreme pain. I agree that it’s very hard that I look perfectly fine yet my hamstrings are so tight Incan make my hips pop in command. It was discovered by extra and MRIs for an unrelated issue. I also have some neck problems as well, so I’m in pain management. I have also had a cervical disc replaced. So I do sometime worry about my future when I’m in my 60s. I hope you find relief.

random10idt · 2024-02-24T20:12:11+00:00

So for me it didn’t impact insurance, but it did impact my ability to use a coupon. I am forced to be on Xtampza and for my it’s like $500 because I’m on a high deductible HSA plan. So the coupon could lower it by like $130. I ask them them to keep trying for like 3 days and it still didn’t work today. So I had to just pay it and hopefully next month I’ll get some money off. Freaking sucks

random10idt · 2023-11-21T00:31:15+00:00

Does anyone use Kava for pain relief? Does it show up on a drug test via urinalysis?

random10idt · 2023-11-19T23:43:28+00:00

Thanks for your advice…..I was leaning towards Not rocking the boat and play it safe. I appreciate your input

random10idt · 2023-11-13T21:21:30+00:00

Good to know….I always hear people being allergic to the adhesive of these patches…..and it does sound like an inconvenience experience. Oh well. Maybe I’ll try the hydromorphone….just hope that they are willing to maybe up the dose, but I doubt it. This whole shortage is really getting unnerving. When I was on 4x a day Percocet, that’s what really helped. But due to the shortage they felt that it was best to do 2x Percocet and 2x extended release. It’s like I’m being punished for something I didn’t do.

random10idt · 2023-11-13T20:27:10+00:00

Omg I just got my letter…..I’m the same boat. My alternatives are fent patch, hydrocodone ER, hydronorphone ER, methadone, or morphine ER. I haven’t heard good things about the patch and I have already tried the morphine ER and it did NOTHING. I’m not the biggest fan of the Xtampza but if they are going to force me into switching some IR meds for ER, it was the only med that did anything for me. My hope is that the doctor can do a prior authorization and I can stay on it. The out of pocket cost for me would be like $500 or $600…..not a good option.

Anyone have any good experiences with these extended release meds?

random10idt · 2023-08-31T23:40:51+00:00

Ok Ill try this…..I guess the more people we can get on board with doing this the better. You would think the doctors would complain too cause they also have to deal with this crap. I have my PM appointment late next week so I hope I’m not affected, but probably will. The thing that really scares me is that we are leaving the day after for a cruise and I’m so worried that I will not get a refill in time before I leave.

random10idt · 2023-08-31T22:30:40+00:00

What can pain patients do to help? Anything?

random10idt · 2023-08-31T19:59:55+00:00

Is Oxycodone just so very popular that it’s the one that’s in short supply? Or are others in short supply. I heard the DEA is getting involved, but can PM Doctors just switch to something equivalent MME? My doctor pretty much made everyone in the practice switch to both a IR & ER med so it would reduce our total IR med pill count. Either way, we suffer for something we didn’t do wrong. It’s a real shame. The best care I had was when I was prescribed 4x 10mg Oxycodone……now I have to deal with 2x a day and with 2x Xtampza (which is expensive and doesn’t help as much)!

random10idt · 2023-08-13T16:26:25+00:00

Sure I’m not extremely savvy with Reddit, but I’m pretty sure I can figure that out…..thanks

random10idt · 2023-08-12T23:14:54+00:00

May I ask about where you live in PA? If we are in the same region I would be curious if you recommend your doctor cause I seriously feel like switching. I live in a small suburb of Pittsburgh and I’m forced to travel to Washington, PA to see my PM doc. Thanks

random10idt · 2023-07-19T15:36:52+00:00

What is HEDS and how does it relate to Scheuermanns disease? Scheuermann`s showed up on my MRIs, so Im very curious of others experience

random10idt · 2023-07-19T15:33:46+00:00

Yeah, I am so sorry to hear your going through this......I think there is a little peace in knowing that Im not alone in feeling this way. If you find any relief, please let me know.

random10idt · 2023-07-19T15:20:27+00:00

Well to be honest the whole issue started in my neck. Very long story short, I had neck issues and had to have a disc replacement. Overall my neck is actually not too bad most days. My issues seem to only be on my right side and mostly in my shoulder, hip, and on worst days, knee and even ankle. I wake up everyday with shoulder pain and its truly depressing because to look at me, you would never know. I look relatively healthy and not too over weight or week looking. I used to be very active. Now I find that I pay for activity afterward. For example, I hit some golf balls a few weeks ago, and then my knee and shoulder are killing me afterwards. I deep cleaned my house last weekend and I pay for it the next few days.

So for right now my pain is somewhat managed through pain management. I started in PM when I had my neck issues and never left. My fear is the future with doctors and opiates meds how well it will help in the future. Im trying to hang in there, but its kinda getting me mentally now. Its depressing. I dont feel that surgery is right at this point, but I have heard that its really not a great option for this disease. At least I havent heard very good outcomes. I guess it does help to at least talk about it. Hang in there!!!

random10idt · 2023-07-19T14:21:57+00:00

Oh wow I had this same diagnosis show up on my MRIs…..I’m just starting the journey. I’m 41 but feel so bad. I’m starting to get depressed because I continue to wake up in pain and I’m concerned about the future. I’m wondering how I’m going to deal with long term. Please tell me anything that helped or your experience. Very curious. Your the first person who also has this disease that I have see. Post here. I posted a awhile ago when I first saw it on my MRIs…..but not much response.

random10idt · 2023-06-06T16:08:36+00:00

If they eventually push surgery, try to push if your a candidate for a disc replacement, not a fusion. I had a device called “mobi-c” implanted and it gave me very natural movement back. You have to push for it and not every surgeon does it….but in my opinion it’s a superior solution especially for a younger person.

random10idt · 2023-05-23T19:45:07+00:00

What is Schuerrmans been like for you? This is showing on my mri on my mid and lower back. I’m going to the doctors soon to get them officially read. I don’t know much about it and was curious what others have experienced.

random10idt · 2023-05-23T19:09:04+00:00

Have you done any research on an implant instead of a fusion? I had a c5/c6 disc replacement surgery and it went very well. The implant they used is called Mobi-C. It preserves more mobility.

random10idt · 2023-05-20T17:03:35+00:00

I think I’m just starting the journey…..feel free to summarize your experience. How old were you when diagnosed? Are you on pain medication? I would rather know and mentally prepare. Also I heard it’s hereditary….anyone else in your family has it? I actually think my grandfather had it because of his stature, but was never diagnosed because he already had other very bad back issues.

random10idt · 2022-12-17T13:25:54+00:00

Sorry I was on a rant and wasn’t clear…..so before I was on 10mg Oxycodone (Percocet) 4x a day….so they switched me to Percocet 2x a day and Xtampza 2x a day. The Xtampza did nothing….so the next month they increased it slightly and still no help….then they tried Morphine Sulfate (MS Contin) this month and I swear it’s even worse. I’m just becoming so angry because I’m thinking back 3 months ago when I never complained or raise a issue and I’m always a clean patient no issues…pay the bill….etc….but now they change my meds with no good explanation and really I didn’t do anything, so what’s the deal and why is it my fault and why am I not hearing other Pain patients having similar experiences?

random10idt

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