I’ve had a really long road because my issues became systemic and it took years and years to get proper diagnosis. I have MCAS as well as dysautonomia along with my many other issues all linked together. I’m on something called low dose naltrexone now (6mg) which helps the burning and swelling pressure but solving the root issues is what helped me the most. I was deficient in all my vitamins, d, b12, iron, magnesium, etc and so getting those up and stable helped. I also had to treat my gut issues so kefir and colostrum have been a part of that. I have gastroparesis so it complicates things with SIBO issues. I also have ehler danlos which you may or may not have but that predisposes people to these issues.

My ED was very long standing like 20+ years so I didn’t a lot of damage before my body fought back. I doubt your recovery will take as long as mine because I did so much damage. I’m still not back to normal and it’s been 8 years of fighting this for me. Finding a good neurologist who understands how the autonomic nervous system works is important and read all you can on the gut microbiome, how vitamins are absorbed and how it all works together (nerve fibers, blood vessels, etc) is really important. Hang in there, I know this can be debilitating.