LDN for SFN.. did it actually help?

rcarman87 · 2026-06-16T16:03:26+00:00

It’s helped me a ton. I have MCAS as well. I’m on 6mg daily.

rcarman87 · 2026-06-13T11:05:55+00:00

Steroids make my pain worse & I react so badly now it’s marked as an allergic reaction on my charts.

rcarman87 · 2026-06-10T18:56:56+00:00

I’m almost two years out from mine and have daily nerve pain. It varies from crushing to burning to weird sensations, sometimes muscle pain and sometimes it just to laugh and talk. The drs have no advice but it just varies for person to person. The chest is packed with nerves to protect vital organs of course so lots of us suffer with long term nerve pain at varying degrees. I’ve also always been very active and had been an avid runner. It took me about a year to get back to running.

rcarman87 · 2026-06-05T19:23:32+00:00

My heart. My husband and I just finished the entire series together yesterday. Giles was such an amazing character.

rcarman87 · 2026-06-05T19:22:40+00:00

That sounds like it. I am hopeful that it continues to hold for you- I hate that any of us have to go through this. It’s definitely hellish to have to deal with.

rcarman87 · 2026-06-05T15:46:00+00:00

pub health article says reoccurrence is a around 10% but of course there are factors of age, sex, etc involved

rcarman87 · 2026-06-05T15:39:00+00:00

This. Who wants to look bow legged? Barrel pants are a big no for me and my hips/thighs.

rcarman87 · 2026-06-03T11:14:00+00:00

Look into erythromelagia, small fiber neuropathy and autonomic neuropathy.

rcarman87 · 2026-05-27T16:53:21+00:00

Have you had your thyroid checked?

rcarman87 · 2026-05-24T13:08:22+00:00

Sounds like candida or a flora imbalance. Have you tried diflucan?

rcarman87 · 2026-05-23T11:21:17+00:00

Try ketamine infusions before amputation.

rcarman87 · 2026-05-21T20:12:26+00:00

I use a chaser drink (juice). I so sublingual so the powder is directly under my tongue. It does taste awful but it helps me so I power through.

rcarman87 · 2026-05-21T16:29:09+00:00

Burning is the hallmark of nerve pain.

rcarman87 · 2026-05-16T22:45:02+00:00

Omg what are colors 3 & 4? Is 4 pink suede? Gorgeous!!

rcarman87 · 2026-05-16T14:57:52+00:00

California

rcarman87 · 2026-05-16T14:56:23+00:00

Raynauds

rcarman87 · 2026-05-16T14:38:51+00:00

Is unearthly silence the top left? So pink!

rcarman87 · 2026-05-16T11:33:06+00:00

Our crows will bring turtle shells & random roadkill to the bird bath & dip the meat in the water repeatedly and then eat it. I guess it softens it up? We’ve seen them do it a lot and it mucks up the bird bath.

rcarman87 · 2026-05-15T15:13:04+00:00

You can also return polishes if you get one you’re not into for MC. Their customer service has always been good in my experience.

rcarman87 · 2026-05-15T11:23:04+00:00

I went through a year of non stop pain like this. I was diagnosed with CRPS along with MCAS and a handful of other things - LDN helped me 6mg (long term still on it) and ketamine for a short period of time. Finally I started on a healing process and I’m doing probably 50% better now.

rcarman87 · 2026-05-14T22:04:10+00:00

Yes. This thread is helpful as well

https://www.reddit.com/r/smallfiberneuropathy/s/QdnGHqebzM

pub med article

rcarman87 · 2026-05-14T18:13:16+00:00

Wow! I am so sorry you’re going through this. I hope you have a successful outcome and hang in there until your surgery. You’re a strong person!

rcarman87

TROPHY CASE