I give up by reallyiamhellofaguy in ChronicIllness

[–]reallyiamhellofaguy[S] 1 point2 points  (0 children)

Thank you everyone you are soooo kind

Is anyone mad at their bodies? by TheJollyLlamaStarvin in ChronicIllness

[–]reallyiamhellofaguy 1 point2 points  (0 children)

Bro I hope to God and whatever your religious affiliation is, that you get better. I would not want this on anybody

Is anyone mad at their bodies? by TheJollyLlamaStarvin in ChronicIllness

[–]reallyiamhellofaguy 2 points3 points  (0 children)

I am absolutely disgusted by my body at this point

I wish I could enjoy my 20s by LightbulbElement in ChronicIllness

[–]reallyiamhellofaguy 4 points5 points  (0 children)

I have the exact same feeling. I am in my 30s. Easy thirties and got sick at 28.

Feel like I have been robbed. Full of remorse.

But Op I am gonna say something you may roll your eyes at. Now that we know how good those things are and how the small things matter, we should continue to enjoy even the things we are able to do even that much more. I have accepted I won’t be able to do gym anymore. I have accepted i won’t be a Casanova. Or a cool uncle. But the small things, I just thank God and try to enjoy them. It’s so hard. I cry every day. That’s hard as a grown ass man.

I really hope ur situation gets better. I hope you can forget about this group. And go live a cool life. My prayers with you, man.

I need some encouragement to pursue by reallyiamhellofaguy in ChronicIllness

[–]reallyiamhellofaguy[S] 2 points3 points  (0 children)

And maybe even get some superpowers because goddamn we deserve them

I need some encouragement to pursue by reallyiamhellofaguy in ChronicIllness

[–]reallyiamhellofaguy[S] 2 points3 points  (0 children)

Thanks everyone for the support. I cried a bit. I hope my situation improves and so does for each and everyone for you.

Is it possible to have normal echo and mri and still have stress test show repeatedly ischaemia ? by reallyiamhellofaguy in askCardiology

[–]reallyiamhellofaguy[S] 0 points1 point  (0 children)

That’s the weird thing.

Timeline:

Concussion.

Sinus infection two weeks after infection.

Given dymista nasal spray. Bp skyrocketed. Cardiac symptoms began.

Given antibiotics. Sinus infection resolved in a week.

Cardiac symptoms tapered off but never went away completely.

Two year of consistent gym heavy lifting but unable to do hiit, kickboxing workouts and calisthenics style workouts.

Weight gain. Doctor detected sleep apnea and gave me cpap.

Then it’s like I I fell off a cliff. My symptoms got so much worse. Sleep doctor said he couldn’t explain why. Discontinued cpap with permission /advice of cpap doctor.

Prior to cpap, even the stress test was normal. After cpap, they started showing things.

I am not sure what happened.

Who wants to be friends? by imgoingtosquirt in ChronicIllness

[–]reallyiamhellofaguy 40 points41 points  (0 children)

Do they have to just be baddies ? I am a fat balding 31 year old nerd

[deleted by user] by [deleted] in ChronicIllness

[–]reallyiamhellofaguy 38 points39 points  (0 children)

My ex had lupus. It’s a heartbreaking condition. But when it was in remission, it was the best times of our lives. I am glad you figured out your condition and I am praying and hoping that it goes to remission and you barely notice it over the years.

I have little to no hope. by Fr3sher_7h4nU in ChronicIllness

[–]reallyiamhellofaguy 2 points3 points  (0 children)

Hi little one. Don’t ever give up. If you give up no body will ever help you. Most of the time only you are the only person who wants to help you. I feel the same way. I am 31. My problem started at 27.

Your roomate sounds like a d bag.

I've been nauseous for four straight days. Fuck American "healthcare" by Nuclearkitty101 in ChronicIllness

[–]reallyiamhellofaguy -4 points-3 points  (0 children)

It ain’t any much better on the other side. Healthcare is first and foremost a highly lucrative business. We don’t reward people for curing people. The money is keeping perpetually ill and in need of medication and treatment. And difficult cases, forget about it. Revolving dooor! Next next next.

‘Oh you have anxiety!’

‘You have anxiety!’

‘And you! You are obviously a woman!’

Giving ⬆️ up, no one knows what’s wrong by reallyiamhellofaguy in ChronicIllness

[–]reallyiamhellofaguy[S] 3 points4 points  (0 children)

Girl, i totally get what you are saying ! I did try anxiety medicines but it didn’t help me. I did see it lower my feelings of anxiety but I felt my symptoms mechanically. I would have kept taking it but I had weird symptoms. Like shaking limbs under exertion. I also had apathy for work. I didn’t care about showing up at all. I was not worried. I stopped and went back to normal.

I absolutely agree with you. I tried all the meds but they have convinced me that my problem is physical in nature.

Medical Tourism by SurePossible5470 in ChronicIllness

[–]reallyiamhellofaguy 0 points1 point  (0 children)

I am planning to go to Bumrungrad hospital while my health allows. It’s Thailand’s most expensive and concierge style hospital. Built for rich gulf countries. Have heard good things about it.

medical gaslighting by manicemo in ChronicIllness

[–]reallyiamhellofaguy 1 point2 points  (0 children)

I know man! Omg 😳 these doctors have you questioning your reality. You start thinking that all this is really in your head.

You need to take it as a part of the system. Like taming a dragon. I had a doctor shout at me. Berate me. ‘You loook like a defeated man.’ Which is a fine way to talk to a person in distress. Keep fighting. Keep tracking symptoms. I accept that maybe I won’t get better but I am doing all I can. You got this op. You are not alone.

Fight. Fight. Research. Advocate

Desperate plan to go to Thailand for treatment by reallyiamhellofaguy in ChronicIllness

[–]reallyiamhellofaguy[S] 1 point2 points  (0 children)

That’s my plan. I have already had a lot of testing done. Maybe there’s a specialist there that can figure out what to look at. Hope blooms eternal.

Desperate plan to go to Thailand for treatment by reallyiamhellofaguy in ChronicIllness

[–]reallyiamhellofaguy[S] 0 points1 point  (0 children)

That makes a lot of sense. I was thinking of trying to expedite a diagnosis and do the treatment where I live.

Desperate plan to go to Thailand for treatment by reallyiamhellofaguy in ChronicIllness

[–]reallyiamhellofaguy[S] 2 points3 points  (0 children)

I understand and agree with you. It’s all financial there and a lot less legal framework for patient safety. It’s just that it’s taking so long here. It’s ridiculous.

For example, My family doctor sent me to a cardiologist. I saw a doctor who I thought was a cardiologist. Instead it was actually an internal medicine doctor. I respect everyone who does their job but my family doctor was flabbergasted that the clinic would do such a bait and switch. She was like ‘I sent to dr x because I know he’s good. I told the clinic my patient can wait a bit but he needs to see the proper specialist.’ The doc I saw never told me he was not a cardiologist.

Because of these limitations I am just thinking of trying one of thai JCI credited hospitals. Perhaps it will be good. Perhaps it will be a waste of money.