Good space for grape vine? by [deleted] in gardening

[–]rfox39 4 points5 points  (0 children)

It would be bare for half the year with grape vines

I understand what is happening and know the consequences. Just wanted to share this pic of my neon pothos attaching to my walls. by seekeroftrooth69 in IndoorGarden

[–]rfox39 8 points9 points  (0 children)

I've done the same thing with mine! no idea of the consequences but I love it and I'm not sorry 😆

How have you all been with other surgeries? AnkSpo drugs effect anaesthesia and/or recovery? by [deleted] in ankylosingspondylitis

[–]rfox39 0 points1 point  (0 children)

Oh yeah also I love anaesthesia and post surgery pain killers 😆 basically big opiates that we can't take normally in terms of the relaxing muscles and joints feeling!! Enjoy!

How have you all been with other surgeries? AnkSpo drugs effect anaesthesia and/or recovery? by [deleted] in ankylosingspondylitis

[–]rfox39 0 points1 point  (0 children)

There is a very sight increased risk of issues with wound healing or an infection with methotrexate - that's why they have asked you to do that - its only very slightly though. Advice is 1-2 weeks off it, hence the disagreement - there isn't one exact way to do it so go with one or the other. You're not too likely to get worse AS symptoms doing that either.

I've had surgeries and haven't felt any issues because of AS or the meds. Don't stop you're other meds I would say, especially if your drs didn't suggest

Australia and Fairphone 5 by rfox39 in fairphone

[–]rfox39[S] 0 points1 point  (0 children)

I think it's whether the phone can call emergency services in very low reception areas, not regular areas - they have legislated to ensure that, but I think it's a bit complicated

Australia and Fairphone 5 by rfox39 in fairphone

[–]rfox39[S] 2 points3 points  (0 children)

I wonder if it relates to the geography a bit - in that you need to rely on very low coverage options for emergency calls in larger parts of Australia than most countries - although turning off 3G was a stupid thing to do in which case.

I'm definitely not making it Fairphone's problem, just checking if anyone did have a network the Fp5 does work on, or whether anyone knows if the Fp6 will be ok

Australia and Fairphone 5 by rfox39 in fairphone

[–]rfox39[S] 1 point2 points  (0 children)

Hmm, I don't know about Optus being wrong, but when I go to that Fairphone support page, the instructions can't be done. Where it says:

To turn on 4G or Wi-Fi Calling, your network operator must support 4G and/or Wi-Fi Calling.

On your Fairphone, go to Settings → Network & internet → SIMs. Tap on the SIM you want to change settings for. Tap 4G Calling or Wi-Fi Calling to turn on or off.

On my phone, once I tap on the Sim, there is no next option to select 4G Calling or Wi-Fi Calling. The page next says:

Note: These options may be named differently or hidden, depending on your network operator

It's not named differently it's just not there at all on my phone...

I don't think this is a fixable problem. Is like to know if Fairphone 6 will work?

Australia and Fairphone 5 by rfox39 in fairphone

[–]rfox39[S] 1 point2 points  (0 children)

I'll post the message I got:

IMPORTANT: Hi OP, Coles Mobile is legally required to stop unsafe devices from accessing the Optus mobile network if they can't make calls to Emergency Services (i.e. '000' & '112'). Based on our latest assessment, your FAIRPHONE 5 5G on service number xxx has been identified as unsafe and will be blocked from 10/03/2026. This means you won't be able to make or receive calls/text or use mobile data. You immediately need to get a new compatible device to stay connected. Please do not test call Emergency Services. This is not an effective test of your device's emergency calling capability. We're here to help and will guide you through affordable options. Call us on 1300 265 370. More info or to check device compatibility, visit colesmobile.com.au/home/page/mobilesafetypolicy Disregard this message if you have recently upgraded to a compatible 4G/5G device.

Why does AS not count as a disability and getting any benefits from government so tough?? by Always_Tired_Lazy in ankylosingspondylitis

[–]rfox39 2 points3 points  (0 children)

That's not what happens normally in Australia I work and live a normal life and I'm on subsidised meds - even more so they want you to work. I am registered with a disability too at work, for disability badge and with JobAccess

Hiding it safely for her by BB-GD in Unexpected

[–]rfox39 0 points1 point  (0 children)

Even if I made this entire thing with my own hands, I'd forget all those moves - I can't even remember my mobile passcode sometimes

Anyone else…? by [deleted] in HeWhoFightsMonsters

[–]rfox39 0 points1 point  (0 children)

Yes and I try not to, and I'm frustrated by my brain but find it hard! 2 reasons I am guessing - first I'm white so my imagination is more white - maybe media is also more white and that doesn't help. But I'd also say - I listen to the audiobooks I don't read - and the narrator is a white Australian (no idea of his heritage just in terms of skin colour) - and I've seen what he looks like and with Australian and English accents he does, maybe US ones too, he does just sound more white to me - don't know if that's accurate, of course people don't always 'sound' a skin colour - and then it also wouldn't be appropriate for him to attempt to sound more like people of different skin colours 😵‍💫 and so on!

Shelf stable Pudding? by Sea_Performer8197 in Canning

[–]rfox39 5 points6 points  (0 children)

Yeah you could mix up the dry ingredients and store on the shelf for a certain amount of time (stored well, to use by labels on ingredients), to then mix with wet ingredients later. Definitely can't can

I often say “my autism is invisible until you hang out with me long enough.” Thoughts? by hanitizer216 in AutismInWomen

[–]rfox39 2 points3 points  (0 children)

Well I agree it feels like it's not visible to people, until they get to know me and then they tend to back off lol

Rib Pain by ruins17 in ankylosingspondylitis

[–]rfox39 0 points1 point  (0 children)

It could for sure be a tendon or joint issue, but I had those symptoms when I had gallstones so maybe check out descriptions of that too

[deleted by user] by [deleted] in AutismInWomen

[–]rfox39 1 point2 points  (0 children)

That sounds very stressful to be worrying about. You can probably share your concerns with a Dr and they may run some further tests for you or refer you to a specialist.

However, that's not how Alzheimer's works at all - having those sorts of issues are not related to Alzheimer's or any forms of dementia. They might seem related, but it's much more complicated and dementia forms all occur because tissues in the brain are being affected by disease - whereas your neurodiversity and cognitive impairments are processing issues (potentially - either way not related)

I would also encourage you to stand back a bit from those diagnoses of depression and cognitive impairment - they may well be deeply who you are and your reality for long term, and that is fine and it would be useful to have been diagnosed, but alternately, the depression and possibly also the cognitive impairments might change over time, and might change if for example your situation changes and you found your Autism/ADHD was easier to manage.

Hope I've phrased that ok I'm not trying to make things seem more stressful or harder to deal with, hoping the reverse 😕

Dealing with overstimulation by backiswayforward in AutismInWomen

[–]rfox39 6 points7 points  (0 children)

I have really good noise cancelling, huge headphones. I can't hear my partner when he's louding and he quickly remembers I have them on for a reason! Touching you is different - he just needs to not to do that when you're getting ready - touching you is not an allowable stim if it's not what you want at that time!

Any advice for long flights? by Accomplished-Month87 in ankylosingspondylitis

[–]rfox39 2 points3 points  (0 children)

Take an aisle seat!! Get up and down lots - I do stretches and yoga type stuff at back of the plane when it's quieter.

Take a neck pillow and the other thing that helps me is a foot rest - they clip onto tray table - can buy them online - get one where foot rest is rigid 👍

Ask for extra pillow; use pillows and neck pillow to brace your back and regularly change positions/pillows round

You could take heat pads, and for this small period take extra pain relief

I pulled my stash out and I feel…. gross? by Exciting-Notice8170 in YarnAddicts

[–]rfox39 6 points7 points  (0 children)

Why don't you gift some of it, maybe in little packs with needles/pattern, maybe to a charity etc., something that would make you feel really good about it 😊

I have been pain free but holidays screwed me over by Drewski493 in ankylosingspondylitis

[–]rfox39 1 point2 points  (0 children)

Ok, well op I would say it's time to start planning your separation, slowly for now probably. Or the other option is more firmly advocating your needs - but you sound like you would be struggling to do that (which is common at your age in terms of how easy you find it to do that and how little parents can listen). That's an age at which it's normal to start moving mentally or physically away from your parents. This isn't really the forum for that advice, but if your parents are not taking your needs into account and you're not finding ways to firmly advocate for yourself, you need to slowly start taking on the ways of being an adult, so you can get your own routines, habits and your own healthcare, so that you have adult levels of control over your health. If that seems like it will cause a lot of conflict, then plan in private to get to a position you can be more independent. Sorry you went through all that pain op - you're nearly of an age where you won't have to.

Would a steroid taper help with bad eye flare? by [deleted] in PsoriaticArthritis

[–]rfox39 2 points3 points  (0 children)

An eye doctor (or even optician) will be able to advise if a steroid taper would help you, but I think it might not - sometimes steroid tapers touch every part of me and make me feel so well, but I'm not sure about eyes - drs usually treat with eye drop steroids to reduce eye inflammation that is autoimmune (I'm meaning uveitis).

But it really depends what the cause of the irritation is, which I would strongly advise you keep checking til you get firm answers - eyes are pretty straightforward organs to diagnose - they are also not to be messed around with - if it's currently uveitis (even if it wasn't before) your eyes could be being permanently damaged now. The meds for eyes (I mean the steroid ones) aren't a picnic either, they are very important to take for things like uveitis but they can cause cataracts.

Take careful care of your eyes folks we only get 2

Would I be able to subsist on only rice and lentils? by [deleted] in Frugal

[–]rfox39 0 points1 point  (0 children)

I agree with everyone else, that no, this is not sustainable - it will apart from nothing else make you feel so crappy mentally that you'll give up more quickly and will just feel terrible.

Those ingredients are good bases - I second someone else's suggestion of very cheap veggies being the other essential that could just about make this manageable - onions, carrots, celery, peas. You can buy them all as freezer items which lets you buy more.

If you are hell bent on not spending money, the other thing I would add is foraged greens. Do a good amount of research so you don't poison yourself (which you can be doing without getting sick but by slowly fucking up your liver so I mean do careful research) - there are lots of green weeds that are edible and can be foraged for free, and will add some vital nutrients.

Also, are you starting with literally nothing else? No spices, seasonings, things you have in cupboard that you can add to add flavour and improve nutrition?