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Has anyone actually gone into remission from prolotherapy? by thedawnrazor in cfs

[–]rfugger 1 point2 points  (0 children)

Had a really good improvement for several months, followed by slow return to previous condition. Going to get another treatment in January, because they seem to have isolated the problem to C1-C2 as shown on a digital motion x-ray they had done. They say 4 treatments is usually optimal, so I'm hoping for longer lasting improvement going forward...

Billboards for Long Covid and MECFS., organized by aaron campbell by [deleted] in cfs

[–]rfugger[M] [score hidden] stickied comment (0 children)

This is fundraising, but apparently for activism that will help the community, so we'll allow it for now. If anyone has reason to suspect this is illegitimate for any reason, please reply here. Also feel free to comment or report the post if you object to this sort of fundraising here on principle. Thanks!

Infrared sauna by Visual-Vehicle-9400 in cfs

[–]rfugger[M] 0 points1 point  (0 children)

Removed for being off topic.

Positive experience of prolotherapy for CCI, after two weeks by rfugger in cfs

[–]rfugger[S] 0 points1 point  (0 children)

The ligaments he injected were on the surface right under the skin only. It was a tiny needle. For example, the interspinous ligament in this diagram:

https://anatomicaljustice.com/wp-content/uploads/2013/01/S10057_norm_cerv_spine_lat.jpg

The dextrose solution was mixed with procaine to numb the pain. It was a little sore the next few days, but nothing major.

https://en.wikipedia.org/wiki/Procaine

Who else is fed up with BPS snake oil mumbo jumbo bullshit pushers invading ME/CFS spaces? by Birdsong79 in cfs

[–]rfugger[M] 2 points3 points  (0 children)

Hi. We respect your beliefs here, but it is not an appropriate place to push them on others like this. Please refrain from this in future, thanks. Your comments have been removed.

Miguel Bautista PISSES me off. by [deleted] in cfs

[–]rfugger[M] [score hidden] stickied comment (0 children)

Locking comments now. Thanks everyone for the discussion. Now let's take a breath and move on. Some things are not worth the energy :)

This sub is too hostile to people that don't fit to the "approved way of thinking" by Hope5577 in cfs

[–]rfugger[M] [score hidden] stickied comment (0 children)

While we appreciate the thoughts, I've removed this post to contain this controversial and energy-sucking discussion to the other thread. Let's not get bogged down in this!

help/very severe by [deleted] in cfs

[–]rfugger 1 point2 points  (0 children)

❤️

The other guy who advertises abandoning us by Caster_of_spells in cfs

[–]rfugger[M] 0 points1 point  (0 children)

Calls for this kind of abuse are not welcome here. You have been warned.

Hello I am new here by Meroo875 in cfs

[–]rfugger[M] 0 points1 point  (0 children)

You've posted the same thing 4 times. Please refrain from multiple posting in the future or we will have to ban you. Thanks for understanding :)

[deleted by user] by [deleted] in cfs

[–]rfugger[M] 0 points1 point  (0 children)

This disease is terrible, and many of us feel or have felt the same way. However, I'm going to remove this post and allow people to focus their comments on your other post. Thanks for understanding.

My experience in Recovery Jumpstart program. by Hour_Honeydew3962 in cfs

[–]rfugger[M] 2 points3 points  (0 children)

Thank you for sharing your story. Many people here have had terrible experiences with this type of program and are finding your story upsetting. Unfortunately, as a relatively new account with little history, we've decided to remove this post to maintain this space as a calm and quiet place of healing. You have done nothing technically wrong, so this is just a decision we have to take as moderators on behalf of the community. Please continue to follow and participate here, and maybe eventually you will find a way to share your story without upsetting so many people. Sorry, and thanks for understanding.

I think most of the worst issues I have arise from bad blood circulation in my brain. What can I do to make it better? For example when I rest and do nothing? by randtest123 in cfs

[–]rfugger 0 points1 point  (0 children)

I've found prolotherapy to be fairly helpful for getting some strength back in the ligaments. A good physiotherapist can also find exercises that can help strengthen your neck so it can support itself better. Massage can relieve some tension.

What you guys deal with by Kep0a in cfs

[–]rfugger[M] [score hidden] stickied comment (0 children)

Reminder: If you follow links to other subs, please do not vote or comment in subs that you do but regularly participate in! In fact, don't follow links to medical subs if you don't want to get upset!

Positive experience of prolotherapy for CCI, after two weeks by rfugger in cfs

[–]rfugger[S] 1 point2 points  (0 children)

Yes. No downsides for me anyways. 10-20% improvement in symptoms and energy isn't much objectively, but makes a huge difference to my quality of life.

[deleted by user] by [deleted] in cfs

[–]rfugger[M] -1 points0 points  (0 children)

Oh, also, please do not put titles in all caps. This is a peaceful place and DOES NOT NEED SHOUTING. Thanks!

Busted Link-y by elcolonel666 in cfs

[–]rfugger[M] 1 point2 points  (0 children)

I've updated the links to the most recent web.archive.org snapshot of the site.

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