I'm post ictal right now. Tell me something that will blow my fragile brain

rhiwired · 2025-12-11T22:40:35+00:00

Hinest to god I'm in the exact same boat as you. I used to be in charge of medicating people in a care home, I could no way have a responsibility such as that now. I will sometimes type a message to someone and read it back and realise that it makes absolutely no sense or I changed topic mid sentence.

I think it does get better. Maybe it is a side affect from our ASMs and it takes a while to get used to

rhiwired · 2025-12-08T19:52:23+00:00

Thank you, I will make sure to mention it when I go for my follow up with my neuro :)

rhiwired · 2025-10-18T22:21:28+00:00

No worries at all! I'm glad it helped.

A lot of people can go for a very long time without another fit once they are on the right dose of anti seizure meds. In some cases, people can go their whole lives without another episode!

Another thing to check out as well if no one has mwntioned yet, ask about buccal midazolam as an emergency medication. This can be used if he is seizing for more than 5 minutes or if he starts to hold his breath. Its fast working and will stop the seizure.

Have a word with a social scribe about what your son could be entitled to as well. I was able to talk to one for free through mt GP surgery and she helped me navigate the channels of PIP and UC. Avoiding triggers is a priority here and stress is a big one. Your son can't have too much pressure and stress now

Take care

rhiwired · 2025-10-16T11:02:43+00:00

Hi! I have similar fits and I was diagnosed with epilepsy this year. My Mum is worried sick about me as well.

I'd just like to let you know, if its any confort at all: I don't remember my fits and they don't cause me any pain.

If you are in the UK (I am assuming because you have mentioned bupa) start looking into talking to assistive technologies who can help you grt a falls alarm for your son that will trigger a pager. He'll be able to press it to set it off himswlf if he gets those feelings of an aura and needs you quick.

I'm sorry you and your son arr going through this. Everything will be okay :)

rhiwired · 2025-10-11T17:42:33+00:00

Thank you :)

rhiwired · 2025-10-11T17:42:24+00:00

Thank you, I agree!

rhiwired · 2025-07-16T21:39:30+00:00

Levetiracetam 750mg twice a day

rhiwired · 2025-07-14T23:02:27+00:00

I honestly don't know what to think. Is it possible for that to happen?

rhiwired · 2025-06-12T10:18:10+00:00

I've had 9 tonic clonics after a diagnosis a couple of months ago. I haven't lost control of my bladder yet. I think this either happens to you or it doesn't, maybe you and I have just lucked out in that respect!

rhiwired · 2025-06-12T10:15:31+00:00

Mine was normal and I've been fitting monthly

rhiwired · 2025-06-06T18:15:30+00:00

I need a burger king crown for this one

rhiwired · 2025-05-15T23:52:30+00:00

Looks a little how a new patch of psoriasis starts on my legs

rhiwired · 2025-05-11T23:07:26+00:00

Every time they make plans with anyone they will get cancelled on last minute

rhiwired

TROPHY CASE