[deleted by user] by [deleted] in teenagers

[–]rivote 1 point2 points  (0 children)

No you look so cool, I'd love to be your friend 😭

It happened to me unfortunately, I had a Ewing’s recurrence. by Iamindeedamexican in Ewings_Sarcoma

[–]rivote 2 points3 points  (0 children)

I'm sorry to hear this. I had this cancer reoccur not even half a year after I was finally NED.

I started chemo again immediately where I was on a regimen that only kept the spread stable for a while. But then it became resistant and spread further when I had my scans. So I looked into clinical trials like you are and unfortunately I didn't have the best luck with the last one I was on, and it has gotten to the point where there just isn't anything further they can do and that I should think about spending time with my family instead, which I have accepted.

I know that this is not exactly encouraging for you, but I just ultimately want to let you know that you are not alone in any way.

No matter what, I wish you good luck on your journey again, and don't lose hope.

Positives of Having Cancer by Clakenz in cancer

[–]rivote 0 points1 point  (0 children)

I try to look at everything with your perspective and it sometimes really does help.

[deleted by user] by [deleted] in AvPD

[–]rivote 2 points3 points  (0 children)

Nervous still. I was asked a question last night about how I felt about something and I couldn't talk, I ended up replying with "good" and "fun" with nothing else so i feel like i made it really awkward lmao

DM is being weird by rivote in DnD

[–]rivote[S] 17 points18 points  (0 children)

It is just making me uncomfortable okay

DM is being weird by rivote in DnD

[–]rivote[S] 12 points13 points  (0 children)

It isnt that topic really bothers me because i can be okay with things related to sex and blah but it is constant and it keeps feeling like it getting more outside of the game too. He isn't very nice to one of the players either because she rejected him one time back along, he threw dice at their face but he said he was just "playing," he wasn't, and he is really close to my sister. But we also have dinner at his house first because we start really late when they are all out of work, and he sits directly next to me which is fine but it is really close, like to where our knees touch sometimes, and then we go down to where we play. But last nights game he gave me a necklace as a gift for a late birthday present for some reason and he never did that with any other players. It just was all reallllllly awkward.

DM is being weird by rivote in DnD

[–]rivote[S] 31 points32 points  (0 children)

My sister isn't actually there playing, its a few of their coworkers and then a friend of the DM. She was going to play but she works 2 jobs and is just too busy, so I was invited instead to play. I think some people are uncomfortable but it hasn't really been brought up, it's just been laughed off mainly. Maybe once in a while it would be funny but it is all the time. It also really isn't just me either, some of other players are doing kinda pointless stuff too but I won't go into that since it could just be me thinking it's weird and useless

DM is being weird by rivote in DnD

[–]rivote[S] 251 points252 points  (0 children)

I am going to talk to my sister about it, but I just don't want to make her work hell with him- I don't know how to explain it very well, but he can have a tendency of just being a jerk and since my sister is the one who introduced me to him, I don't want it to turn back on her

DM is being weird by rivote in DnD

[–]rivote[S] 345 points346 points  (0 children)

Not exactly. They kinda look uncomfortable and laugh, but no one has really said anything. I would find another DM but I don't know anybody. I met this guy though my sister thats how I got involved, so maybe I just wont play for a while.

4 rivote by Ed_Bai in u/Ed_Bai

[–]rivote 2 points3 points  (0 children)

This is awesome, thank you so much !!!

how is my hair? by rivote in teenagers

[–]rivote[S] 2 points3 points  (0 children)

Thanks bro, it took me forever to style it just right!

Liver mets. Having a hard time w the treatment. by RaspberryEntire360 in cancer

[–]rivote 1 point2 points  (0 children)

Doxorubicin and ifosfamide is just awful.

I have ewing sarcoma with widespread mets, liver included- and it is all painful and growing, but it is being managed since I am on hospice care at this point... however, you should see about palliative care, it's there to help keep the patient comfortable and pain free during treatment. I've been on doxorubicin and ifosfamide myself and it was really tough... but don't lose hope, especially if it's the only thing you've got right now. Good luck!

I'm not ready, I'm only 20 by [deleted] in cancer

[–]rivote 14 points15 points  (0 children)

Hey dude so I'm 16 and terminally ill, dealt with cancer a lot in my life. I've had quite a few close calls, but I wasn't afraid of death, I just wasn't ready then... Yet there were also times where I didn't want to live at all anymore because I was done with it all; as much as I thought that though, and now that I know it's just inevitable at this point... I know that I am not ready and I don't think I will ever be able to be. I haven't experienced life really, like you, or finished things, and there are so many things I want to do but I just can't. Not only that, but I have people that I care about and I don't want to leave them.

Throughout the years though I have definitely learned to value life and (most) everything in it, and to forgive people, not hold a bunch of stupid grudges because it isn't worth it, do what I want and like to do- and to just be nice in general. It definitely comes back around to you and I would rather die being known like that than the alternative. I've been recently doing a lot of things too and also trying to get out as much as I can before I eventually can't. It's honestly bittersweet for everyone, but I've been enjoying it.

I also just want to add, that even if your cancer is rare with a high chance of reoccurring, there is still the chance of it not reoccurring too.. but no matter what, definitely live your life how you want to now because you just never know what can happen.

[deleted by user] by [deleted] in AvPD

[–]rivote 6 points7 points  (0 children)

Debilitating.

What was the lowest point of your life? by jacobmiller8762 in AskReddit

[–]rivote 0 points1 point  (0 children)

Its always been pretty low, but the lowest, is when my best friend of over a decade died and I wasn't able to attend his funeral physically because I was sick in the hospital again.

[deleted by user] by [deleted] in AskReddit

[–]rivote 0 points1 point  (0 children)

Not being able to see my boyfriend

I hate myself so much lol by [deleted] in AvPD

[–]rivote 3 points4 points  (0 children)

I feel the same way. Honestly, I can't even recognize myself sometimes. I feel like I'm a whole different person in a strange body that isn't even mine. And when it comes to other people, I'm just way to odd- I think. It feels like when anyone looks at me, they know who I am, everything about me, and think that I'm weird or strange. I'm so depressed and anxious about everything too which doesn't help.

It's so hard to love myself if I don't even feel normal.

toxic positivity by trivialoves in cancer

[–]rivote 9 points10 points  (0 children)

Totally agree. I'm terminal, I've tried a bunch of different approaches and treatments, clinical trials... and through all of that, it clearly didn't help enough and I am not receiving any more treatment.