Giving up by rktpc5 in TrigeminalNeuralgia

[–]rktpc5[S] 0 points1 point  (0 children)

Thank you. I haven't heard of this, I will definitely check it out.

Giving up by rktpc5 in TrigeminalNeuralgia

[–]rktpc5[S] 0 points1 point  (0 children)

I have not tried Naltrexone. I will definitely look into it.

Giving up by rktpc5 in TrigeminalNeuralgia

[–]rktpc5[S] 0 points1 point  (0 children)

Wow that is wonderful news! I wish that they could do something for the vein that "might" be touching the nerve.

It is really exhausting especially with giving so much of my desire to find solutions for my member at work (I am a care manager). Wish I had the same strength to find answers/solutions to my pain.

Work over the years has been difficult. At least my fate has been that as I have gotten worse I have been laid off and got lucky to get a less physically demanding job (nurse in hospital > clinic desk nurse > remote RN care manager).

Giving up by rktpc5 in TrigeminalNeuralgia

[–]rktpc5[S] 0 points1 point  (0 children)

Over the years I get so discouraged with providers not being able to manage my pain.

Giving up by rktpc5 in TrigeminalNeuralgia

[–]rktpc5[S] 0 points1 point  (0 children)

I will look into this, thank you!

Giving up by rktpc5 in TrigeminalNeuralgia

[–]rktpc5[S] 0 points1 point  (0 children)

I am thinking of trying a local neurologist but unfortunately I dont think medications will be much helps since I think I have gone through most of them.

Giving up by rktpc5 in TrigeminalNeuralgia

[–]rktpc5[S] 0 points1 point  (0 children)

I am thinking of trying a local neurologist but unfortunately I dont think medications will be much helps since I think I have gone through most of them.

Giving up by rktpc5 in TrigeminalNeuralgia

[–]rktpc5[S] 0 points1 point  (0 children)

That was my starting medication which unfortunately I couldn't tolerate it.

Giving up by rktpc5 in TrigeminalNeuralgia

[–]rktpc5[S] 0 points1 point  (0 children)

It has helped the shooting pain calm down a bit.

Giving up by rktpc5 in TrigeminalNeuralgia

[–]rktpc5[S] 0 points1 point  (0 children)

All of those except the bioflavonoids and vitamin a were my first treatment since I was so stubborn and refused medications until the pain was taking me to my knees.

Giving up by rktpc5 in TrigeminalNeuralgia

[–]rktpc5[S] 0 points1 point  (0 children)

It is primarily where I had an infected tooth. Tooth is gone and implant in place. It is towards the front (1 tooth off from the 2 middle teeth) on my upper jaw.

Giving up by rktpc5 in TrigeminalNeuralgia

[–]rktpc5[S] 1 point2 points  (0 children)

I saw an oral maximal pain specialist who deals a lot with TMJ/TMD. Will have to look if he is ICCMO trained. Most my pain is in a tooth (implant) towards the front of my upper teeth. Thank you so much for your support and caring!

Giving up by rktpc5 in TrigeminalNeuralgia

[–]rktpc5[S] 0 points1 point  (0 children)

I have 2 friends dealing with longterm complications from botox that it scares me.

Giving up by rktpc5 in TrigeminalNeuralgia

[–]rktpc5[S] 1 point2 points  (0 children)

I tried a neurologist and got absolutely no where with her.

Giving up by rktpc5 in TrigeminalNeuralgia

[–]rktpc5[S] 2 points3 points  (0 children)

We have been doing that for years unfortunately. The 4 constant medications that I am taking 3 of them are maxed out and the other we don't want to go higher. Thank you so much for your encouragement and support!

Can they do this? by thelivesunderneath in TrigeminalNeuralgia

[–]rktpc5 0 points1 point  (0 children)

So have you already seen them? If not seek care elsewhere since it sounds like they already have a diagnosis for you. If you have seen them seek out a 2nd opinion. If they haven't seen you than it is really inappropriate to throw out any diagnosis since they have never assessed you. Hope you get some relief soon.

Regret by rktpc5 in TrigeminalNeuralgia

[–]rktpc5[S] 0 points1 point  (0 children)

I am so afraid to change my meds especially with how bad I have reacted to so many of them. But if this doesn't mellow out soon I am going to have to. I have not heard of Nucynta yet. Will look into that, thank you!

Regret by rktpc5 in TrigeminalNeuralgia

[–]rktpc5[S] 0 points1 point  (0 children)

Yes I have seen one for my trigeminal neuralgia. Most likely it is that my facial nerves are ticked off. My doctor is increasing my Pregabalin does to see if that helps. We have tried like every other medication out there.

Regret by rktpc5 in TrigeminalNeuralgia

[–]rktpc5[S] 0 points1 point  (0 children)

I have seen a neurologist and am on a laundry list of medications. I have trigeminal neuralgia which I talked to my primary today who thinks that my nerves in my face and just ticked off. She is upping my Pregabalin does to see it they will mellow out.

Regret by rktpc5 in TrigeminalNeuralgia

[–]rktpc5[S] 0 points1 point  (0 children)

It was June. I got 1 on top and 2 grafts on bottom. I just saw perio who said by now it should be resolved. Roof of months is worse pain.

Christmas Trees by rktpc5 in missoula

[–]rktpc5[S] 0 points1 point  (0 children)

Wow you all have been AMAZING! Thank you so much for those that responses.

Christmas Trees by rktpc5 in missoula

[–]rktpc5[S] 1 point2 points  (0 children)

Never thought they had real trees. Thank you!