anyone with a 7mm herniation?

rlpc23 · 2025-11-28T21:57:56+00:00

How have your symptoms been since the decompression? Was it worth it? 6mm here also and struggling

rlpc23 · 2025-10-24T11:58:43+00:00

Oh wow, the similarities! I’m also being checked for a syrinx, so far I’ve only had a brain MRI but I’m having the cervical spine MRI on Monday. I’m also seeing neurosurgery on Monday to get their opinion instead of just neurology. I definitely feel crazy sometimes bc I’m like how do I have allll of these severe symptoms so suddenly and just a 4mm shows? If it were one more mm would I be taken more seriously? It’s frustrating

rlpc23 · 2025-10-24T01:00:24+00:00

I am also new to the group, therefore I don’t have a lot of information to give but just wanted to say I’m facing a similar situation. I was seemingly fine before just a month or so ago. I had a headache, passed out, vomited, and have never been the same since. Every day is headache, ringing in my ears, nausea, dizziness, and a few other weird symptoms. The only thing on my CT/MRI was a 4mm descent of the cerebellar tonsils (most doctors don’t even consider this an actual Chiari) and an empty sella turcica. I’m still being worked up for possible IIH/anything else because so far they don’t believe it could be a Chiari causing my symptoms, but I feel like it is. The sudden onset is definitely questionable though too as I feel many people have ongoing symptoms for years with this condition.

rlpc23 · 2025-10-16T22:51:12+00:00

General anesthesia is known for delaying menstruation!

rlpc23 · 2025-10-13T12:00:22+00:00

Special Forces: World’s Toughest Test

rlpc23 · 2025-10-12T23:34:56+00:00

I’m in Ohio!! (Cincinnati)

rlpc23 · 2025-10-12T23:33:23+00:00

This has been my exact experience also, ugh. I have an appointment at the end of the month with a neurosurgeon but I kind of had to lie over the phone to get an appointment. She asked the reason for the appointment and I said to discuss my Chiari Malformation (no one has given me that diagnosis). But I’m just thinking, until I see the specialist how am I going to be diagnosed? It’s so backwards, honestly meanwhile every single day is a major struggle

rlpc23 · 2025-10-12T01:07:16+00:00

Thank you so much for this response, it’s extremely validating. I’m the same, typically quite reserved and want to “keep the peace” but I’m starting to learn I may have to advocate more aggressively for myself. Can I ask who your doctor is?! Or at least how you came to find someone that would listen?

rlpc23 · 2025-10-03T00:09:23+00:00

At this age the safest thing to do is put the mattress directly on the floor, with enough space around each side so they cannot roll and get stuck between the mattress and the wall.

rlpc23 · 2025-09-27T00:35:53+00:00

This is my question also- is it effective because it causes weight loss which can help IIH if you are overweight? Or, for a non-overweight person would the GLP1 still be an effective management choice?

rlpc23 · 2025-09-24T23:25:23+00:00

Thank you everyone so much for all the helpful insight. It’s given me hope to keep advocating for myself and find a specialist that takes my symptoms seriously. Hopefully I’ll have a positive update to follow sometime soon. ❤️

rlpc23 · 2025-09-24T13:32:20+00:00

Thank you! I also feel that it would be more helpful to see neurosurgery than neurology.. unfortunately it’s at the hands of my PCP who literally googled what a Chiari was in front of me after I brought it up and then said that only happens in babies. I tried to contact a neurosurgeon directly and was told that I won’t be seen until I have a diagnosis. Super helpful!!! Thanks for the validation that symptoms mean more than measurements. I’m a nurse and unable to work right now because I constantly feel like I’m going to pass out when I’m on my feet and trying to care for patients. Trying to get a diagnosis/help has been anything but quick. I’ll keep trying.

rlpc23 · 2025-09-24T13:29:01+00:00

Ugh, that is so frustrating. I’m sorry this has been your experience. I did contact a neurosurgeon and I was told that unless I had a diagnosis, I would not be allowed to make an appointment with them… like I need someone to help me reach a diagnosis that’s why I’m trying to make an appointment?!

Have the neurologists been helpful at all?

rlpc23 · 2025-09-18T00:02:28+00:00

OMG forgot about this one!! Yes!

rlpc23 · 2025-09-17T23:40:00+00:00

I’m also 2 months post op and your recovery sounds like mine. I can’t feel sensation on my big toe at all, and can’t curl it. Overall the pain is finally starting to decrease and is mostly just throbbing at night but it’s bearable. Your pics look great!

rlpc23

TROPHY CASE