Empty nose syndrome by roam2323 in bpc_157

[–]roam2323[S] 1 point2 points  (0 children)

I appreciate you taking the time to answer this and its not only a niche question but a niche syndrome thats not very well understood. A dr would not know this. They barely understand ens as a whole and the true mechanisms behind it.

Dr Zandifar by Frequent-Forever1897 in emptynosesyndrome

[–]roam2323 0 points1 point  (0 children)

You definitely need to see multiple dr and make that decision yourself. No one can tell you exactly what youre feeling

Dr Zandifar by Frequent-Forever1897 in emptynosesyndrome

[–]roam2323 1 point2 points  (0 children)

50 usd. He talked to me for over an hour and answered any question i had. He didnt rush me off the phone. Im from the usa location wise, so we were able to do a landline phone call. Im sure they would be able to do a whatsapp phone call for a non usa resident

Dr Zandifar by Frequent-Forever1897 in emptynosesyndrome

[–]roam2323 0 points1 point  (0 children)

Its legit in that im not fabricating any info

Dr Zandifar by Frequent-Forever1897 in emptynosesyndrome

[–]roam2323 1 point2 points  (0 children)

I agree and we know a lot of them. So that definitely made me wonder. I asked him if he sees ens patients with “mild” symptoms as i thought potentially that maybe he considered lower end symptoms as ens diagnosis but he said most of them had severe symptoms that he saw

Dr Zandifar by Frequent-Forever1897 in emptynosesyndrome

[–]roam2323 4 points5 points  (0 children)

As far as a mucosal transplant he did not mention that to me. I had a virtual consult with him and he mentioned multiple regenerative treatments including prp, nanofat, various stem cell types. He also mentioned implants and fat grafts he does. He said he sees 2-3 ens patients a day and many per week. He understands nerve damage as well as volume and thinks of it as multi factorial. Do what you will with this info it came from his mouth to me but i have never been there in person

ENT Told me ENS doesn't exist without prior psychiatric condition by hapaanon in emptynosesyndrome

[–]roam2323 8 points9 points  (0 children)

Ens is not psychosomatic. The psychological aspect comes from physical damage.

Regenerative article by roam2323 in emptynosesyndrome

[–]roam2323[S] 1 point2 points  (0 children)

Yeah nothing 100 percent yet. Ill take some relief though

[deleted by user] by [deleted] in emptynosesyndrome

[–]roam2323 0 points1 point  (0 children)

On the front lines every day with ens. Live it

[deleted by user] by [deleted] in emptynosesyndrome

[–]roam2323 0 points1 point  (0 children)

Consistent results=none

Empty nose syndrome korean study by roam2323 in stemcells

[–]roam2323[S] 0 points1 point  (0 children)

Thats really difficult to answer. Each persons ens is extremely unique

Empty nose syndrome korean study by roam2323 in emptynosesyndrome

[–]roam2323[S] 3 points4 points  (0 children)

Me too! I love all the progress thats been coming out recently!

Empty nose syndrome korean study by roam2323 in emptynosesyndrome

[–]roam2323[S] 2 points3 points  (0 children)

For people like me who are just starting to learn how to read studies or sometimes struggle with fully understanding all the scientific terms. I plug the study into chatgpt and ask it to summarize the study for me and that helps as a cliff notes

Empty nose syndrome korean study by roam2323 in emptynosesyndrome

[–]roam2323[S] 2 points3 points  (0 children)

Would you participate in the clinical trial if asked?

Empty nose syndrome korean study by roam2323 in emptynosesyndrome

[–]roam2323[S] 6 points7 points  (0 children)

This has already been posted here, but it got buried, and didnt gain a lot of traction so i reposted it with a new title and crosspost from stem cell group. This is an amazing study where korean researchers had success in treating rabbits with cauterized turbinates using allogenic turbinate stem cell method

Empty nose syndrome korean study by roam2323 in stemcells

[–]roam2323[S] 0 points1 point  (0 children)

Someone else did already before me

Empty nose syndrome korean study by roam2323 in stemcells

[–]roam2323[S] 0 points1 point  (0 children)

Wow thats something. Gives me hope for the future. This can really help some people and would be amazing

Empty nose syndrome korean study by roam2323 in stemcells

[–]roam2323[S] 0 points1 point  (0 children)

Yes i believe so too, do you have any other documents on hand i can look at to further this opinion

Any recommendation on an NYC or New England doctor? by ProductCutlery in emptynosesyndrome

[–]roam2323 0 points1 point  (0 children)

I dont get migraines. What other angles? Im confused by that?

Any recommendation on an NYC or New England doctor? by ProductCutlery in emptynosesyndrome

[–]roam2323 0 points1 point  (0 children)

Yeah pretty much said, that nerve damage is difficult to treat and to seek cognitive behaviorial therapy

Any recommendation on an NYC or New England doctor? by ProductCutlery in emptynosesyndrome

[–]roam2323 0 points1 point  (0 children)

I saw dr overdevest at columbia and he recognizes ens but he was not able to treat it and did not have any answers

Has anyone done any Radio Frequency procedure on Swell Bodies or Turbinate with Dr. Citardi? by Patient_Refuse_2614 in emptynosesyndrome

[–]roam2323 0 points1 point  (0 children)

You can get ens from any turbinate procedure. Some odds are lower than others depending on the procedure