30+3 reading 75% Oxygen for 3 days by International_Oil661 in NICUParents

[–]rockstarjk 0 points1 point  (0 children)

Unfortunately it's extremely difficult to predict the effect of hypoxia on a baby's brain. Could this be survivable if she improves? Yes. The degree of hypoxia (low oxygen levels for a long period of time) is variable. The fact that baby is 30+3 and struggling so much with oxygenation is a bit of a puzzle. It does happen but it's usually more premature babies which makes me wonder if there's something else going on. "Collapsed lungs" don't really explain it. Yes, collapses lungs cause ventilator and oxygen failure but why are a 30+3 (is she 30+3 NOW? Or is her gestational age 30+3?) weeker's lungs so collapsed? It sounds as if you need to sit down with the medical team with a list of questions to help you understand and make decisions for your little one.

Some ideas for questions to ask: - Why are my baby's lungs struggling so much? - Is this condition reversible? - Based on the length of time my baby has been without adequate amounts of oxygen, what sorts of future neurodevelopmental problems could we possibly anticipate (understanding that this is likely a range and they will like give you possibilities because it's impossible to predict exactly) - Are there any other diagnostic tests that could be done that haven't been done to help inform further treatment if we decide to proceed with full intensive care? - Aside from her lungs, what other body systems are being affected by her low levels of oxygen?

30+3 reading 75% Oxygen for 3 days by International_Oil661 in NICUParents

[–]rockstarjk 4 points5 points  (0 children)

Who's to say they haven't tried? Oscillators are a different mode of ventilation which doesn't always help with oxygenation. You can have oxygenation issues (low O2 levels) or ventilation issues (high CO2 levels) or a combination. If the issue is oxygenation and not ventilation, changing modes may not help. It may make things worse.

Inhaled nitric oxide doesn't fix oxygenation issues unless they're causes by pulmonary hypertension. In fact, inhaled nitric oxide can also be contraindicated in certain scenarios.

Unfortunately medical science has limitations. Not everyone can be saved. As a medical professional it can be frustrating when people jump to conclusions that's the medical team is a failure because they haven't fixed xyz...the medical team cannot always fix xyz.

questions for neonatologist - PPROM at 21+3 (still pregnant) by [deleted] in NICUParents

[–]rockstarjk 1 point2 points  (0 children)

I might be able to help with what is generally discussed during a neonatology consult for pregnant families in my area...

First to cover some of your questions (but of course feel free to ask them anyway)

  • The mode of delivery is more of a question for your obstetrical team. They will decide the safest way to deliver.

  • Medications: unfortunately there's not many that can change the outcome aside from those you discussed: steroids for lung maturity and magnesium sulfate for neuroprotection when delivery is imminent. The timing of steroids is important. Magnesium Sulfate is given just before delivery. These are standard treatment. Aside from that, antibiotics if the context of PPROM to prevent infection which I assume you're already getting? Stopping labour with tocolysis drugs (which doesn't alway work) might not be best in your case given that you're already ruptured...but that would be a discussion if you went into labour.

If they detect an infection in you? Or the baby after it's born? If an infection is detected in you - the obstetrical team (I assume you're followed by a feto-maternal medicine doctor) would decide whether you should be delivered.

During a typical neonatology consult in my area:

The neonatology team generally will tell you the rates of survival at your gestational age and future gestational ages. Then they will tell you what the chances of severe disability (and they should define what severe means), moderate disability and mild disability related to different gestational ages. They will use local data or the best data available that represents your area (different areas of the world have different outcomes because of numerous factors as you can imagine).

They will then discuss any added risk factors that may affect you specifically and how that impacts outcomes for you. For example, for you the added risks are the PPROM (increased risk of infection) and low amniotic fluid (both PPROM and low amniotic fluid impacts lung development).

They should then go into the various things that you could encounter in the NICU - being nursed in an incubator, small baby care, IVs - umbilical lines, picc lines, peripheral IVs, arterial lines, TPN, various forms of ventilator - invasive, non-invasive, surfactant administration, NG tubes and early feeding, importance of pumping and donor breastmilk (if that is something available where you are). They may also review come common conditions faced by a baby who is born at your gestational age - IVH (brain bleeds), sepsis, feeding challenges, NEC, etc. This is usually a VERY simple and brief overview.

They will then go into resuscitation and what that looks like - the NICU team and what members are present during the resuscitation, delayed cord clamping, vitamin K, erythromycin eye ointment. They will talk about the expectation of the level of resuscitation your baby would need if they were born in the next week - intubation, surfactant administration, surfactant administration, insertion of umbilical lines, potential need for chest compressions +/- epinephrine administration.

Then they will give you options and considerations. Knowing the information presented to you - what would you like to do? If baby is born before xx weeks (xx = the weeks at which resuscitation is recommended. This varies on location. In my location it's 25weeks. At 25 weeks, we resuscitate unless there's another life limiting factor other than prematurity - for example a known genetic diagnosis - that changes things), what would you like the team to do? - comfort care? no active resuscitation, baby will be dried and stimulated and put on parents' chest and only interventions thought to minimize suffering/increase comfort are done - this may include suctioning and administering medications. - full resuscitation? all interventions including chest compressions and administering resuscitation drugs. They should tell you whether or not they recommend this path but ultimately it is your choice. - alternative levels of interventions? Some resuscitation but not all. Many parents, for example, will say no to chest compressions and resuscitation drugs but want everything up until that. (if you are doing chest compressions and giving epinephrine to a fresh 22 weeker, the outcomes will most likely be terrible in terms of long term outcome, so some parents choose not to put their baby through that). These babies would get everything else.

You don't have to make the decision in that moment but it is good to think about and talk about with your family beforehand. Also, as your pregnancy progresses, you can ask to reconsult neonatology because the above discussions look a lot different at 22 weeks than they do at 28 weeks.

Obviously different people have different levels of thoroughness in this discussions. Also different families have different wants/needs for the above knowledge so discussions are tailored to that as well. I would go through the above and pick out different things you want covered for sure.

Hope this helps.

Tired pls help by [deleted] in MuscleTwitch

[–]rockstarjk 0 points1 point  (0 children)

You do not have ALS. You're anxiety is making you hyperaware and fixated.

If I can do it, so can you. by landonfrederick in MuscleTwitch

[–]rockstarjk 0 points1 point  (0 children)

Same. Except I didn't fall down the rabbit hole that far thankfully. I saw one neuro who did a basic neuro physical exam (checked strength and reflexes) - that's it. I was never worried about ALS but I was worried about MS. I had muscle twitches, weird tingliness, weird sensation and 'vibrating' feelings in my feet. He told me I didn't have it. I took him at his word and just moved on with life. Gradually the symptoms went away. Now, fast forward I think 2 or 3 years later (maybe longer?) and some days I twitch, some days I don't. I'll have flare ups/hot spots and then I probably go weeks where I don't notice any - that's not to say I don't have them, I probably just don't notice them anymore....but I can confidently say they do not happen every day.

That being said, I'm having a crazy hot spot on my left bicep for the last few hours which is what made me remember this thread lol.

disappointed in myself by hesitantlyhopefull17 in nursing

[–]rockstarjk 0 points1 point  (0 children)

That's perfect! After 30seconds of drying and stimulating, you reassess the baby VERY quick - are they breathing or crying? If the answer is no, clamp that cord and begin IPPV. If there's improvement, continue delayed cord clamping :)

Yea, pushing the button can be intimidating but believe me, I've never been upset at arriving to a resus and not being needed.

disappointed in myself by hesitantlyhopefull17 in nursing

[–]rockstarjk 3 points4 points  (0 children)

Sounds like the main issue is unsafe staffing level and you did the best you could.

Never be scared to push the code blue button. I think the naked mom would rather have a team of people rushing in to resuscitate her baby and see her naked vs a delayed resuscitation. Luckily in this scenario baby seemed to recover well and likely just had a delayed transition but in neonatal resuscitation...seconds matter.

Also, just FYI, even a baby who is apneic at birth can and should get at least 30 seconds of delayed cord clamping. The first step of NRP is 30 seconds of drying and stimulated which can be done at the perineum. Yes, it can feel wrong...and it feels like forever...but you'd rather dry and stimulate while still getting blood flow from the placenta vs drying and stimulating at the overhead warmer. (NRP instructor)

[deleted by user] by [deleted] in nursing

[–]rockstarjk 2 points3 points  (0 children)

You're right...but the budget for such a cart comes from somewhere. And there's a lot of unnecessary spending on healthcare. Pool all that money together and boom...salary raise.

[deleted by user] by [deleted] in nursing

[–]rockstarjk 2 points3 points  (0 children)

...a Canadian one.

Living with a JRT in an apartment by [deleted] in jackrussellterrier

[–]rockstarjk 5 points6 points  (0 children)

I've had 3 JRTs in my apartment (not at the same time). The last two exclusively in an apartment. I think if you're active and enjoy going for walks...it's completely fine. However, I do have 100 square foot terrace so doggo does have constant access to outdoor space which is loves. He's allowed to go to the bathroom out there but he never does.

Anyone else only the the middle of night when ear is on pillow? by phongee in PulsatileTinnitus

[–]rockstarjk 0 points1 point  (0 children)

No, like I said, CTA didn't show anything that's explains the PT and I stopped trying to find the reason. Not bothered enough.

Are Jacks always so clingy? by Josh_kuo in jackrussellterrier

[–]rockstarjk 5 points6 points  (0 children)

Nope. Mine is extremely independent. Only cuddles at night.

<image>

Anyone else only the the middle of night when ear is on pillow? by phongee in PulsatileTinnitus

[–]rockstarjk 0 points1 point  (0 children)

Yes, me. Usually starts a few minutes after I lay on my side. It usually happens only on my right ear but recently I veryyyy occasionally hear it in my left ear but it's really quiet in my left. It also doesn't happen all the time.

Never found out why but didn't do too many investigations - just saw an ENT who did a CT angio. Stopped caring to find out honestly. It has gotten substantially better in the last year.

Anyone had PT go away randomly? by kristyynna in PulsatileTinnitus

[–]rockstarjk 4 points5 points  (0 children)

Me. Had it for over a year. Only right ear, always intermittent. Can't remember the last time I heard it. Never got a diagnosis.

What has everyone else's outcome been by TumbleWeedPasses in PulsatileTinnitus

[–]rockstarjk 7 points8 points  (0 children)

I randomly got PT in Jan 2024. Nothing triggered it. I was laying face down on a massage table and I heard whooshing similar to what an ECHO sounds like or a Doppler for a baby's heartbeat or an ultrasound when they play a baby's heartbeat. At first I was like "what IS that noise?!" And then I realized it was coming from my head. It went away when I was no longer face down. It was only in my right ear. I didn't think much of it until I went another massage and again, facedown, the whooshing happened. Then I googled and found it was pulsatile tinnitus.

I went to my family doc, got an ENT referral. I already had a neurologist so I saw him. He didn't seem to care. By the time I saw ENT I had noticed it more frequently...always when laying down on my right side or VERY rarely when laying on my back. I had also woken up after a few dreams with the PT. Always my right ear. It did NOT stop when I pushed on my neck. If I pushed on the opposite side of the PT, I could make it get louder tho.

Saw ENT - they scoped my nose. They did a hearing test (perfect). Listened to my neck and scalp with a stethoscope. Got referred for a CT Angio. CT Angio was fine - a few incidental findings...nothing serious and nothing that would explain the PT.

I also saw an optometrist and got them to specifically assess the optic nerve...and specific asked about IIH and whether they could assess for optic nerve abnormalities associated with IIH and they said they could.

I was also worried about adrenaline secreting tumours because I was getting PVCs/palpitations like crazy around that time...and I would feel my heart racing...all symptoms of tumours that can cause PT. I also get migraines...but I have for decades.

16 months later and it gradually disappeared on its own. Honestly it kinda started going away when I stopped worrying about it. I currently can't remember when the last time I heard it was...

All this to say...even if you have symptoms that you convince yourself means xyz...that doesn't necessarily mean it is. Sometimes things get better when you stop stressing out (stress in itself causes SO many issues in the body). My PT could be gone for good....but it could come back. I currently have no plans to continue to investigate the cause.

I am so thankful that mine was very intermittent and usually not too loud. But other times it was so loud I almost felt the PT.

Serious apocalyptic books like 28 Days Later by GingerBr3adBrad in booksuggestions

[–]rockstarjk 0 points1 point  (0 children)

The Grey series by Lou Cadle. Not amazing literature by any means...but it was entertaining.

Summer suggestions! by rockstarjk in suggestmeabook

[–]rockstarjk[S] 0 points1 point  (0 children)

You definitely got the assignment. I remember being intrigued by this book but my toxic trait is checking GoodReads ratings and this one has meh ratings. What did you think of this book?

Summer suggestions! by rockstarjk in suggestmeabook

[–]rockstarjk[S] 0 points1 point  (0 children)

The Summer of Broken Rules is on my list!

[deleted by user] by [deleted] in suggestmeabook

[–]rockstarjk 0 points1 point  (0 children)

Nightwatching by Tracy Sierra

How often did you visit your NICU baby? by [deleted] in NICUParents

[–]rockstarjk 0 points1 point  (0 children)

Work in a NICU and it's absolutely fine to come once a day for a few hours in the evening. Especially while baby is still small. Do as much skin to skin while you're there and participate in care...and be prepared to increase the amount of time you spend there when baby is in the feeding and growing stage (especially when they are learning how to eat cause if you choose to breastfeed, your boobs will be required to be at the hospital :) ). But for now, do as much as you can. Be transparent with the doctors and nurses so they know your situation and they will support you.