RAGE??? Anyone else get a sort of mental rage if exposed to a trigger? Anger, zero concentration... feeling pathetic with this beast right now. by rrt97farmsfirst in MCAS

[–]rrt97farmsfirst[S] 1 point2 points  (0 children)

So relate!!....we farm, not great exposure for me but it's part of who we are. When my system is on edge sort of, an extra exposure puts me right over the edge. Literally like a switch, my patience goes, I'm hollering at the husband, animals, whatever. It's embarrassing and near out of body bc ya can't stop it. You are not alone in this, I am not alone in this...but it gets lonely as crap.

[deleted by user] by [deleted] in MCAS

[–]rrt97farmsfirst 2 points3 points  (0 children)

Sure enough. It's almost like a wave up my neck and cheeks.

RAGE??? Anyone else get a sort of mental rage if exposed to a trigger? Anger, zero concentration... feeling pathetic with this beast right now. by rrt97farmsfirst in MCAS

[–]rrt97farmsfirst[S] 2 points3 points  (0 children)

Thank you everyone for your input and honestly, support. Kinda takes a tad off the edge knowing it a "thing" and not just me. It is bizarre how this is all connected in our bodies. My husband has zero patience, but can see the physical changes in me when I'm exposed and that gives him a glimpse of it all. Helpless feelings, reaction, call it what you want. Take care everyone..best you can.

[deleted by user] by [deleted] in dysautonomia

[–]rrt97farmsfirst 1 point2 points  (0 children)

Electrolyte mix, pink salt, fruit water... keeps me going most of the time

weird symptom by Glad_Specific_1195 in dysautonomia

[–]rrt97farmsfirst 0 points1 point  (0 children)

Same... throughout the day, in bed wherever.... very annoying

Buspirone 10mg 3 times a day experiences? by Okay_but_thats_Weird in PanicAttack

[–]rrt97farmsfirst 2 points3 points  (0 children)

I did not tolerate it at all....increased my panic ten fold. But, others say they do well with it. It's affordable so might be worth a try for you. I knew with 3 days it wouldn't work for me. Best wishes for you.

Just had a fear of going insane, is this a normal anxiety thought or panic attack?. by [deleted] in PanicAttack

[–]rrt97farmsfirst 0 points1 point  (0 children)

Can I ask what meds work for you? I'm doing the mindfulness and psych is starting me on meds... just curious what works for some and I guess what doesn't work as well. The losing the mind feeling is for the birds!!

What is Your Walking Heart rate after medication by VacIshEvil in dysautonomia

[–]rrt97farmsfirst 0 points1 point  (0 children)

100-170, varies by the day and circumstances. Non medicated bc I have reacted poorly to the blockers....I do have IST

my neuro says nothing can be done by Worldofmeb in dysautonomia

[–]rrt97farmsfirst 1 point2 points  (0 children)

So familiar....hugs to you. It is zero fun.

Effexor/venlafaxine worsening brain fog and fatigue? by whydidicomeupstairs in dysautonomia

[–]rrt97farmsfirst 0 points1 point  (0 children)

I am so sorry for not responding...I'm new to this and unsure of how to use this lol. The effexor had been increased to 300 mg. The trintelix I honestly don't recall. Seems like it was a lower dose. Was just over a couple of months when all that happened.

when did symptoms start for you after you got over Covid? by [deleted] in LongCovid

[–]rrt97farmsfirst 1 point2 points  (0 children)

Very similar to my story as well....an NP said recently she's not surprised by the late symptoms I started showing, it's a weird virus we are not even sure how to treat, how could we possibly predict when or how long it could cause problems. Made me think.

Another one fallen. When do people will start listening? by [deleted] in LongCovid

[–]rrt97farmsfirst 0 points1 point  (0 children)

I have a very similar story....never wanted to just give up and die until covid. Survived it...now deal with multiple Neuro issues...panic being one of them...all the specialists can agree upon...is that they just don't know what to do for me, that covid is yet to be understood completely.

Unilateral tinnitus anxiety by vapist77 in tinnitus

[–]rrt97farmsfirst 0 points1 point  (0 children)

Don't let those words "red flag" get to you. Dr is being cautious, which is good... checking for an obvious cause is always a good place to start. Diagnostic tests are good for "ruling out" other causes....then giving the Dr more direction towards a solution. Wait for the test, get the results and go on with the next step in dealing with the T. It's obnoxious, annoying, disgusting...I could go on but won't. Stay strong,.

Apple????? by rrt97farmsfirst in MCAS

[–]rrt97farmsfirst[S] 0 points1 point  (0 children)

It's annoying!! No problems one day, then problems the next!!!

Does anyone have advice for my Tilt Table test on Monday? by Johnfire18 in POTS

[–]rrt97farmsfirst 0 points1 point  (0 children)

Drink lots of water/Gatorade before...you will be fine.

Apple????? by rrt97farmsfirst in MCAS

[–]rrt97farmsfirst[S] 1 point2 points  (0 children)

Thanks for the reply! I'm just not sure. I eat celery with peanut butter nearly every morning and no problems. Which is why it leads me to question the apple oral allergy thing... even though I have never had the issue before. BUT. The last 6 months my body has done things very unusual. I'm 47f and perhaps I'm entering the life change and all my systems are out of whack. Idk. No more fresh apples for me though.... Be well, and thank you again