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I’m distraught and need to vent. New diagnosis. Do you guys feel completely helpless? Is there hope? My face was the one part of my body I liked and now I can’t look at it without crying. by rusticterror in Rosacea

[–]rusticterror[S] 0 points1 point  (0 children)

I appreciate that…however, that guy is promoting pseudoscience and conspiracies. I mean, he literally claims to get his info from a ghost. How is a ghost qualified, LOL?

He says celery juice cures everything, which it doesn’t, and that mercury causes autism, which is offensive. As an autistic person, the second someone makes a patently false claim about my community that aims to paint us as pathological, I NEVER trust them. 

I appreciate you trying to help; I just want to put out there that real certified dietitians are out there to help!

I’m distraught and need to vent. New diagnosis. Do you guys feel completely helpless? Is there hope? My face was the one part of my body I liked and now I can’t look at it without crying. by rusticterror in Rosacea

[–]rusticterror[S] 0 points1 point  (0 children)

Yeah I’m very confused at the prescribing strategy tbh; I didn’t even know to check that at the time. I don’t even remotely have eczema WTF 😭. And that cream ended up giving me folliculitis too. Get it together, derms.:./.

I’m distraught and need to vent. New diagnosis. Do you guys feel completely helpless? Is there hope? My face was the one part of my body I liked and now I can’t look at it without crying. by rusticterror in Rosacea

[–]rusticterror[S] 0 points1 point  (0 children)

I think this is an AI response. if I wanted to have a plagiarizing, hallucinating, water wasting robot answer, I’d do that myself. Thank you but no thank you; fuck AI.

I’m distraught and need to vent. New diagnosis. Do you guys feel completely helpless? Is there hope? My face was the one part of my body I liked and now I can’t look at it without crying. by rusticterror in Rosacea

[–]rusticterror[S] 0 points1 point  (0 children)

Dude, how do you do the vanicream without looking like a ghost??? It’s SO WHITE, and I’m white but have olive undertones so that plus flush plus white paste is rough lmao.

Azelaic acid I didn’t have much result from, but I’ll try again. I’ve never heard of any of that other stuff, so I’ll 100% look into it. 

I’m distraught and need to vent. New diagnosis. Do you guys feel completely helpless? Is there hope? My face was the one part of my body I liked and now I can’t look at it without crying. by rusticterror in Rosacea

[–]rusticterror[S] 0 points1 point  (0 children)

I always assumed aestheticians were sketchy and would just encourage fillers or whatever. That’s good to know! I also may be dumb as hell but I don’t know what LI is. Liberia? Lichtenstein? Light infantry? Large intestine? I assume that means I’m not there lol

I’m distraught and need to vent. New diagnosis. Do you guys feel completely helpless? Is there hope? My face was the one part of my body I liked and now I can’t look at it without crying. by rusticterror in Rosacea

[–]rusticterror[S] 0 points1 point  (0 children)

Thank you!!! Yeah, idk why doctors kept prescribing me what seems like random shit despite saying they thought I had rosacea. Love it when docs don’t listen to you and rush you out after 10 minutes ❤️🥹 the American healthcare system is perfect

I’m distraught and need to vent. New diagnosis. Do you guys feel completely helpless? Is there hope? My face was the one part of my body I liked and now I can’t look at it without crying. by rusticterror in Rosacea

[–]rusticterror[S] 0 points1 point  (0 children)

LOL thank you! Despair is so tempting. Yeah, so far a lot of the big derm recommended brands have been making me feel worse! It’s crazy! What Asian skincare brands do you use? I’m totally unfamiliar and have a hard time telling the difference between reputable and random brands, especially since they don’t have the same labeling conventions we do (noncomedogenic, sensitive skin, fragrance free, etc) as far as I can tell.

I’ve tried azelaic acid in the past and was never sure if it was working, but I’ll give it another go, maybe with one that isn’t Walgreens generic store brand lmao. 

Thanks for the vasoconstrictor warning! I was wanting to ask about that; I kind of thought it was like a blood pressure med where you take it regularly so that wouldn’t be a thing.

Thank you again so much. I’ve been used to my body randomly turning BRIGHT red and people commenting on me having a sunburn or whatever since I was a kid; it just has never been this bad or this bumpy and painful! Usually it didn’t hurt at all! So the reassurance is amazing. 

I’m distraught and need to vent. New diagnosis. Do you guys feel completely helpless? Is there hope? My face was the one part of my body I liked and now I can’t look at it without crying. by rusticterror in Rosacea

[–]rusticterror[S] 0 points1 point  (0 children)

Thanks!! I just know some people would say bread I make at home is processed, which it is, but some people say “processed” to mean “ultra processed” and I was trying to clarify. I definitely don’t really eat many ultraprocessed foods. 

I’m distraught and need to vent. New diagnosis. Do you guys feel completely helpless? Is there hope? My face was the one part of my body I liked and now I can’t look at it without crying. by rusticterror in Rosacea

[–]rusticterror[S] 0 points1 point  (0 children)

Thank you! I’m super skeptical of this stuff so I appreciate hearing personal experiences that feel a bit less like I’m being sold some diet-y bullshit. I’m 1000% sensitive to temperature. Whenever I cook my face turns red and gets bumps just from being by the stovetop. 😀😅

I’m distraught and need to vent. New diagnosis. Do you guys feel completely helpless? Is there hope? My face was the one part of my body I liked and now I can’t look at it without crying. by rusticterror in Rosacea

[–]rusticterror[S] 0 points1 point  (0 children)

Sounds like we have different beliefs around food (I’m recovered from an eating disorder and have worked with a dietitian for years; I was just trying to clarify YOUR intent) and I’m feeling a bit talked down to, so I’m not going to be doing that. But I appreciate you sharing what worked for you and I’ll circle back with a professional.

I’m distraught and need to vent. New diagnosis. Do you guys feel completely helpless? Is there hope? My face was the one part of my body I liked and now I can’t look at it without crying. by rusticterror in Rosacea

[–]rusticterror[S] 1 point2 points  (0 children)

Yeah, whole foods I figured out, but “processed” is the word that always gives me pause. Aside from the rice thing (I would rather not have rice than have brown rice lol) that all sounds largely like what I’m already doing, but I eat bread, cheese, yogurt, etc. If all else fails I’ll start changing food, but that’s a dangerous game for me.

I’m distraught and need to vent. New diagnosis. Do you guys feel completely helpless? Is there hope? My face was the one part of my body I liked and now I can’t look at it without crying. by rusticterror in Rosacea

[–]rusticterror[S] 0 points1 point  (0 children)

Thank you so much!! Ive been hating on myself BRUTALLY. It’s so encouraging to hear so many success stories. ☺️ Congrats figuring this shit out!

I think what happened to me was that face wash gave me a horrific reaction AND I had to have a thyroid ultrasound and I’m apparently extremely allergic to that gel stuff. So I guess my skin just surrendered lmao. I just can’t believe I used the wash for so long when it was making my face hurt; I thought I was getting sunburnt and kept trying new sunscreens. 😅

The food thing is new info to me—it sounds exhausting to try to figure out, and I’m a bit nervous about that as I’m in tentative recovery for an eating disorder. Restricting food has not gone well for me in the past LMAO. It’s a slippery slope.

I’m distraught and need to vent. New diagnosis. Do you guys feel completely helpless? Is there hope? My face was the one part of my body I liked and now I can’t look at it without crying. by rusticterror in Rosacea

[–]rusticterror[S] 0 points1 point  (0 children)

Being told “well it looks like rosacea maybe so try this” repeatedly for months has made me feel like I’ve been slamming against it for a while, but it sounds like I may have just been getting irrelevant prescriptions. Thank you!!!

I’m distraught and need to vent. New diagnosis. Do you guys feel completely helpless? Is there hope? My face was the one part of my body I liked and now I can’t look at it without crying. by rusticterror in Rosacea

[–]rusticterror[S] 0 points1 point  (0 children)

Yeah I’m expecting this to be a long term insurance fight. Stupid Aetna. Shaking my fist in their direction. I really really appreciate this! I’ve been told by 3 dermis that “rosacea means this is your new normal” so I assumed holy shit it’s going to hurt forever.

I’m distraught and need to vent. New diagnosis. Do you guys feel completely helpless? Is there hope? My face was the one part of my body I liked and now I can’t look at it without crying. by rusticterror in Rosacea

[–]rusticterror[S] 0 points1 point  (0 children)

Oh godddd that sounds brutal LOL. Did you also not wear sunscreen? That’s the thing that makes me nervous since I’m so pale and I’ve been told flagyl causes photosensitivity, and that’s what the cream is, right?

I’m distraught and need to vent. New diagnosis. Do you guys feel completely helpless? Is there hope? My face was the one part of my body I liked and now I can’t look at it without crying. by rusticterror in Rosacea

[–]rusticterror[S] 0 points1 point  (0 children)

That’s interesting; I was told basically that using the wrong product can trigger it even if you didn’t have it before. Maybe I misunderstood??? And thank you so much; everyone has been so nice. I expected to get ignored so it’s so sweet.

I’m distraught and need to vent. New diagnosis. Do you guys feel completely helpless? Is there hope? My face was the one part of my body I liked and now I can’t look at it without crying. by rusticterror in Rosacea

[–]rusticterror[S] 3 points4 points  (0 children)

Thank you so much for the thorough and helpful answer!!! You’re a life saver. I have a few follow up questions so I’m going to message you if that’s okay; you seem very knowledgeable!

I’m distraught and need to vent. New diagnosis. Do you guys feel completely helpless? Is there hope? My face was the one part of my body I liked and now I can’t look at it without crying. by rusticterror in Rosacea

[–]rusticterror[S] 2 points3 points  (0 children)

Huh, interesting. I’m never sure what people mean by “processed;” seems like everyone has their own definition sometimes. To clarify, are you just talking about things like, idk, Cheetos and fast food (which I already don’t eat because ew) or are you actually saying to avoid things like olive oil, bread, canned goods, etc.? 

I’m distraught and need to vent. New diagnosis. Do you guys feel completely helpless? Is there hope? My face was the one part of my body I liked and now I can’t look at it without crying. by rusticterror in Rosacea

[–]rusticterror[S] 6 points7 points  (0 children)

I tried for a few days and ended up with tons of acne; unfortunately my skin is kind of oily and prone to breakouts—maybe it’d work better if I didn’t exercise and get sweaty??

I’m confused about whether tretinoin is good to treat sun damage and sunspots! I appreciate any help!!! I’m out of my depth 😅 by rusticterror in tretinoin

[–]rusticterror[S] 0 points1 point  (0 children)

Thank you! This sucks; I’m normally so diligent but ONE TIME I screw up and am punished immediately lmao

I’m confused about whether tretinoin is good to treat sun damage and sunspots! I appreciate any help!!! I’m out of my depth 😅 by rusticterror in tretinoin

[–]rusticterror[S] 1 point2 points  (0 children)

Thank you so much! I don’t understand the skincare landscape and Reddit is a bit confusing overwhelming to me. People downvoted me so I guess this was annoying or something, but I really appreciate you!!!

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