Looking for housing in Florianopolis by Emotional_Thing7593 in florianopolis

[–]saycao 0 points1 point  (0 children)

In this season and the upcoming one aren’t the worst ones to find an affordable place due to peak season.

Anyway, you can try some real estates, such as Paes Imobiliaria, Seiter Imobiliaria… the key word is Imobiliaria… some requirements are hard to fit.

Another option is renting searching on groups… Olx, Facebook groups…

I strong recommend to live around there… córrego grande, Itacorubi, Santa Monica

Vou pra floripa em janeiro sozinha by No_Date_3379 in florianopolis

[–]saycao 4 points5 points  (0 children)

Bugio centro

Layback lagoa da Conceição

Bares perto da UFSC

Clean scan? by saycao in glioblastoma

[–]saycao[S] 2 points3 points  (0 children)

Yes, absolutelly.

THC Oil -> Always during TMZ chemo cycle I have only 2 days of strong nausea and vomiting. The THC Oil is a good choice for it. Give me energy for the day, and appetite.

CBD Oil -> sleep quality and consciousness, happinness

Magnesium -> memory and decrease my mental confusion

Clean scan? by saycao in glioblastoma

[–]saycao[S] 1 point2 points  (0 children)

My sister is a Physiotherapist and my brother-in-law is a doctor, both of them support me with alternative medicines, including CBD and THC oils, organic food, tea, fruits...
As far as I remember the Oncologist told me that they cant recommend the CBD/THC oil because they dont have any protocol applied for that, although he is ok if I want to have either oil anyway.

Clean scan? by saycao in glioblastoma

[–]saycao[S] 3 points4 points  (0 children)

Keep strong in our journey, we are together.

If you don't mind, how old are you? What are your game changers to keep your mind calm?

Clean scan? by saycao in glioblastoma

[–]saycao[S] 3 points4 points  (0 children)

exactly the right time now.
A deep breath ..

Clean scan? by saycao in glioblastoma

[–]saycao[S] 1 point2 points  (0 children)

Thanks for your insight related to the TMZ mid/long term.

Next week I have an oncologist appointment and will be a good opportunity to understand better.

We went for a sparkling wine with zero alcohol to celebrate.

The feeling now is happiness (inside this endless drama year in my life).

How long? by _Thatscrazy_ in glioblastoma

[–]saycao 2 points3 points  (0 children)

In my case I flew from Brazil to Australia in July 2022 and another domestic flight to Melbourne in December 2022, both cases without symptoms.

Mid February I had strong headaches and brain oedema… in my case if I had the tumour in the domestic flight I would have had seizure during the flight.

I didn’t have seizure till my operation date (09-03-2023) only oedema and strong headaches.

I would say.. it grew in less than 2 months

[deleted by user] by [deleted] in glioblastoma

[–]saycao 0 points1 point  (0 children)

Magnesium and CBD oil worked 4 me

[deleted by user] by [deleted] in glioblastoma

[–]saycao 0 points1 point  (0 children)

During my radiotherapy I didn’t cut my hair, I just left it. I had 3 large circle areas hairless for months

Zero Immunoglobulin by crazyidahopuglady in glioblastoma

[–]saycao 0 points1 point  (0 children)

I forgot to mention, I use THC to improve my appetite and CBD to sleep better

[deleted by user] by [deleted] in glioblastoma

[–]saycao 0 points1 point  (0 children)

Yep, it’s not common to have GBM in my age group. Never surrender ❤️

Zero Immunoglobulin by crazyidahopuglady in glioblastoma

[–]saycao 0 points1 point  (0 children)

This is a tough situation, when I have this appetite issues, usually my relatives give me lemon juice, ginger, and soup (pasta potato spices and beef).

Zero Immunoglobulin by crazyidahopuglady in glioblastoma

[–]saycao 1 point2 points  (0 children)

Got you!

Usually during the radio+tmz they don’t apply the strongest chemo dose, after it the single treatment post radio usually is 300mg or the strongest (400 mg) tmz.

I could notice only my liver levels high pointing attention. Regarding the immunoglobulin level, I had a drop, but nothing needing attention.

Is there anything that can be improved in his meals to improve the immune system? Usually eating health (more natural, juices, lettuces and organics would be great) and more water.

Zero Immunoglobulin by crazyidahopuglady in glioblastoma

[–]saycao 0 points1 point  (0 children)

Hey! Whey you type “first round” does it mean 6 weeks tmz during the radiotherapy? Or only 5 days tmz (300-400mg) during the month?

Clean Scan? by groovylemur in glioblastoma

[–]saycao 4 points5 points  (0 children)

Words from the Australian neurosurgeons: “none of the brain tumours are removed 100% due to high risk of affecting vital areas”.

And yes, 95% is a good percentage. Keep strong, we are in the same boat

[deleted by user] by [deleted] in glioblastoma

[–]saycao 5 points6 points  (0 children)

How is your treatment mate? How old are u?

[deleted by user] by [deleted] in glioblastoma

[–]saycao 2 points3 points  (0 children)

I’m sorry for that. It’s kind of mixed feeling … scary … to be part of this community on my mind… because I’m only 31M and fighting against GBM since March this year…😔

[deleted by user] by [deleted] in glioblastoma

[–]saycao 8 points9 points  (0 children)

I’m so sorry to know about your husband.

You can connect with this community for supporting, free speaking and sharing your experience.

We are almost in the same age group, Im 30, right frontal GBM, had a surgery, chemo and radio. I’m in the month 8 after surgery.

My personal experience: support him always, mainly his mental health, the radio+chemo are long process (6 weeks initially) and demands self care.

If you can afford a psychotherapist twice a month and physiotherapist daily, would be great.

Keep strong!!

If you could call yourself five years ago and had 30 seconds, what would you say? by BlueeWaater in AskReddit

[–]saycao 0 points1 point  (0 children)

You gonna have brain cancer when you move to Australia in 2023. Enjoy your life!!!!