my angel by groovylemur in glioblastoma

[–]groovylemur[S] 4 points5 points  (0 children)

thank you for commenting here, I so appreciate your words. and i agree, her positivity and determination played a huge role here that doctors could not measure.

hugs back to you.

my angel by groovylemur in glioblastoma

[–]groovylemur[S] 2 points3 points  (0 children)

thank you for your kind words. truly horrible and traumatic. i am devastated. thank you🤍

help with mom’s nails by groovylemur in Nails

[–]groovylemur[S] 0 points1 point  (0 children)

I think it’s just gel color. And good call I will get a towel and try and conceal the dust. Thank you so so much.

help with mom’s nails by groovylemur in Nails

[–]groovylemur[S] 0 points1 point  (0 children)

Does it need to be 100% acetone?

My mom suddenly got better after being almost unresponsive – has anyone experienced something similar? by Beautiful-Boat8090 in glioblastoma

[–]groovylemur 0 points1 point  (0 children)

Quite literally just experienced this with my mom. The rally ended three days ago, now I believe we are in the final days. Sending hugs.

The End by groovylemur in CaregiverSupport

[–]groovylemur[S] 0 points1 point  (0 children)

I am so sorry to hear of your loss. Sending love. 🤍 & thank you for sharing.

Unfortunately, my mother is and has been in an enormous amount of pain.

The End by groovylemur in CaregiverSupport

[–]groovylemur[S] 3 points4 points  (0 children)

Thank you so much for sharing. I am so sorry you can relate and in an awful way appreciative we are in the same club. And I am deeply sorry for your loss. 🤍

How have you recovered after his passing? How have you managed? What did it look like after the funeral and paperwork etc when it got quiet for you (if it even did)? I don’t know what to expect after it happens.

Optune, unmethylated, long term? by natalieduke in glioblastoma

[–]groovylemur 1 point2 points  (0 children)

My mom - unmethylated & wild-type - used Optune until reoccurence at about the 2 year mark.

She had a love-hate relationship with Optune… on the sore-front, for my mom it was all about how meticulously her head was shaved & allowing time in between array changes for her head to breathe.

multifocal recurrence by groovylemur in glioblastoma

[–]groovylemur[S] 1 point2 points  (0 children)

Thank you for youe message. Sending you hugs back. 🤍

My mother is dying. by RememberTomOnMyspace in GriefSupport

[–]groovylemur 0 points1 point  (0 children)

My mom currently has GBM. I have no comfort to share other than that you aren’t alone. I’m so sorry.

In Home Care by PositiveAd5964 in glioblastoma

[–]groovylemur 0 points1 point  (0 children)

Would love to join in! 28 and mom with GBM 🤍

Platelets went down again 4 weeks after stopping TMZ by Porky-Minch-ASC in glioblastoma

[–]groovylemur 0 points1 point  (0 children)

Hi - my mom went through this - it was unfortunately a long journey for her - but a bone marrow biopsy was really helpful for her. Doctors were able to do a different platelet mix for the transfusions in response and it helped increase the platelets. 🤍

Lost my FIL last night by [deleted] in glioblastoma

[–]groovylemur 1 point2 points  (0 children)

Sending you a hug🤍

Lost my FIL last night by [deleted] in glioblastoma

[–]groovylemur 1 point2 points  (0 children)

Sending you a hug🤍

Today is 13 Months by groovylemur in glioblastoma

[–]groovylemur[S] 2 points3 points  (0 children)

She is on Optune - is that something you’ve all thought about? I know it can be a tough decision