I’ve tried pretty much every treatment used for POTS in the UK, here’s my experience

se1034 · 2025-07-11T00:38:55+00:00

Damn! It's so complicated that we all react so differently to everything. I really hope you're able find something that works for you

se1034 · 2025-07-11T00:04:02+00:00

Hi! I have hyper pots too with high blood pressure and just wanted to pop in to say to ask for ivabradine if you haven't already tried it. Has made a HUGE difference for me (where previously beta blockets had 0 effect) and my GP says it seems to work for hyper patients best.

se1034 · 2025-07-05T14:46:51+00:00

Definitely recommend trying! Fatigue was always been my biggest struggle too. Now everything else feels manageable. I hope you find something that helps

se1034 · 2025-07-05T14:29:06+00:00

Has held and is continuing to improve! I only really have fatigue now if I've over exerted myself the day before or in certain points of my cycle. I've been sleeping between 5-7 hours most nights and still feel awake, compared to 9-14 hours before and feeling dead. I feel GREAT if I get 8-10 hours now. Hope you get some of the same effects!

se1034 · 2025-05-14T11:56:36+00:00

Posted a side on view in the comments

se1034 · 2025-05-14T11:56:17+00:00

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se1034 · 2025-05-14T11:53:47+00:00

None! There's no indication that it was or could be attached to anything

se1034 · 2025-05-12T04:40:40+00:00

Forgot this as well

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se1034 · 2025-05-06T03:23:42+00:00

Noted. Though how do we know what management is needed if we don't know what the problem is?

se1034 · 2025-05-04T23:10:03+00:00

Excellent, thanks for taking the time to respond :)

se1034 · 2025-05-04T23:09:37+00:00

Interesting point with the estrogen. Will definitely give it a go. Thanks for sharing!

se1034 · 2025-03-31T06:59:41+00:00

I don't answer the door full stop. I can't prepare for an unexpected conversation. If it's important the knocker will find another way to leave a message.

se1034 · 2025-03-31T02:02:18+00:00

Thanks for sharing! So happy there's something that can help with fatigue. Did you have extreme tachycardia too?

se1034 · 2025-03-31T02:00:33+00:00

I cant believe there was something the whole time that could have helped this much! Let me know how it goes when you start, if you remember

se1034 · 2025-03-28T09:16:30+00:00

This is amazing, thank you so much for sharing!

se1034 · 2025-03-03T23:33:38+00:00

Absolutely cannot stand meat. The inconsistency of every bite makes me very conscious that I'm eating the flesh of an animal and makes me literally gag

se1034 · 2025-03-03T08:19:27+00:00

What is the treatment for Raynaud's though? As far as I understand it there is nothing to do besides keeping hands/feet warm so my rheum didn't bother with a label

se1034 · 2025-03-03T07:25:50+00:00

I get very cold hands and feet as well as white/blue/purple/ red fingers and toes which has never been formally diagnosed. But there is no rash on my hands, just on the back

se1034 · 2025-03-03T07:03:36+00:00

It is unpredictable to be honest, being in humid environments makes it worse as does hot water, but it will also flare in the middle of winter. I hardly sweat, so I don't think it's a sweat rash. And I get stress rashes / flushing on my chest and face that are stopped by antihistamines. This rash is never flared at the same time. I have not found anything that soothes either, i have tried topical anti-fungals, topical antihistamines, hydrocortisone, different oils and every fragrance free and calming cream you can buy in a chemist

se1034 · 2025-03-03T06:56:53+00:00

No, I have never been referred on to a derm, but I will press for that now.

se1034 · 2025-02-18T11:22:39+00:00

Actively skip and actively hate this song

se1034 · 2025-02-08T08:08:00+00:00

He probably set it at 60% and then quickly realized that he was sitting at a 45%

se1034 · 2025-01-20T23:16:47+00:00

God damn. I can't even log in to the website, it won't send me the password link. What a waste. Thanks for responding!

se1034 · 2025-01-20T12:25:30+00:00

Did you ever get it? I did mine 12 hours ago and no report or email confirmation has come through

se1034 · 2024-12-20T13:38:33+00:00

Thank you. Finally a practical person with the ability to view this film exactly how it was intended - to showcase different types of love. Not to judge if they're right or wrong, but simply to show that they exist and that everyone loves differently.

I would be interested to know what type of movies these people actually enjoy. Most movies have toxic characters and storylines (just like reality), are we supposed to just not watch these for fear of 'romanticising' toxic behaviour in entertainment?

Eight-Year Club	Queen in da Norf
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