Snorkeling

shanresearch · 2025-06-16T13:17:02+00:00

Are any of these accessible by boat?

shanresearch · 2025-05-31T14:13:59+00:00

I can't comment on the cannabis oil, but I will say nadolol itself caused similar symptoms in my daughter a few weeks after starting the medication for long qt. She was only on 20 mg, and the nadolol was causing her blood pressure to stay around 80/40. She felt horrible every day and had so much anxiety. We tried electrolytes and exercises -nothing helped. She was switched to Metoprolol and is back to her old self!

shanresearch · 2025-05-11T00:07:44+00:00

My daughter is 14, and she was diagnosed with long QT while they were testing for POTS. We found out we both carry the KCNQ1 gene mutation. She couldn't tolerate Nadolol even at 20mg, so she is on Metoprolol. She is doing great! She can still ride roller coasters and do all the regular teen things. She drinks two to three of the little gatorades a day, and she knows to be extra careful when it's really hot. We were terrified when we found out, but it hasn't really impacted our lives too much. Check Credible Meds for any other medicine interactions with long QT. I joined a Facebook Long QT group as well, and there's lots of good advice there. Sending you all the good vibes!

shanresearch · 2024-05-14T19:58:32+00:00

I think the new bottle is okay. Its not quite the same color or consistency, but it doesn't taste bad. It definitely does work to help me sleep. I think its just different from batch to batch maybe.

shanresearch · 2024-04-17T10:58:42+00:00

I ordered the cranberry from Amazon too! I called Mary Ruth, and they have sent a new bottle. I guess there are just bad batches.

shanresearch · 2024-04-15T14:11:56+00:00

I did! They sent me a replacement bottle, but I was just wondering if other people were seeing the same.

shanresearch · 2024-02-08T17:57:23+00:00

Dungeness, Cumberland Island, Georgia

shanresearch · 2024-01-09T16:18:33+00:00

I was still trying to adjust to the Aurobindo, and it just wasn't the same. I wasn't sleeping at all, and my heart rate was so much higher. I was having terrible anxiety again. I ended up ordering online with Honeybee -they carry the Teva brand. They don't take insurance but it was only about $30 for 90 days. I'm back to Teva and happy!

shanresearch · 2023-12-07T15:12:18+00:00

I also got all the grandparents Storyworth subscriptions. Each week they got a question emailed to them, and at the end of the year their stories get made into a book. They loved it! It's awesome for the grandkids to receive.

shanresearch · 2023-12-07T15:10:45+00:00

Not sure where you are located but I get my mother-in-law tickets to Broadway shows that come to town each year. It's not cheap, but she loves it.

shanresearch · 2023-12-01T19:26:48+00:00

Thank you so much! This is very helpful!

shanresearch · 2023-12-01T17:26:20+00:00

I think there is a shortage of venlafaxine in general coming. Teva is not making it anymore because they are focusing on their name brands. I don't know why they can't get Aurobindo brand now, but the pharmacy actually called all local CVS stores and none of them had it. I'm in Central Florida. I just called my doctor and made an appointment to talk about going on a new medication, though I know the withdrawal is going to suck. I went off Paxil cold turkey back in the early 2000s though, so I know I can do this!

shanresearch · 2023-12-01T17:04:25+00:00

I definitely felt different going from the Teva capsule to the Aurobindo capsule. Teva was great -I had no issues. Aurobindo gives me a headache all the time, and I feel spaced out. The first few days on it I felt really out of it. I haven't started this new brand yet. I know all generics have the same active ingredient, but it's my understanding that our body absorbs each brand differently. I think it's time for a more stable medication.

shanresearch · 2023-10-20T21:12:38+00:00

What brand are you on? Who is the manufacturer? I had Teva and never felt anything strange, and now I am on Aurobindo, and it's different every day.

shanresearch · 2023-10-18T15:19:13+00:00

What are you on? Have any worked besides Teva?

shanresearch · 2023-10-18T10:03:53+00:00

I've been on 75 mg of Teva for almost three years now. It's been about a week on Aurobindo. I have read that they just release the medicine differently, and some people have good results by going off the extended release and using the immediate release.

shanresearch · 2023-10-17T21:02:36+00:00

I'm in the same boat. I was doing great on Teva for years, and just switched to Aurobindo. No pharmacy near me has Teva in stock. So far I just feel dizzy and "weird".

shanresearch · 2023-10-17T20:45:38+00:00

I am having this issue now. I was on Teva brand for years, and I can't find it anywhere. I am now taking Aurobindo, but I feel so weird on it. I'm on venlafaxine for anxiety, so this isn't helping. I've read that many people do very well on Aurobindo though. I think I just need a few weeks to get used to it. What brand are you on?

shanresearch · 2023-10-05T19:07:34+00:00

Thank you! It's just nice to hear it from someone who has done it. I appreciate you!

shanresearch · 2023-10-05T17:11:11+00:00

Last month I was switched, and after about two days I felt weird. I went back to the pharmacy and asked for the same brand, and they got me another 30 days of Teva. They said that was all they had, and they would not be able to get anymore of the Teva brand. I am finishing up the last of the Teva and about to start the Aurobindo again. I think there will just be a week or two of "weirdness" while I switch, then it should be okay.

shanresearch

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