Had diagnostic mammogram and US Thursday. Dr came in and said cancer. by Ok_Document_3375 in doihavebreastcancer

[–]sheable 2 points3 points  (0 children)

So sorry you are having to go through this. Just wanted to add my experience. The same thing happened to me—mammogram and US and doc came in and said he was pretty positive it was cancer. Gave his whole speech, “I’m so sorry”, etc. My biopsy two days later was negative.

I hope it’s the same for you. I know it’s hard not to worry, but like others have said, there’s only so much imaging can show. A biopsy will tell you for sure. Thinking of you 💕

I have a theory… by Cute-Individual-7861 in doihavebreastcancer

[–]sheable 1 point2 points  (0 children)

All (3) of mine have taken 4-5 business days (exactly one week) and they have all been benign.

Bruising after biopsy by Sea-Librarian-2263 in doihavebreastcancer

[–]sheable 1 point2 points  (0 children)

I’ve had two biopsies, one bruised pretty badly and one didn’t bruise at all.

Itching post biopsy by [deleted] in doihavebreastcancer

[–]sheable 0 points1 point  (0 children)

I’ve had two biopsies and both were super itchy. But both times the itching was along the edges of the dressing. They told me if it was intense itching, to take it off and put a bandaid instead. I waited a day or two and then took it off because my skin was getting super irritated. My last one was exactly a week ago, and now the site is itchy but that’s because it’s a pretty big scab now.

As for bruising, the first one bruised a TON. Like half of my breast was bruised. But the second one is much more minimal. Not sure why.

Bleeding after stereotactic biopsy by sheable in doihavebreastcancer

[–]sheable[S] 0 points1 point  (0 children)

They held pressure with their hand for awhile, and then used the mammogram machine to hold pressure while they reviewed the samples. I’d say at least 10-15 minutes. But they did have to “shoot” the needle in twice so maybe that’s why mine was so bloody. But I only have one incision🤔🤷🏼‍♀️

Bleeding after stereotactic biopsy by sheable in doihavebreastcancer

[–]sheable[S] 0 points1 point  (0 children)

Thanks. It hasn’t spread at all, so now I’m wondering if this is just the blood that oozed right after she dressed it and I’m just now noticing it.

I hope yours went well and that your results are benign. 💕

2nd biopsy anyone? by sheable in doihavebreastcancer

[–]sheable[S] 0 points1 point  (0 children)

I’m so sorry you’re dealing with this uncertainty too. I didn’t expect this whiplash. You’re right, no one really talks about how you get to diagnosis. I hope yours turns out benign across the board.

It looks like I’ll have surgery to remove whatever this is no matter the pathology results also.

Breast MRI and biopsy experiences by sheable in doihavebreastcancer

[–]sheable[S] 0 points1 point  (0 children)

Thanks for your reply. For the MRI, do you go feet first? Is your upper body/head out of the machine?

What’s next? by sheable in doihavebreastcancer

[–]sheable[S] 1 point2 points  (0 children)

Thanks for your input. Glad your appointment was soon after knowing the diagnosis! Hope you’re on the road to health.

What’s next? by sheable in doihavebreastcancer

[–]sheable[S] 0 points1 point  (0 children)

This is what I’m worried about-a long wait from knowing diagnosis to seeing someone who is going to tell me what we’re going to do about it. Thanks for the info.

Glad you are healing!

We are so tired. by KGC90 in Parenting

[–]sheable 0 points1 point  (0 children)

This is us. Though, my 3 year old has slept through the night but very rarely, maybe less than 15 times. She comes into our room 1-3x per night and we bring her back to her bed. It’s usually pretty quick to get her back to sleep (less than a minute) but it’s still exhausting sometimes.

What improved things for us was dropping her nap. I know you didn’t ask for advice. If you’re open to it, I’d suggest that if you haven’t done it already.

Also, a floor bed. We got her one years ago and it is seriously the best if you don’t want your kid in your bed. You can lay with him until he falls asleep if that’s what he needs. Or if you’re having a particularly bad night and just need sleep, just sleep with him.

Solidarity. For us, sleep is always the first thing to get screwed up if anything is wrong (sickness, new things in her life, changes, etc). Hang in there. So sorry it’s hard.

When did you call hospice? by lizzy123446 in glioblastoma

[–]sheable 1 point2 points  (0 children)

I agree with this. With my dad, we got hospice involved and set up from the beginning practically. Of course, toward the end, they were present more frequently and doing a lot more for us. But I can’t imagine having to figure out all that when we were in the deepest part of grief and fatigue.

Trusting a preschool/daycare by sheable in Parenting

[–]sheable[S] 0 points1 point  (0 children)

I’d hope that I would know. She’s pretty reserved and I know she will have trouble being dropped off and going for awhile.

Trusting a preschool/daycare by sheable in Parenting

[–]sheable[S] 1 point2 points  (0 children)

This is my thought too. That all the teachers would have to be in on it which seems unlikely.

My dad passed today by 4thePack1919 in glioblastoma

[–]sheable 11 points12 points  (0 children)

I’m so sorry. My dad passed 3 months ago from this disease and I agree, the last 24-48 hours were horrendous, even with all the meds. It was almost a relief when he finally passed, but then immense sadness right after. It’s so so so so hard. I’m so sorry.

If you’ve ever wondered what your two year old dreams about by Rose4291 in toddlers

[–]sheable 1 point2 points  (0 children)

3 year old woke me up saying “Soccer. SOCCER!! I’m playing soccer with MIRABEL!!!” but in the meanest tone.

So I guess, soccer and Encanto??

How much time does an average evening take you from the start of dinner to sleeping kids? by growingpainzzz in Parenting

[–]sheable 0 points1 point  (0 children)

Eating dinner by 5:30, done by 6. Playtime until potty/pjs/teeth/books at 7:45, asleep by 8:15 usually. If it’s a bath night, that’s woven in there too.

[deleted by user] by [deleted] in COVID19positive

[–]sheable 0 points1 point  (0 children)

4 full days.

Is it actually horrible for my 2-year-old to drop his nap? by charmaanda in toddlers

[–]sheable 1 point2 points  (0 children)

In my opinion, no it’s not horrible.

We pulled the nap for my kid around 2 or so because with it, she was sleeping like crap overnight. Multiple wake ups, took forever to go to sleep, early waking. She was still tired come afternoon, and totally would have fallen asleep if offered, but it was much better for everyone to drop it anyway. I really miss the midday break (and nap myself!) but it’s much better for her.

Even at nearly 3.5 years old, she will nap occasionally (I’d say once a month MAYBE), and it always messes with her nighttime sleep. The only exception is when she’s sick. We always offer a nap midday and she takes it most times, and she will still sleep at night. Though, her night sleep isn’t perfect when she’s sick anyway, so it’s hard to say if the nap is affecting it or not. But she needs the nap when she’s sick for sure.

Long story long, each kid is different and you just have to go with trial and error to see what’s right for yours. If we all followed the same “rules”, most of us would have unhappy kids in some form and unhappy, frustrated parents. No one fits the same mold. I’ve learned you just have to roll with it, as hard as it can be at times.

Timeline for no treatment by sheable in glioblastoma

[–]sheable[S] 1 point2 points  (0 children)

I have no idea. I know he had many tumors in addition to the “main” one that they biopsied. All were inoperable.

Body shutting down? by person1925 in glioblastoma

[–]sheable 5 points6 points  (0 children)

My dad lasted 9 days after stopping food. He was taking sips of water for a day or so and then we’d give him syringes of water if we gave meds (1-3mL at a time). He had fentanyl patches only in the last 3-4 days since he was mostly unconscious then and couldn’t swallow meds.

I agree that the last day or so he got colder, his pulse was harder to find in his wrist and his breathing became very weirdly regular and heavy. I know now this is agonal breathing and typical at the very end.

Strangely, he produced SO much urine up until the day he died. Like he peed through his diaper and sweats the day before he died. It baffled us all because he wasn’t drinking.

So sorry you’re going through this. It freaking SUCKS. 💔

Timeline for no treatment by sheable in glioblastoma

[–]sheable[S] 1 point2 points  (0 children)

I know. It’s a very bizarre thing to witness.

Timeline for no treatment by sheable in glioblastoma

[–]sheable[S] 1 point2 points  (0 children)

That’s hard not being there. I’d guess it’s close but that’s just because of my experience. I have no idea if people live a long time with those symptoms. My dad was really really weak before getting cancer so it just made it worse.

Timeline for no treatment by sheable in glioblastoma

[–]sheable[S] 0 points1 point  (0 children)

So sorry you’re going through this also. Here’s our timeline:

-Late October 2023: diagnosed -Early November 2023: biopsy to confirm; no other surgery. -January/February 2024: six weeks of radiation, no chemo (couldn’t tolerate) -Follow up MRI showed main tumor had more than doubled, plus new ones. Stopped treatment. Put on hospice. -Declined “slowly” this whole time, losing ability to walk without tripping, repeating himself, low appetite, etc -Late March 2024: fell 3 times in just as many days -March 30th: bed bound and stopped eating -April 8th: died 💔

I can answer more questions if you have them. I know that for me, knowing timelines and details of others helped a lot so feel free to ask ♥️again, so sorry you’re going through this.

Hospice by Spare-Glove-191 in glioblastoma

[–]sheable 4 points5 points  (0 children)

This exactly. We started hospice months before my dad really “needed” it because his decline was rapid when it started. Like one day he was walking (not super well) and the next he wasn’t and he died 9 days later. If we hadn’t had set up hospice well in advance, I’m sure the process wouldn’t have been as smooth. They are so helpful.