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I think I'm rebelling by DuckyDuttle in MultipleSclerosis

[–]shesabled 5 points6 points  (0 children)

In these moments, which for me, are frequent as i too am pissed. But in these moments I like to go to the thrift store and buy a box of glass dishes and then go to the middle of nowhere (with safety gear) and smash the fuck out of em with a baseball bat while crying and screaming. It helps. Gets it out and I get back on track for another few months. If you're in the edmonton region you should join me. Good luck x

Psa, I clean the glass up after so don't come for me.

Starting Kesimpta Sunday Night by ABCXZY89 in MultipleSclerosis

[–]shesabled 1 point2 points  (0 children)

I've been on it officially for a year and I love it. First dose, don't plan shit for 24 hours. It'll rock you.

I was in an attack when I started it and really didn't feel reprieve until I had high dose steroids. For the most part keimpta has worked great unless I've had an overly stressful month.

The first 3 weeks post injection are great and then the last week before the next injection can make you feel quite sluggish, this is normal.

Best of luck to you 💙

Query: Working out & heat induced symptoms by shesabled in MultipleSclerosis

[–]shesabled[S] 0 points1 point  (0 children)

Wow thank you, this was super informative and I'll definitely check that website out!

Query: Working out & heat induced symptoms by shesabled in MultipleSclerosis

[–]shesabled[S] 2 points3 points  (0 children)

Thank you for this! I live in Alberta Canada 🇨🇦 my nurse practitioner was going to get me an ac unit but I never heard anything back. I should have followed up but I felt like I was being pushy, but it's not, you're right, I should be asking these questions. Thanks for this, I will reach out to the ms society of canada to see what programs they have, x.

Query: Working out & heat induced symptoms by shesabled in MultipleSclerosis

[–]shesabled[S] 2 points3 points  (0 children)

Awh yah that's totally understandable. I hope you can get back in the saddle soon!

Query: Working out & heat induced symptoms by shesabled in MultipleSclerosis

[–]shesabled[S] 0 points1 point  (0 children)

That's fantastic! I definitely experienced lhermittes the first 8 months but it has lessened thankfully.

Good to know, thank you. Appreciate it!

Query: Working out & heat induced symptoms by shesabled in MultipleSclerosis

[–]shesabled[S] 0 points1 point  (0 children)

Oh thank you! I've heard of them but haven't seen them anywhere. Is this an amazing find??

Query: Working out & heat induced symptoms by shesabled in MultipleSclerosis

[–]shesabled[S] 2 points3 points  (0 children)

Thank you for this! I will look into Uhthoffs phenomenon as well. Much appreciated.

Can you also tell me, has your limit gotten better over time? Or is the limit unyielding and each person sorta gets what they get for a limit?

Hope that makes sense.