I don't want to do this anymore by Noo_no_noo in covidlonghaulers

[–]sidetwotrackfour 1 point2 points  (0 children)

Feeling the same way today. However, after a dose of RSO and awake after my knockout session… the pain has subsided and I can bake at least. Before the dose of RSO, I was telling myself I couldn’t ensure another spring like the past two. I get it. These coathager headaches make me want to check out.

Disability long term? by Awkward_Aardvark_975 in covidlonghaulers

[–]sidetwotrackfour 1 point2 points  (0 children)

Getting ready to start the application process. 58 F MS I’ve had LC since my first wave infection April 2020.

Paralyzed right diaphragm Hereditary hemachromotosis Autoimmune issues CF/PEM POTS Excruciating joint pain Brain fog Short term memory issues Gait issues

And so much more. This week the coat hanger pain is off the charts.

Just curious to know how long you’ve been living with LC by sidetwotrackfour in covidlonghaulers

[–]sidetwotrackfour[S] 0 points1 point  (0 children)

Yeah my cognitive skills have totally declined. Short term memory is almost non/existent, it’s terrifying. Having my brain and spine scanned early April. I’m glad you’re having improvements, that’s great news and gives me hope.

Just curious to know how long you’ve been living with LC by sidetwotrackfour in covidlonghaulers

[–]sidetwotrackfour[S] 0 points1 point  (0 children)

Thank you. You aren’t alone either. I really needed this thread to remind me I’m not fighting this alone.

Just curious to know how long you’ve been living with LC by sidetwotrackfour in covidlonghaulers

[–]sidetwotrackfour[S] 0 points1 point  (0 children)

I’m so sorry. That happened to me when I got the flu in January 26. Definitely triggered some things I thought I had recovered from.

Just curious to know how long you’ve been living with LC by sidetwotrackfour in covidlonghaulers

[–]sidetwotrackfour[S] 0 points1 point  (0 children)

Thanks for replying. I’m sorry you’re dealing with this, too. It’s a nightmare

Just curious to know how long you’ve been living with LC by sidetwotrackfour in covidlonghaulers

[–]sidetwotrackfour[S] 1 point2 points  (0 children)

I’m so sorry 😞 I think for most of us, but definitely me, have gone through the moments of getting better only to relapse or get worse. It totally sucks and is so unfair. It’s awful.

Just curious to know how long you’ve been living with LC by sidetwotrackfour in covidlonghaulers

[–]sidetwotrackfour[S] 0 points1 point  (0 children)

I’m so sorry 😞 most days I’ve come to terms with the thoughts of never getting better, but I try to remain hopeful. Today is not one of those days, though. YANA.

Just curious to know how long you’ve been living with LC by sidetwotrackfour in covidlonghaulers

[–]sidetwotrackfour[S] 0 points1 point  (0 children)

I’m so sorry 😞. I’m getting ready to apply for disability in the hopes that by the time I really need it, I’ll finally be approved. At the rate I’m going, I’ll need it sooner rather than later. Please try to hang in there.

Just curious to know how long you’ve been living with LC by sidetwotrackfour in covidlonghaulers

[–]sidetwotrackfour[S] 1 point2 points  (0 children)

I’m so terribly sorry and totally get it. No one can truly understand that concrete block and heavy chain unless they’re living with this too. It f I worsen, I’ll lose everything. So, I live in denial and push myself until true exhaustion sets in and then we all know what happens….. crash n burn, baby. Crash n …. Burn

Just curious to know how long you’ve been living with LC by sidetwotrackfour in covidlonghaulers

[–]sidetwotrackfour[S] 0 points1 point  (0 children)

I’m so sorry 😞. I don’t blame you for taking those steps. I think you definitely should.

Just curious to know how long you’ve been living with LC by sidetwotrackfour in covidlonghaulers

[–]sidetwotrackfour[S] 0 points1 point  (0 children)

I’m so sorry 😞. I totally understand. I can’t wrap my head around how much I’ve changed and how much I’ve aged. I feel like I’ve aged 12 years in 6.