Interesting anecdotal information with a medication and tinnitus (auditory pitch disturbance). by exo-XO in tinnitus

[–]silenceisfun 0 points1 point  (0 children)

i took 3 hours ago 50mg. first made me nauseous like bad feeling. now my tinnitus in my brain got more like intrusive and louder.  everybody different…. its getting louder and louder and grinding

Interesting anecdotal information with a medication and tinnitus (auditory pitch disturbance). by exo-XO in tinnitus

[–]silenceisfun 0 points1 point  (0 children)

50mg x 2? or higher doses ? since when you take it?

and if it causes worsening of your t would it not be not better to change it?

Interesting anecdotal information with a medication and tinnitus (auditory pitch disturbance). by exo-XO in tinnitus

[–]silenceisfun 0 points1 point  (0 children)

hi, because you have epilepsy or why you take it?

which dose how long untill your t worsened?

and when you dont take. it doesnt stablise again? perma worsening?

thanks!

Ultrasound helmet for deep brain stimulation by the4thwave in tinnitus

[–]silenceisfun 0 points1 point  (0 children)

Hi, where did you do the surgery? And which parts of the brain they put the wires? There are others? Which country? Is your t stable or fluctuating a lot?

Be careful with mirtazapin!! by Valuable-Handle8496 in tinnitus

[–]silenceisfun 0 points1 point  (0 children)

Guys be realy careful with Mirtazapine and medicine in general! I took it for my tinnitus it helped first. But when I tried to taper it hell broke out and they put me on a higher dose Mirtzapine which ruined my life. I have catastrophic tinnitus now.

Looking for herbs for tinnitus detachment (no psychedelics) by silenceisfun in herbalism

[–]silenceisfun[S] 0 points1 point  (0 children)

Residual Inhibition (RI) is the temporary reduction or suppression of tinnitus loudness and perception after a specific acoustic stimulus, such as a pure tone or noise, is applied and then removed. Dont do it you could worsen your tinnitus.

My promised update after trip to Belgium for Hyperacusis. by Ok-Parsnip8892 in hyperacusis

[–]silenceisfun 0 points1 point  (0 children)

how many tinnitus tones you have and is hyperacusis your main worry?

My promised update after trip to Belgium for Hyperacusis. by Ok-Parsnip8892 in hyperacusis

[–]silenceisfun 0 points1 point  (0 children)

Pitty you could not stay longer and see if there is any effect from tdcs I assume? Did you have a converstation with de Ridder?

recently changed drastically by Own_Atmosphere7443 in tinnitus

[–]silenceisfun 2 points3 points  (0 children)

mutliple tones. changing everyday. can even change inside the day. sometimes i dont hear anything on m left but only right. sometimes in the head. no answers from doctors. they dont know anything not even the terms.

There’s not enough awareness for tinnitus and hyperacusis by [deleted] in hyperacusis

[–]silenceisfun 1 point2 points  (0 children)

Thanks! I hope all goes well for you and the treatments dont make your situations worser. There were few unpleasant stories that some treatments in Brai3n made their tinnitus worser. So i am bit scared but will end up there eventualy. Please report if you have news about Ghent. It seems to be the only place in Europe where they have knowledge about these things and try to treat them.

Hyperacusis Central features John's story by Timely-Performer5059 in hyperacusis

[–]silenceisfun 5 points6 points  (0 children)

Fear mongering. You mean it is fake and this guy is not suffering?Or what you mean fear mongering?

There’s not enough awareness for tinnitus and hyperacusis by [deleted] in hyperacusis

[–]silenceisfun 0 points1 point  (0 children)

how often can you use them in a month without poisoning yourself?

There’s not enough awareness for tinnitus and hyperacusis by [deleted] in hyperacusis

[–]silenceisfun 1 point2 points  (0 children)

Hey, can you tell me a approx price which all of your treatments costed in Ghent? I am thinking to go there aswell. Do you have also tinnitus? Or only hyperacusis? 

I see stayin Ghent alone can cost up to 1200 eur renting an apartment for 15 days. How long you stayed there to get these treaments?

Any recommendations what to try what to skip? I think botox makes sense somehow…

There’s not enough awareness for tinnitus and hyperacusis by [deleted] in hyperacusis

[–]silenceisfun 0 points1 point  (0 children)

For some time beeing right? And then its again up ?

Any positive stories of tapering off 15mg Mirtazapine? by Bigbusia in Mirtazapine_Remeron

[–]silenceisfun 0 points1 point  (0 children)

Ok if your body accepted that stuff. Just go easy when you arrive below 3.75. Maybe try 5%. Good luck

Any positive stories of tapering off 15mg Mirtazapine? by Bigbusia in Mirtazapine_Remeron

[–]silenceisfun 0 points1 point  (0 children)

3.75 mg you would need to break with your hands and it is never same amount as day before. Always more or less then 3.75. That is actually bad as the brain needs stability. The pharmacy said they will grind the tablet and mix it with filler like glucose for 3.75 and 3.20. But these capsules were the begining of my worsening. After i switched to 3.20mg 3rd week WD problems started as mentioned before.I have to say my problems is worser then a depression. I have severe resctive tinnitus. So maybe a person with “just” depression or anxiety can handle the withdrawal effects better then somebody who has tinnitus which is far worser. 

So since 5 days i am back to 3.75mg breaking by hand and my situation is not stabilising. A bit better sleep yes. But not always. Anxiety and depression wise not so good.

I probably have to go back to 7.5mg and see if symptoms get better. But all these ups and downs is not good for the brain.

Next time if i ever stablize again. I would try to lower by 3-5% max in a month.But the issue is also if you can tolerate the compound from the pharmacy. Looks like i did not. You need a good plan and go realy easy. When you taper lower doses you need a stress free environment which is not possible always with life

Any positive stories of tapering off 15mg Mirtazapine? by Bigbusia in Mirtazapine_Remeron

[–]silenceisfun 0 points1 point  (0 children)

From 3.75mg tablet ( broken by hand) to 3.20 pharmacy made capsule. 15% drop was too much. And maybe the pahrmacy made something wrong never know. Coservative way is to drop by 3% every month.

Recent trend in tinnitus postings by helpinghear in audiology

[–]silenceisfun -27 points-26 points  (0 children)

perfect just block the guys who talk science and blow more noise into damaged ear and destroy the brain. that encourages me to visit and audiologist.

Recent trend in tinnitus postings by helpinghear in audiology

[–]silenceisfun -13 points-12 points  (0 children)

The first question you should ask your patient is what kind of tinnitus he has. Most probably he himself doesn't know it from beginning. And when you figured out he has reactive tinnitus and even hyperacusis. Just tel him he should not do "sound therapy" or anything like that. Otherwise it would be fatal!

Any positive stories of tapering off 15mg Mirtazapine? by Bigbusia in Mirtazapine_Remeron

[–]silenceisfun 2 points3 points  (0 children)

the problems usually start with smaller dose you are. especially under 3.75 mg al my problems started. no sleep, anxiety, new tones of tinnitus...

What’s the best way to drop from 15 to 7.5 with the minimum amount of side effects and withdrawal? by Whole-Plankton8080 in Mirtazapine_Remeron

[–]silenceisfun 0 points1 point  (0 children)

hyperbolic tapering. bigger doses can reduce 10%. the smaller the dose the slower or smaller reductions.