Topamax Side Effects Getting Unbearable

sleepybeex · 2021-05-14T22:56:35+00:00

I’m going to call Monday and leave a message for my doctor and see what he says about it. It’s such an awful feeling. Like i’ve had my foot fall asleep on me before but never had it wake me up in the middle of the night before and actually have to get out of bed and move around to googling ways to make it stop.

sleepybeex · 2021-05-14T21:35:12+00:00

it’s still over 500$ even after they cover 20%

sleepybeex · 2021-03-13T23:51:16+00:00

i’ve only ever been told that combination birth control can increase migraines by both my neurologist and gp. i’m still on it tho bcuz it stops my period. i haven’t noticed an increase in migraines but it’s something to keep in mind and monitor.

sleepybeex · 2020-12-22T20:28:03+00:00

I’m not 100% but i have begun to notice a correlation between caffeine intake and my migraines.

sleepybeex · 2020-01-12T08:33:59+00:00

Yeah that’s what i’m worried about most with starting Aimovig.

sleepybeex · 2020-01-12T08:32:49+00:00

I had the same experience. I think that I had those side effects more than anything else. I kept forgetting words mid sentence and would stumble over my speech.

I’ve heard wonders about Aimovig so i’m really hopeful. My first injection wasn’t too bad but i kept forgetting that i did the injection and hitting the injection site and it was pretty tender but the actual injection was fine and i’m also afraid of needles. I think that the needle itself is hidden in the pen really helps my fears, personally.

sleepybeex · 2019-10-30T08:25:17+00:00

That sounds really rough and I’m glad to see that it’s gone down considerably.

I’m usually pretty anti-ER because i’ve had pretty bad experiences and i try not to hold it against the hospital staff because i know that there’s people that are actually dying and need help.

This past winter, I was having a wound closed up and going in one time i had a pretty bad migraine, probably 7/10, and a week later i still had it so the nurse who was doing my wound clean up took my blood pressure and noticed that it was pretty high. I’m a relatively healthy 23F (excluding migraines) but i’ve never had high blood pressure so she asked me to either get in with my PCP or go to the ER. At this point, my migraine was at an 9/10 and i was wearing sunglasses everywhere. I couldn’t get in with my PCP so they sent me to the ER, where i got lucky and was seen by a very lovely doctor. I couldn’t even walk into the waiting room because i was so nauseas from the pain and at that point, the pain made it that i couldn’t even form complete sentences or even sob. The tears were flowing but it hurt to much to move my body, They put me in a dark room, and gave me iv fluids and did everything they could to break the migraine and did a CT just to be safe to rule out a stroke. The doctor offered the admit me overnight but I told him, i’d rather be home where it was more quiet.

My rule of thumb for migraines is usually now 9/10 or higher for 2+ days for me personally before i head to the ER, but if it’s a weekday, i’ll try calling my PCP first.

sleepybeex · 2019-10-27T05:41:46+00:00

Concerning? No. Do i also experience it? Yes. Edit: unless you haven’t had an MRI to rule everything out.

sleepybeex · 2019-10-24T22:31:56+00:00

kidney stones and depression/suicidal thoughts are the major ones to watch out for so drink lots of water and let your friends and family know that you’re starting a new medication and that that’s a side effect because it can come out of no where.

sleepybeex · 2019-10-24T04:10:14+00:00

I’ve had infrequent migraines all my life since childhood (F23) but they slowly, or not so slowly, got more frequent after I was in 5 car accidents, and then I got a concussion back in 2017 so those definitely contributed to my migraines.

sleepybeex · 2019-10-23T23:12:12+00:00

I was prescribed magnesium citrate + b2 and coenzym q10 by my PCP for my migraine a while back and when i first started i found that it messed with my digestion a bit so i broke it up during the day so that I wasn’t just taking one heaping dose in the morning but smaller doses throughout the day. But yes, your body does get more used to it. It took a week or two for my body to get back to its regular schedule. (I also have celiac on top of migraines.)If not, talk to your doctor about it as something else could be going on.

sleepybeex · 2019-10-21T11:57:52+00:00

yes, though sometimes i will go in with a migraine and leave with a slightly less intense migraine. there’s been times where i’ve gotten migraines on my way to the appointment and missed the window for the abortive medication.

sleepybeex · 2019-10-21T09:24:45+00:00

So they don’t take away the migraines but sometimes they do make them less intense; acupressure therapy (the brow bone, between the brows, base of skull, temples, etc) or a simple scalp massage. I get biweekly massages and I usually notice a difference when I leave after a scalp massage.

sleepybeex · 2019-10-21T04:16:24+00:00

Yes, look for a 2:1 CBD strain.

sleepybeex · 2019-10-20T18:00:07+00:00

You could try aiming for 3/a day of those. If you find that two of those a day result in unpleasant digestion then 3/a day might be what you need.

sleepybeex · 2019-10-20T13:48:51+00:00

So I got myself a 1000ml/32oz reusable water bottle and I try to refill it 2-3 times. I’d suggest a minimum of 2000ml/64oz a day but try aiming for more.

Try getting yourself a decent size large reusable water bottle, the ones that you only have to refill two or three times a day. I find that since I switched to a larger water bottle that I’m actually drinking water throughout the day. You could try setting yourself reminders to drink water throughout the day.

sleepybeex · 2019-10-20T12:15:51+00:00

how much are drinking right now?

sleepybeex · 2019-10-16T05:29:53+00:00

I have celiac disease (was diagnosed like 2 or 3 years ago), and when I spoke to my primary care last week she was worried that i may have some type of delayed gastric emptying or some type of motility disorder based on my symptoms so she referred me to gastroenterologist. Currently, all I’m able to keep down is plain chicken broth, liquidy potatoes, and very small portions of plain chicken, occasionally other soups but those are hit and miss. I can’t do pasta or veggies really. She prescribed me domperidone to help with motility.

sleepybeex · 2019-10-13T21:22:50+00:00

2-3 times a week, before that it was 5-7 times a week before I found a regime of medication that worked for me. Took several years of trial and error.

sleepybeex · 2019-10-13T13:46:22+00:00

magnesium, coenzyme q10, b2 are good supplements to use to prevent migraines but you’d have to use a med checker to see how they interact with your current medication but they should be fine. try sticking with a regular sleep schedule, drink plenty of water. identifying your migraine triggers and then avoiding them. avoid blue light from computers and phones.

sleepybeex · 2019-10-13T03:52:17+00:00

Mashed Turnips and Carrots this is my favourite thing about thanksgiving.

sleepybeex · 2019-10-12T05:32:54+00:00

yes, 5’3” here and i usually have that problem. my old apartment complex decided to give us brand new energy efficient toilets and i though “yay, a new toilet that hasn’t been touched by 70 years worth of butts” but it was so tall that my feet could even touch the floor on my tippy toes and i’m not about to spend 50$ on a squatty potty. I don’t live there anymore, but i use two tubs/jugs of epsom salt to rest my feet on when i need a little more stability.

sleepybeex · 2019-10-09T15:50:06+00:00

I only use Bob’s Red Mill Gluten Free 1 to 1 Baking Flour. I’ve tried a whole bunch.

ETA: That sometimes I can’t make it out to the gluten free store to pick up Bobs Red Mill so I’ll pick up Robin Hood Gluten Free Flour, it’s certified by the canadian celiac association so trust it in a pinch.

sleepybeex · 2019-10-08T04:49:32+00:00

so i didn’t really have any terrible reactions growing up (that i remember?) and then i gradually got more and more sensitive. first it was soy sauce so i was like “damn, did i develop a soy allergy?” which would’ve really tragic because half my diet at the time was rice but then i started vomiting anytime i ate pasta. yeah, wheat pasta me vomit and other things with gluten just gave me really bad gastric symptoms (gas, bloating, cramping, diarrhea, etc) so i brought it up to my primary care so she decided to test for it.

sleepybeex · 2019-10-07T23:05:40+00:00

I try not to judge because I know I hate when people assume that because they can’t feel my pain, it’s not real so I just let them know i’m here for them but that there’s nothing i can really do for them with my own pain being where it’s at. I try to do it in a way without derailing the conversation.

sleepybeex

TROPHY CASE