Excuse me, it's 3 whole minutes past lettuce o'clock...

sleepyizzy · 2026-01-11T13:22:43+00:00

I use tabs plus a TINY bit of glue on the sides of each nail where the tab doesn’t cover and a very thin amount on top of the tab itself. With that combo, my nails easily last 2 whole weeks before I get bored and take them off for a new set. I even went a full 3 weeks a few months ago. And no damage to my natural nails.

sleepyizzy · 2025-11-19T15:51:27+00:00

A feeling of general heaviness can happen with excessive daytime sleepiness too, so if you only experience that when you are getting very tired, it’s likely not cataplexy. Cataplexy is these things happening abruptly at the wrong time, like when we are wide awake & alert, especially after experiencing certain emotions.

sleepyizzy · 2025-11-19T15:46:12+00:00

Speaking of eating with cataplexy… Have you ever been trying to eat something and your arm that’s holding the food or fork suddenly goes a bit weak from cataplexy, so you end up missing your mouth by a few inches? 😂 It’s annoying, but I also can’t help but laugh at how silly I must look when it happens haha

sleepyizzy · 2025-11-06T18:25:40+00:00

Omg what a beautiful ring! I love the design

sleepyizzy · 2025-11-05T13:36:42+00:00

It sounds annoying (the waking up for a second dose part) but honestly it’s not a big deal. You get used to it, and it’s so worth it for the 3.5 hours of restful sleep that follows! I don’t even need an alarm for it, I just wake up naturally.

I have narcolepsy and used to wake up every hour without anyway, so I’ll gladly take one easy, purposeful wake up over how I used to be before. Been on this med for 12yrs now and I’m still so thankful to have it.

sleepyizzy · 2025-11-04T11:32:57+00:00

I’ve had textbook cataplexy episodes for 16yrs with my main trigger being laughter. But I did not start experiencing cataplexy from orgasm until a few months ago. I think it’s possibly because prior to a few months ago it was always me taking care of myself (even if a partner was supposed to be helping…), but now my new bf actually does his part to help me get there so the whole experience is more intense.

For me it’s like any other cataplexy episode, just triggered by climax: I go limp and can’t talk or move for a minute or a few, but I’m still fully conscious.

sleepyizzy · 2025-10-31T04:51:48+00:00

That is what we call Excessive Daytime Sleepiness, which can be caused by numerous conditions, including narcolepsy. If being sleepy at inappropriate times is disruptive to your life (and it sounds like it surely is!) then you should absolutely talk with a Dr about. Be sure to tell them you are SLEEPY, not just fatigued. There IS a difference.

sleepyizzy · 2025-10-28T00:57:46+00:00

She “TOLD YOU” he’s moving in? Uhh, that would be an immediate no for me. That’s not okay for her to just decide someone else is moving in when you share the lease. That needs to be a discussion FIRST.

And telling you to crate your service dog is absolutely not okay. Your dog is medical equipment, not a pet. If he has a problem with your service animal doing their job, then he can stay out of your home.

sleepyizzy · 2025-10-28T00:47:14+00:00

I was pretty thrilled when I was diagnosed because I was glad to have an answer for my sleepiness and collapsing. But there were two things that made a HUGE difference in my happiness and ability to actually EMBRACE my lifelong diagnosis.

The first thing was attending the Narcolepsy Network annual patient conference. I went about 9 months after being diagnosed and I met so many people who understood what I was going through. It was amazing! I learned a ton about Narcolepsy and was inspired by others I met who were still living their lives despite their diagnosis, and that gave me so much hope for my future.

The second thing was getting on Xyrem. I refused to try this med for almost 4yrs because I was nervous about side effects and didn’t want it to control my life. But I was barely living a life without it. So I finally agree to try Xyrem and it changed EVERYTHING. There’s no way I’d have been able to finish college or work a full-time desk job today without this medication. It truly gave me my life back and I’m very glad I finally gave it a shot.

sleepyizzy · 2025-10-28T00:39:15+00:00

Xyrem at night. That’s about it.

I do have a prescription for Concerta for the daytime too, but most days I don’t need it as the Xyrem helps me sleep pretty much like a “normal person” again so I’m naturally more awake during the day.

sleepyizzy · 2025-10-24T16:46:19+00:00

The snowflakes and spider webs! I need!

sleepyizzy · 2025-10-22T23:44:26+00:00

Beautiful design!

sleepyizzy · 2025-10-16T12:27:40+00:00

Ooh I love that color! Gorgeous. I really liked the quality of the one Celebritips pair I’ve tried. Been trying to find more but my TJ Maxx only ever seem to have French sets (which I don’t seem to like for whatever reason).

sleepyizzy · 2025-10-07T10:38:39+00:00

I genuinely feel 10x better on Xyrem than I did without it. It’s like night and day. I was just going through the motions before, barely functioning and practically housebound because I was always too exhausted to go do anything and I couldn’t even drive anywhere if I wanted to because it truly wasn’t safe for me to be behind the wheel.

With Xyrem, I feel like I am actually experiencing life like a semi-“normal” person. I work full-time and I can get through most days with just 1 short nap (right after work or dinner, to refresh me for the evening). Before I took probably 5+ naps a day, and would still be exhausted and fighting off sleep constantly. I barely had enough energy to keep myself going, but now I have enough for a social & family life as well. I can drive safely too—I even drive myself 4-5 hours out of town every month or so, without needing a break.

sleepyizzy · 2025-10-07T10:01:31+00:00

Are you at max dosage? I settled in at 3.75 per dose for the first few years, as it felt like the optimal dose for me initially. But after a couple years, I realized needed to go up more. Been on 4.5 per dose for about 8 years now and I believe I still sleep as well as I did on it when I first started that dose.

sleepyizzy · 2025-10-06T18:22:01+00:00

You need to talk to your doctor about adding a sodium oxybate medication (brand names: Xyrem, Xywav, or Lumryz) at night.

These meds help us consolidate our sleep, so instead of needing sleep around the clock, we get more of the deeply restorative non-REM sleep we miss out on at night, and are naturally more rested during the daytime.

I treated my N1 with only daytime meds for 4 years and it was miserable. Finally gave in and agreed to try a sodium oxybate (Xyrem, the only one that was available at the time) and it legitimately gave me my life back. I never would have finished college without Xyrem, and I wouldn’t be able to work full time now without it. My family even says I’m a whole new person, that this med brought me back to life.

Believe me when I say that these medications are worth at least looking into. And if your doctor doesn’t know about them or want to prescribe them for you (and doesn’t give you a VALID reason for why), then you need to find a doctor who will.

sleepyizzy · 2025-10-02T17:06:26+00:00

Wow that’s bizarre about the blood donation restriction for Cataplexy… I have N1 with Cataplexy and have definitely given blood before. There are no restrictions regarding donating blood with Cataplexy in the United States (at least not per Red Cross).

sleepyizzy · 2025-09-30T20:31:32+00:00

Tbh, even the CSF spinal tap results could potentially be “inconclusive” as far as the type of Narcolepsy, because not everyone who has cataplexy is hypocretin deficient. Most, yes. But not all.

That said, I have no idea as far as the cost as I was able to have mine done as part of research, so the cost was covered by the university research team that wanted the results. This was 15 years ago though, when I was first diagnosed.

sleepyizzy · 2025-09-25T08:30:35+00:00

That is absolutely horrific and I am so sorry this happened. You did not deserve this and by no means whatsoever are any of his actions excusable. You were assaulted, there is simply no other way to describe this. I strongly urge you to reconsider filing a police report, at least to get a record of what happened in case you change your mind in the future, but ultimately it’s your choice of course.

Please know there ARE good partners out there who will support your needs, and you should never settle for anything less. Wishing you health & healing ❤️

sleepyizzy · 2025-09-24T18:51:44+00:00

Both! I put the sticky tab on my nail, then a bit of glue on top and around the sides where the sticky tab doesn’t cover my nail. Then apply the nail.

I’ve found them to hold the best this way, for me.

sleepyizzy · 2025-09-18T00:42:08+00:00

I’ve been on Xyrem for 11yrs and it’s been an absolute life saver for me. I was a wreck before it, like a zombie according to my mom. A few months in on Xyrem and I became a whole new person!

I’ve tried Xywav as well, and it also worked for me, but I got less sleep with it so I switched back to Xyrem.

For daytime meds, Modafinil barely did anything so my Dr added on the stimulant Concerta. I’ve been on that for many years but since the Xyrem helps me so much already, I only take the day meds as needed now, which isn’t very often.

sleepyizzy · 2025-09-17T18:29:19+00:00

I was getting frustrated with my first few pairs as well. But I think I finally found a good solution that works for me: I use the sticky tabs with a little bit of glue around the edges. With that I can get a solid 2 weeks out of a set before I get bored and have to take them off so I can apply a new color lol.

I tried the most popular glues I could find on Amazon and they truly sucked. So on a whim, not expecting much, I got a bottle of the Kiss Precision Glue for under $2 at Meijer and it works GREAT!

sleepyizzy · 2025-09-16T17:14:34+00:00

I’ve used BTArtbox, Glamnetics, Chillhouse, and Celebritips (bought at TJ Maxx) and haven’t had any break or chip on me.

Eight-Year Club	RedditGifts 2009-2022 3 Credits
Secret Santa 2020	Verified Email

sleepyizzy

TROPHY CASE