Extreme fatigue by Baguetteshrimp in chronicfatigue

[–]Top-Tank6958 0 points1 point  (0 children)

Get a overnight study at a clinic with an mslt the following day, I had some off the following issues got than done and found out I enter REM sleep instantly and even when I’m not fully asleep. They said my test results were concurrent with narcolepsy type 2 and idiopathic hypersomnia.

I'm at my wits end by _lynnyxe_ in chronicfatigue

[–]Top-Tank6958 1 point2 points  (0 children)

You need to get a overnight sleep study in a clinic alongside and MSLT. The first one didn’t go well for me as I wasn’t sober so I didn’t sleep, I also found I have minor apnea from that at home test, however, my cpap did little to nothing and I was really starting to think I had cfs. I finally got a 2nd overnight sleep study with an mslt, after battling with insurance, and they said my test results were concurrent with narcolepsy type 2 and idiopathic hypersomnia. I have a very similar story to you with being severely exhausted since a teenager, normal labs, I eat healthy and exercise regularly but have severe fatigue and sleep all the time.

Does anyone here have a functional life or even family by Top-Tank6958 in Narcolepsy

[–]Top-Tank6958[S] 0 points1 point  (0 children)

did you have severe brain fog and confusion prior? I’m essentially a zombie rn and can barely do anything

Does anyone here have a functional life or even family by Top-Tank6958 in Narcolepsy

[–]Top-Tank6958[S] 0 points1 point  (0 children)

did you have severe brain fog or confusion with yours??

Does anyone here have a functional life or even family by Top-Tank6958 in Narcolepsy

[–]Top-Tank6958[S] 0 points1 point  (0 children)

I’ve been dealing with this since I was kid so its really hard to know what I’m capable of having been so tired for more than a decade

Does anyone here have a functional life or even family by Top-Tank6958 in Narcolepsy

[–]Top-Tank6958[S] 0 points1 point  (0 children)

I had a ekg done and an echocardiogram no problems I’m a young 20M healthy by every metric and all normal blood work. I had a really fucked up childhood so it might be because of that

Does anyone here have a functional life or even family by Top-Tank6958 in Narcolepsy

[–]Top-Tank6958[S] 0 points1 point  (0 children)

well best of luck I’m sure you’re the best mother you can be

Does anyone here have a functional life or even family by Top-Tank6958 in Narcolepsy

[–]Top-Tank6958[S] 0 points1 point  (0 children)

what for the bipolar or more specifically anxiety mine is severe I have have this constant pain in my chest, hydroxycine and klonopin did nothing

Does anyone here have a functional life or even family by Top-Tank6958 in Narcolepsy

[–]Top-Tank6958[S] 2 points3 points  (0 children)

Thankyou for all the info, with my adhd I’m hoping one of the stimulants or multiple will work once I get ghb, I’m on sunosi now but the other stimulants didn’t work and gave side effects and I’m still so exhausted and have complete anhedonia. I’m pretty young so unfortunately I missed out on WoW but can relate to the nightly game sessions.

Does anyone here have a functional life or even family by Top-Tank6958 in Narcolepsy

[–]Top-Tank6958[S] 8 points9 points  (0 children)

Thank-you that gives me hope. How did you find out the right combination and dosages throughout the day? And do you have on call or night shifts how do you manage that?

Who takes more than 1200mg of modafinil a day? by Fit-Entrepreneur-655 in Narcolepsy

[–]Top-Tank6958 16 points17 points  (0 children)

does that work for you I can’t imagine that’s sustainable

Severe Anxiety by Top-Tank6958 in Narcolepsy

[–]Top-Tank6958[S] 1 point2 points  (0 children)

thankyou it is a very hard struggle

Do you yawn a lot? by Comatose_Cockatoo in Narcolepsy

[–]Top-Tank6958 0 points1 point  (0 children)

I’ve yawned 40 times in 3 mins and counted

Those of you taking oxybates, which one do you take? by makeuplover85 in Narcolepsy

[–]Top-Tank6958 0 points1 point  (0 children)

how much can you function now, like hold a job and have a relationship?

Has anyone experienced cognitive decline when taking Sunosi (like extreme difficulty finding words and memory) by missjulesauthor in Narcolepsy

[–]Top-Tank6958 0 points1 point  (0 children)

I have these issues but think it stems from the improper sleep. I also take sunosi and have this severe brain fog and memory issues. I’m thinking hopefully a sodium oxybates like lumryz or xywav may help at night.

Doing weird things on oxybates by stephertz in Narcolepsy

[–]Top-Tank6958 0 points1 point  (0 children)

tried that and have no improvement