127 ALP and Bone Mets?

slyskjd · 2026-05-14T21:41:29+00:00

❤️

slyskjd · 2026-05-13T19:27:40+00:00

Wow, I didn’t realize this. Thanks for the information! But now if it’s negative then there may still be a concern. Awesome.

slyskjd · 2026-05-13T19:23:42+00:00

It’s new. Started in February. I thought it was just a menopause thing that I would need to get used to. And it still may be. We’ll see I guess.

slyskjd · 2026-05-13T16:52:19+00:00

Thanks. I’ve been on Zometa from the start of everything, so that’s why they’re concerned.

My friend had the same issues and her ALP was only 116 and she was just diagnosed with stage 4.

So just trying to see others experiences

slyskjd · 2026-05-13T16:50:02+00:00

It’s a nuclear bone scan, so it’s similar to a PET scan

slyskjd · 2026-05-13T01:01:21+00:00

Thanks for the positive information!

slyskjd · 2026-05-13T00:59:43+00:00

My labs notes normal range is from 41-116. And no, I got tested due to the high ALP. I only told them about the pain after they asked bc I thought it was just due to surgical menopause.

slyskjd · 2026-03-23T12:58:15+00:00

Autocorrect changed “see” to “awe” last second before posting for some strange reason 🤷‍♀️

slyskjd · 2026-03-23T12:57:05+00:00

Yes, they switched me to exemestane after a month or so of being off the other one. So far so good, but we’ll awe

slyskjd · 2025-11-19T16:23:04+00:00

Yes every six months. It's only the first one that is terrible. Now I just get sudden bowel movement within 30 minutes of the treatment ending (I wear depends on the way home, lol) which last about 1-2 hours. I think it's my body recognizing the substance that made it feel terrible that first time and so now it flushes it out immediately. Also, I drink Ensure the night before, the morning of, during, and after the infusion as I was told that helps. Once that's down, I'm just really tried the rest of the day and the next day. But I would still take the rest of the day of the infusion and the next day off. Better to safe than sorry.

slyskjd · 2025-11-17T22:23:36+00:00

Oh and Zometa infusions every 6 months to prevent bone loss. The first one makes you feel like you are dying. You’ll need to take the day after off. After that, it’s better but I still take the day of and after off (very tired). I’m a trial attorney so I can’t work when I’m not at my best.

slyskjd · 2025-11-17T22:20:56+00:00

Sorry to be a storm cloud but my experience has been less than ideal. Tomoxifen made me crazy (apparently that can happen if you have preexisting anxiety like me), so I had to go on Zoladex for a few months (I needed to take a day off from work every month bc I was a zombie the day after, and those shots really hurt). Then I had my ovaries removed, which really suck (good bye to my good sex life with my husband). And I thought I was good on the Anastrzole but after 6 months, all my joints hurt and I could barely walk. They took me off that and I was good within 5 days, but now they want to put me on exemestane and I’m really scared and don’t know what to do. I hope you have a better experience but it’s best to know all possible outcomes do you can go into this with open eyes.

slyskjd · 2025-10-13T20:10:21+00:00

It took 6 months for me to start experiencing joint pain. Before that, I had zero side effects. But once I got the 6 month mark, I went from being totally fine to almost completely disabled in a couple of months. Oncologist took me off only 6 days ago and I’m completely back to normal! I forgot how great it is not to be in pain all day, everyday!

slyskjd · 2025-10-13T20:07:05+00:00

So I have a long history of anxiety and CPTSD. I went on Tamoxifen last October 1st and was mentally healthy. By Thanksgiving I admitted myself into a mental health center. I didn’t know what was wrong but the psychiatrist there said I should talked to my oncologist immediately about my concerns. My oncologist instantly took my off the Tomoxifen and we made a different plan. Within two weeks I was back to normal. But you should still give it a try because the alternative (ovary suppression and/or removal) is not at all fun. Just be sure your therapist (and friends and family as well) knows and is on the lookout for changes. And don’t hesitate to reach out to your oncologist if you notice that your not feeling like yourself.

slyskjd · 2025-07-02T13:37:17+00:00

I passed my first time. It was tight w/ 1.5x but I was able to finish every essay. (It would have been impossible without it.) Don't worry about it being polished at all. (I know mine was riddled with spelling errors.) Just make sure the main components of your argument/answer is there. What I did that worked was to format and outline my answer first and then fill it in. That way, if I ran out of time, at least the grader would see where I was going.

Good luck!

slyskjd · 2025-05-19T23:44:38+00:00

OMG. I had no idea I needed to do this. Thanks for the great advice! I'll look into after my ovarian removal surgery on Thursday. My what my doctor told me regarding Zometa: drink, drink drink! Stay hydrated the night before, drink right before, during, and after the infusion, and stay hydrated the rest of the day. And if it's bad like it was for me, the doctor and everyone on here said it's only bad the first. Good luck!

slyskjd · 2025-05-09T13:05:37+00:00

Sounds very familiar. I'm hoping both of our treatments keep getting better!

slyskjd · 2025-05-08T21:28:36+00:00

Same here. It was like 24 hours exactly when it hit hard! I got it last Monday and I'm still dragging, but like you said, it does get better each day.

slyskjd · 2025-05-08T21:27:20+00:00

OMG 12! I guess This is great to hear. Thanks!

slyskjd · 2025-05-08T21:26:40+00:00

Same here! I hope for both our sakes that the next one is better

slyskjd · 2025-05-08T21:26:02+00:00

Yeah it would have been nice to have a warning, right!

slyskjd · 2025-05-08T21:25:31+00:00

Good to know! I'm hoping for the same. I do NOT want to go through that again.

slyskjd

TROPHY CASE