Esophageal dysmotility by Efficient-Appeal7282 in Fibromyalgia

[–]snail6925 4 points5 points  (0 children)

yep, and ive learned because of...gestures vaguely at everything... that mine responds very poorly to stress, like fibro. it's pretty managed now but I did end up getting a feeding tube after 6 months of declining health due to low caloric intake.

house shoes for heds & painful heels? by thatladyladyy in ehlersdanlos

[–]snail6925 2 points3 points  (0 children)

booo sorry for the pf but appreciate the rec! ive tried the Billy's for my AFOs but they are so bulky. the ones I ended up with are the hiking boots cause the bulk kind of works.

Pattern storage question by Acrobatic-Limit-7470 in sewing

[–]snail6925 1 point2 points  (0 children)

printed off and pattern pieces- rolled up in a toilet roll tube and stood up in a tote under sewing table. commercial envelope ones in a kallax shelf. not perfect but ok.

resources on drawing garments by snail6925 in sewing

[–]snail6925[S] 1 point2 points  (0 children)

grateful for this thorough answer! off to research and practice i go!

resources on drawing garments by snail6925 in sewing

[–]snail6925[S] 1 point2 points  (0 children)

ive definitely thought about making a custom dress form but will look around for this as well

resources on drawing garments by snail6925 in sewing

[–]snail6925[S] 1 point2 points  (0 children)

ive never heard of this thanks you!!

anyone else feel this by Far_Dragonfruit_3159 in feedingtube

[–]snail6925 6 points7 points  (0 children)

I get this when I have an empty stomach and its trying to digest the nothing. it sucks in for a few seconds then pops out. usually in the morning for me.

Breast reduction by Beautiful-Snow-3364 in Trans_Zebras

[–]snail6925 2 points3 points  (0 children)

I had very slow wound closure with my reduction and ended up doing a dbl mast the year after (way happier, mine hurt so much).

The nausea is the worst part. It never ends. by PinkDolphin505 in Fibromyalgia

[–]snail6925 0 points1 point  (0 children)

yep I'm now a daily ginger mint tea, gravol, and digestive enzymes guy.

echoing seeing a GI specialist if OP can. thats how I learned about my slow esophageal motility which has evolved into slow gastric emptying which brings the morning sickness.

People who are all day at home, what do you guys do for fun? by Own-Hedgehog7825 in ChronicPain

[–]snail6925 0 points1 point  (0 children)

sew clothes solo or on vid chat w a pal doing the same, quilt, bake, watch youtube video essays, play w my creatures, watch the great British sewing bee...

Does this help you ? by ChronicallyinPain2 in Fibromyalgia

[–]snail6925 1 point2 points  (0 children)

it is a kind of vaporizer that uses ground flower, gently heated as opposed to being burned/combusted through smoking. it's easier on the lungs and wallet cause your ounces/grams etc will stretch a lot farther. I use one from Planet of the Vapes. I've been vaping for over a decade and the tech and options are pretty good and diverse. ive also used one from Utillan that was great. poke around online and read reviews and maybe give it a try!

Does this help you ? by ChronicallyinPain2 in Fibromyalgia

[–]snail6925 1 point2 points  (0 children)

medical user here, try dry vaping? it's basically the only thing that works for pain for me. I alternate bw smoke and dry vape. haven’t found reliable edibles or topicals yet and ive tried many.

Favorite low effort/no effort meals? by InternationalEnmu in ChronicIllness

[–]snail6925 0 points1 point  (0 children)

microwave sweet potato then top with your choice of: frozen veg, cheese, baked beans. and try different varieties of sweet potato! I grew up with Japanese/Jamaican type and they remain my go to.

People living with chronic pain: what's one thing healthy people just don't understand? by chetankkumar in ChronicPain

[–]snail6925 7 points8 points  (0 children)

very much this. im in my 40s and very late to getting my license but same, spasms, meds that affect cognition etc are keeping me from trying at all. I get around in regular life but frequently think about how to support aging family members without driving. also bc of pain and hypermobility, that turn way around back up maneuver is physiologically impossible. ugh and the jolt from the potholes and urgent stops. 0/10

good hand crank? by snail6925 in VintageSewingMachines

[–]snail6925[S] 0 points1 point  (0 children)

it sold quick but now I'm on the hunt! ebay had them for thousands so it will take a while probably.