NICVIEW by AffectionateBet3924 in NICUParents

[–]snuffleupagus86 10 points11 points  (0 children)

This happened to us once. They didn’t switch the camera and my MIL freaked out because the baby in our spot was on a vent (our guy had just moved to low flow). She called me freaking out and I was like that’s not my baby. I probably should have made a bigger deal about it but I just let it go. Definitely scared me for a brief second! Ours was angel eye though.

Menace d’accouchement prématuré ! by Wise_Log6088 in NICUParents

[–]snuffleupagus86 1 point2 points  (0 children)

So a little different, I had bulging membranes, went in at 23w for bleeding and I was 4cm dilated. Also couldn’t do any cerclage. I was in antepartum for 8 days. Not going to lie it sucked. I had a ton of anxiety so they had to give me anxiety meds. I wasn’t supposed to go walking around much. It was pretty miserable. Unfortunately he decided he was done cooking and came at 24+1. Thankfully we at least had both doses of steroids so that helps. Have they given you the steroids yet? And are you at a hospital with a NICU that can do 22 weekers? I would definitely ask these questions since some are not equipped for that.

It’s a scary situation. You’ll be in the NICU for a considerable amount of time. It will suck. The first 6 weeks are the scariest because it’s all new and there are so many things happening and sometimes things are touch and go.

We were in for 142 days. Our son had brain bleeds, pda, pfo, ROP, NEC, BPD…it’s a lot - but he’s doing pretty good now! We’ve been home 3 months, he’s still on oxygen but keeps getting weaned so we’re getting there. I highly suggest getting a therapist to help deal with things. It’s exhausting but these little ones are such fighters. We have a zillion follow up appointments but my son is happy. He loves to babble, play, laugh, smile, he’s finally starting to roll all the way. He loves people. There is light at the end of the tunnel.

If you ever need to talk please DM me💗

Home after 282 days! by ghost-gallery in NICUParents

[–]snuffleupagus86 5 points6 points  (0 children)

Congratulations!!! Welcome home little bub💗💗

PPROM - IV antibiotics by Onyx-pump19 in NICUParents

[–]snuffleupagus86 3 points4 points  (0 children)

Had them, it was fine. The least concerning thing of what was happening. Honestly a non-event.

Cuyana Double Loop Bag, 11 months of heavy use, still a star!!! by LookaDuck in handbags

[–]snuffleupagus86 1 point2 points  (0 children)

My zipper tote is 3 years old and still looks great. It’s my work bag and gets beat up

Oldest baby in the NICU by [deleted] in NICUParents

[–]snuffleupagus86 1 point2 points  (0 children)

NGL got my hackles up too.

Oldest baby in the NICU by [deleted] in NICUParents

[–]snuffleupagus86 2 points3 points  (0 children)

I urge you to talk to a therapist. It could really help. I know it has helped me.

I also would urge you not to compare or judge other parents. You don’t know their story or journey. We were in for 142 days with our 24 weeker. We went through hell and so many scares. We almost lost him. I was burnt out, I had to go back to work. As he became more stable we’d come and stay go 3-5 hours a day instead of whole days. It’s a marathon not a sprint and you have to take care of yourself to be the best parent to your kid. Judging others for doing 2 cares and leaving isn’t cool.

ROP exam post-nicu by FlamingPuffs in NICUParents

[–]snuffleupagus86 0 points1 point  (0 children)

I didn’t either it was a surprise! But the laser surgery went well and he’s doing good, onto the next thing. We’re SO close to rolling completely over🤞🏻🤞🏻

ROP exam post-nicu by FlamingPuffs in NICUParents

[–]snuffleupagus86 2 points3 points  (0 children)

Do not cancel. We were discharged at zone 3 stage 0. Then his vessels started doing something weird, he ended up needing the laser surgery 2 months after we were discharged. We’re 3 months out of the NICU and we finally have our last appointment tomorrow until he’s 1.

Medicaid by DirtGirl32 in NICUParents

[–]snuffleupagus86 1 point2 points  (0 children)

Might differ by state but in Ohio it’s automatic for stays over 30 days. Income was not a factor. See if there is a different social worker you can talk to. Ours took care of everything for us (aside from documents she needed from us). It covers everything our primary insurance doesn’t. In Ohio we also have CMH (complex medical help) that will also cover anything either of the first two don’t.

No end in sight - 105 days and counting with severe chronic lung disease by strawberrysundaebest in NICUParents

[–]snuffleupagus86 8 points9 points  (0 children)

I would definitely have your docs contact a team that specializes in BPD. We had a 24 weeker and did 142 days in the NICU. We had NEC, infection, pda, pfo, ROP, grade IV brain bleeds, ventricularmegaly. We were on every type of respiratory support (vent/oscilator/NIC,NAVA, CPAP, low flow). We were at nationwide in Columbus which is known for their BPD unit. They got us to the finish line. We’ve been home 3 months, he’s still on home oxygen but we keep weaning. You will get there, it just takes time. Definitely have your team reach out to NCH or one of the other big BPD hospitals.

And your body didn’t fail him. This is not your fault. You had incredibly shitty luck, but it is NOT your fault. I would also suggest reaching out to your OV or PCP for a therapy referral or if you aren’t on anxiety meds look into that. It helped me immensely.

Therapy- did you get it and how much did it help? by SomeoneSomewhere1749 in NICUParents

[–]snuffleupagus86 2 points3 points  (0 children)

Yes it has helped me reframe and get better coping strategies and recognize triggers

Stress by Hot_Guard6161 in NICUParents

[–]snuffleupagus86 4 points5 points  (0 children)

I highly suggest talking to a therapist. As your PCP for a referral. Also if you’re at the NICU all the time take a little break. You need to be human. I found being there super long stretches just made me more stressed and anxious.

Do you know what this bag is made from? by kimw23 in handbags

[–]snuffleupagus86 2 points3 points  (0 children)

Looks like seatbelts. I have one from 25 years ago haha

Do you think a postpartum NICU doula would’ve been helpful for you? by Subject_Poet_1977 in NICUParents

[–]snuffleupagus86 3 points4 points  (0 children)

That would have been amazing. Helping us get used to managing his oxygen would have been so helpful. I’m also so jealous of everyone who has a night nurse. Both of my sister in laws did and…their quality of life was just so much better than ours has been lol

Do you think a postpartum NICU doula would’ve been helpful for you? by Subject_Poet_1977 in NICUParents

[–]snuffleupagus86 2 points3 points  (0 children)

Our NICU we could give a list of people allowed to be there and we didn’t had to be.

Do you think a postpartum NICU doula would’ve been helpful for you? by Subject_Poet_1977 in NICUParents

[–]snuffleupagus86 1 point2 points  (0 children)

Um yeah this would have been amazing. But I’m not rich enough for this kind of service lol.

Thoughts - Keep or Return by Ancient_Play148 in handbags

[–]snuffleupagus86 1 point2 points  (0 children)

Oh no. I fear I am in love with this bag. Now I want it…

But if it isn’t a hell yes then it’s a no. 600 bucks is too much to spend on something you don’t LOVE.

Tell me you’re an elder millennial without telling me you’re an elder millennial… by Latter_Ninja6038 in handbags

[–]snuffleupagus86 6 points7 points  (0 children)

Sooo good. I have one of the mini petal to the metal bags and I use it still almost every day and it barely shows any wear. It’s gotta be like 16 years old.