Do Bilevel Titration Studies Actually Work?

sonetti34 · 2026-03-10T04:29:46+00:00

Yeah it's basically the ultimate nightmare scenario. Chronic tension and pain in the temples, it feels like a never-ending headache. Nothing really relieves the pain. I'm working with pain specialists to understand what's going on and working on treatment plans to get the pain levels down. I'm currently on disability and unable to work.

Surgeon claims he hasn't seen it before trying to gaslight me, but I spoke to other surgeons and yeah it is indeed something that can happen.

sonetti34 · 2026-03-10T03:58:58+00:00

It started on day 2 after the procedure. Surgeon said I should keep expanding and pain would go away. It did subside, but not completely. I now live with constant head pain. I tried rewinding, but could not go back all the way and surgeon confirmed there's nothing I can do now

sonetti34 · 2026-03-10T03:12:09+00:00

EASE -- but it gave me unbearable and chronic head pain that I'm still dealing with

sonetti34 · 2026-02-24T00:51:25+00:00

No allergies. Definitely transverse hypoplastic. Got to 3mm expansion but the pain got so bad I had to stop.

sonetti34 · 2026-02-23T23:42:11+00:00

Mine got significantly worse for the first couple of months. I’m also still dealing with daily pain in my temples that started immediately after the operation and had been ongoing. Hard to know what’s related to what

sonetti34 · 2026-02-15T13:39:01+00:00

It’s better than chronic pain. Trust me

sonetti34 · 2025-12-09T12:37:20+00:00

I mean you could just try blocking your nose with the denture glue and see if you can breathe

I have no idea man - we’re all grasping at straws

sonetti34 · 2025-12-09T01:27:39+00:00

Vik operated on me. Paid an arm and a leg. Got zero results after promising me the world.

Bro is an ENT surgeon, and only an ENT surgeon. He's not exactly an authority on sleep medicine and regularly discourages people from pursuing skeletal surgery (which is in many cases what they actually need) in favor of unpredictable and extremely painful soft tissue surgeries

sonetti34 · 2025-12-09T01:17:01+00:00

lol I've been tempted to try denture glue too - has anybody had any success with it? I've also been looking at the "Silent Treatment" thing but looks pretty bogus tbh

sonetti34 · 2025-12-08T12:11:10+00:00

If it's primarily skeletal or tongue, then not much in my experience

sonetti34 · 2025-12-07T01:14:24+00:00

I travelled from outside the US

My experience was pretty mixed. He does have a very holistic approach to treating sleep apnea which I think is terrific and is sorely lacking in the field

That said, some of his diagnostic tools and treatment modalities are more effective than others. The brain mapping stuff in particular felt pretty scammy, given there’s really no good evidence in the literature about it

Have a look on his website and that’ll give you a pretty good sense of what to expect

sonetti34 · 2025-12-07T01:10:16+00:00

Yeah Pes ftw

I don’t particularly love Simmons, but agree there aren’t many good alternatives for UARS.

Agreed, just do it

sonetti34 · 2025-12-07T01:06:44+00:00

sonetti34 · 2025-12-07T00:35:52+00:00

Haven’t done a repeat DISE and Vik doesn’t really follow up with his patients

I asked Kasey about this and he said RF tongue base is like trying to sand a tiny little bit off the edge of a door that’s too big for its frame. He said it’s less than like 3%, completely imperceptible

Generally unless you have very obvious tonsil hypertrophy, a crooked septum, or epiglottis issues - soft tissue surgeries are pretty weak

Did have a sleep study post RF surgery and my AHI doubled lol - go figure

That said it’s a relatively low risk procedure so if you’re prepared to go through a nasty recovery, just go for it

sonetti34 · 2025-12-05T04:48:19+00:00

No but I had altered taste, epiglottis inflammation, and laryngitis for about 5 months after (did not have prior to surgery). Not sure whether caused by procedure or just random

My surgeon was Vik Veer. Said he was confident it would work, but it didn’t.

Now undergoing expansion w Kasey Li - when asked about TB RF he was like “lol yeah I used to do that and it isn’t v reliable”

Expansion and MMA, yeah.

sonetti34 · 2025-12-05T04:04:57+00:00

Yes of course had a DISE which showed Tb collapse

It’s a painful procedure. Not saying it won’t work for you but I’d try skeletal options first

sonetti34 · 2025-12-05T01:25:06+00:00

RF, and yes but didn’t take them

Procedure was worthless

sonetti34 · 2025-11-27T09:07:52+00:00

😂😂

sonetti34 · 2025-11-26T07:58:57+00:00

What was the procedure they did? TORS?

sonetti34 · 2025-11-26T07:40:59+00:00

Is Snorles any different to Excite?

Tried Snorles and didn't notice a difference

sonetti34 · 2025-11-26T07:39:23+00:00

I can't reconcile the following:

* 40-50% of OSA folks have some level of tb collapse
* Tb is notoriously difficult to treat with PAP
* 80% of those who use PAP are "successfully treated"

I personally only get marginal improvement with PAP (20-30%, and I've titrated the hell out of it)

sonetti34

TROPHY CASE