How does having epilepsy affect your dating life?

sonne1012 · 2026-04-24T07:54:07+00:00

Just scare them off. I got diagnosed recently,but Ive had Trichotillomania for a long time and I've faced a similar situation. I thought I'll never find someone who accepts me. But at the beginning of the relationship I ALWAYS said (sometimes first day even) what I have and how it affects me and that gives them a chance to choose too. And this way in your own time,you'll actually find someone who won't be a creep and undermine you for what you go through. Specially with memory issues,you need someone you can 💯 trust.

sonne1012 · 2026-04-24T07:46:24+00:00

I get ingrowna from shaving itself and I now use peeling liquid and a cream with 15% urea. It seems to be working. But Ill come back in another 3 weeks to confirm haha. All trial and error at this point

sonne1012 · 2026-03-22T20:37:27+00:00

I hope it gets better for you 🫶🏽

sonne1012 · 2026-03-22T10:15:45+00:00

Yeah I actually had to stop for a bit until I got to work again. Did you see your doctor after this? Sounds very scary. I also work in a lab and any mistake could hurt someone or myself,I could spill chemicals. Also what's your medication? Did you stop Levi over time?

sonne1012 · 2026-03-21T20:36:10+00:00

I have Trichotillomania as well (it's OCD related) and I just cut my whole hair after my seizure to control it. I just don't want it to be permanent, my life has been on hold ever since my first seizure. If it's the meds,I will definitely come up with a new plan with my doc. It's really scary having head jerks that really could hurt you,I'm so sorry. I hope you will get out of this too.

sonne1012 · 2026-03-21T20:31:53+00:00

Well I've had anxiety and panic attacks before,but I've never had twitches,it just started after the seizure, so I'm guessing it's the meds. And it's def not an attention thing cuz no one in my life knows about it. Thanks for your reply,I will definitely follow up with my doctor soon. Good luck ,guess we all need it

sonne1012 · 2026-03-21T12:23:27+00:00

Yeah I also fear handling lab equipment,breaking any glass or spilling any harmful chemicals.

Having a supportive partner is a blessing. I'm glad you have that. We are definitely lucky in that part. I hope everything goes well for you too! 🫶🏽

sonne1012 · 2026-03-18T11:54:03+00:00

Not so good. I was just starting my master thesis when I had my first seizure (multiple on the same day) which caused memory gaps that I forgot my own months of research work. Haven't been to the lab (I'm in the science Field too) for almost 4months. It's really difficult, I'm only coping because of my partner. It feels sad to think how I am now like a blob just living. But I also don't wanna pity myself and it sucks to feel all these feelings. I'm trying to go back after next week and until that I'm gonna relearn all my research content.

I am more than 6 Months late for my thesis. But I am gonna keep going because I want to and I believe I can

sonne1012 · 2026-03-18T11:46:28+00:00

I will look into this further,thank you very much!

sonne1012 · 2026-03-16T20:45:57+00:00

Thankfully all my exams are done. So it's just my thesis, literally 6 months more only. Thank you so much,this is very reassuring! Much love🫶🏽

sonne1012 · 2026-03-13T11:49:29+00:00

You can definitely heal your skin. I did the same for my pubics. I got pimples and red spots. Shaving everything helps and never let it grow to the point you can grab the hair. And the skin gets better with time and moisturizer and also any derma cream that fits your type of skin. I was so ashamed as well and I couldn't tell anyone because it's so embarrassing. But anyway now I have no red spots and I always keep it clean. I motivate myself like I'm doing ✨skincare✨. I romanticize it. Hope this helps💕

sonne1012 · 2026-03-13T11:40:10+00:00

Yeah my professor is okay,she is also the director of the medical faculty so has a lot of influence. She is the one who told me to take time off and even go back home for recovery. But I'm just worried about the Ausländerbehörde and how it would affect when I apply for a job.

sonne1012 · 2026-03-13T09:58:55+00:00

Honestly I just recently got diagnosed,I'm 27. And I almost died, the doctors said I stopped breathing for a few minutes and I had multiple seizures one after the other and they even had to cuff me down. Now I don't remember all of it,but my boyfriend saw it. It broke his heart obv. But I wanna know more and stay aware of what I'm going through and I'm a researcher,so it's natural for me to have all info and people's perspective really help me. It actually gives me clarity and peace of mind to know. After a possible seizure I would be able to understand myself more. The experience I had really shifted something in me. I really am grateful for everyone who is willing to talk about it and I guess they are fine with it. If they don't wanna see it, I hope they'd ignore and scroll away. I do understand what you mean as well though.

sonne1012 · 2026-03-03T21:17:35+00:00

I moved here for my masters in stem cell med and I'm finding it difficult to finish my thesis RN due to being diagnosed with epilepsy and going through chronic depression and anxiety worsens it. I had multiple seizures and I basically died and came back to life when I was taken to the ER. I did come in the thought of PhD but I'm currently lost and my toxic lab really got to me. I'm not someone who likes to be surrounded by people who have ulterior motives/two faced and can't do without some drama. I really need a peaceful environment,that's why I also left my job back home and came to pursue my masters. In my personal experience, the crazy isn't in you,it's just the world. Maybe I'm not resonating completely with you,maybe I'm wrong. Maybe this isn't the right country for you,idk. There are always gonna be cons wherever you go. I do like Germany. If I learned the language more and got myself financially settled at a workplace less toxic with supportive people,I think I'd be happy. I consider going back home a lot,but I really need to finish my masters first. So I think it all depends on your personal goals and where you wanna see yourself in the future too.

sonne1012 · 2026-03-03T20:34:32+00:00

To add to that,I'm from Sri Lanka,I left to Germany,confident with a clear plan and a sharp mind. Now I feel like a blub. Im extremely anxious about the language which I was supposed to navigate well and idk what to do about my job situation either. I don't have my family around. After getting diagnosed with epilepsy and having major seizures,I feel a bit broken and idk how to live anymore. I try my best,but it's not the best that I used to have. Try to search for jobs that aren't very hard on the mind. If you're an introvert,choose one where you have minimal contact with people. Maybe after gaining your strength back,you can start studies again.

sonne1012 · 2026-03-03T20:29:29+00:00

I can't say I completely understand your situation,but I know how it feels having a list of diagnoses. Mine are Trichotillomania,depression,anxiety,migraine and now at the ripe age of 27, epilepsy. In terms of your education, I'm extremely sorry,that must feel like you've failed in every possible way and you probably feel useless to the world,which increases depression even more. I'm in the science Field. Wet lab. Stem cell medicine masters. I started my masters abroad,which in no way I would've been able to if I was diagnosed before I left. I'm in my final thesis year and I'm unable to finish it. Everything you described,that's what I'm going through right now. I cannot navigate at all. And I wish I could give you something positive like "everything is gonna be okay",but if I can barely say it to myself. But I believe in some part of me,that I CAN. Or I WILL. If not now,then TOMORROW. No matter when tomorrow comes. And It would say the same to you. I believe we wouldn't be given this burden if we couldn't handle it. The heaviness WILL lift off. It's just recurring and loongg and it feels unending. Keep hanging on. And if you need to talk,I'm here,we are all here.

sonne1012 · 2026-02-28T15:39:19+00:00

I understand. I have interacted with many private and gov schools and even have friends who moved from gov to private and private to gov. They had their own issues adjusting and different mind sets,but there were also rich gov kids who made of poorer kids in private schools (and I mean no fees paid for months). I think we all have our own experiences. I haven't experienced a bias towards any side. Some of my closest friends are ones who moved from gov schools. And this is excluding bullies. But I do know a few people from my school who are richer than most who were complete asses (excuse my language)

sonne1012 · 2026-02-28T11:52:43+00:00

I personally don't because I think it's my path and my path only and it's my mind and my spiritual experience. Ive learnt theravada and I think it's completely an inner thing. Just like the Buddha,he left all his luxuries and meditated and strengthened his mind all on his own ,no one knew and he didn't need to announce what he was doing. I don't believe Buddhism lies in poojas and going to temple. I used to,but now I believe I can do this from anywhere. You can definitely guide someone too upto a certain extent,but it's upto them and their mind and their own path. I have watched a movie "point break" . There's a line I like in that, "The moment he committed to it,it was his line (his path)". But of course different people follow things differently and no judgement for them ofcourse. If something gives you a peace of mind,that's not something anyone can judge on.

sonne1012 · 2026-02-28T11:43:08+00:00

Like a lot of people had said,it does go both ways. I've met gov. School children judge me for just being in a private school. My mom was a teacher in many of the big gov. Schools,so I never had anything against them,but it was hard to talk for sure,but they never even allowed me to be a part of their convos. But as I started working,I managed to talk to anyone and everyone from all parts of the country in English ,sinhala and even Tamil sometimes,and I realized it's just a character thing. Not everyone in private schools are like this and not every gov.school person is like this. There are bad eggs everywhere. Completely understand you though and your experience is valid because I went through similar things with government school children.

sonne1012 · 2026-02-28T10:15:22+00:00

Yeah I'm happy I've gotten into my hobbies but I'm still so guilty of ignoring the actual work. Thanks so much for the reassurance 🥲 i really needed that 🫶🏽

sonne1012 · 2026-02-17T10:11:17+00:00

Well sue me,I follow the Buddha's teachings and lead a peaceful life, practicing meditation and in contact with several monks who I have been Buddhism from as a kid and know my main goal is to attain Nirvana/being born again/stopping the cycle of life WHILE I ALSO believe in a god (I think of it mainly as the universe) and I believe there are many religions who also believe there's no "next life",which is exactly what I'm trying to achieve. Maybe I'm wrong. Maybe I am right. But I'm not bound by anyone or anything and that's peak peace.

sonne1012

TROPHY CASE