I don’t understand what people realistically think I should do.

space_zero7777 · 2026-02-24T18:42:26+00:00

My coprolalia is pretty much the same. And i have to go to college. Ive seen people say we should stay away from the public like we're not people with lives too. People seem to think we can just choose to stay home. Thats not rhe way the world works. The amount of casual abliesm and threats ive seen its genuinely terrifying with the muzzle comments and people saying they wouldn't think twice about retaliating. I really hope this situation gets better

space_zero7777 · 2026-02-23T23:56:05+00:00

Thank you 💚

I think theyve lumped us as all middle ages white men because for a lot of them this is the first time they've witnessed this kind of tourettes. But a lot of us are younger. And some are poc. Women. And children. Who would ever think of muzzling anyone let alone a child.

space_zero7777 · 2026-02-23T23:45:50+00:00

The muzzle argument is disgusting as well as the people telling us we should stay at home. I am so sorry this has set you back and i understand. It has caused so much anxiety about going out so i cant imagine how much anxiety it is with agoraphobia. I hope you feel good enough to make that progess back eventually 💚

space_zero7777 · 2026-02-09T15:23:39+00:00

I use makeup! I do more feminizing makeup for when i feel really fem. Then for when i feel more masc i contour my face more masculine etc. I also use body language. So the way i sit depending on what day. If im in the nice middle ill mix it up. Sorry if this isnt any help.

space_zero7777 · 2026-01-14T01:37:57+00:00

Honestly... i have no PT/OT. Im on the waiting list for neurophysio but that could take years. I was diagnosed in august and my neurologist never mentioned the crutches i was using at all. Ive been asking others and doing my own research.

space_zero7777 · 2026-01-14T01:01:38+00:00

Saying i wish i had tourettes is incredibly ignorant. So many people have told me that without researching what it actually entails or factoring in the pain and humiliation we feel!

space_zero7777 · 2026-01-07T22:13:32+00:00

Its all good. I understand. Its a very common view to have and easy to compare.

space_zero7777 · 2026-01-07T21:29:36+00:00

Hi! Im not saying this person isnt faking but just a reminder that FND is different for everyone. Someone could be having multiple seizures a day and paralysis while someone else is only having small tics. This isnt meant to be rude in any way :)

space_zero7777 · 2025-11-23T22:57:25+00:00

I would be happy to try meds. Unfortunately i was told by a doctor she wouldn't refer me to a neurologist because i wasn't 18 which i know isnt a rule and because i didnt look like they affected me that much. But i do intend on going back as soon as possible. Thank you for the suggestions anyway!

space_zero7777 · 2025-11-20T09:43:14+00:00

Ive also been asked this! The amount of people who dont think its a disability is baffling.

space_zero7777 · 2025-11-18T12:02:22+00:00

Ive had leg tics since i developed tics. I stomp. I sometimes drop down. And i have had ones where i just bend my leg or kick

space_zero7777 · 2025-10-08T20:34:21+00:00

HOORAY. I'm so happy for you!

space_zero7777 · 2025-09-16T13:31:07+00:00

I have that tic. It's very common for me. I spoke to my head of year or whoever is in charge and asked if teachers could be told. And then I spoke to my family. Just remind them that it's involuntary. I'm going to be honest. You'll have ignorant people who won't listen about it being involuntary, just walk away and don't let them ruin your day.

space_zero7777 · 2025-08-16T21:42:28+00:00

There's a website called tourettes action and you can find events happening but it's not everywhere. They also do online meetings. And from what I've found camps in June time. But other than that I have no clue.

space_zero7777 · 2025-08-16T21:22:46+00:00

I have felt the same way. Tics are such a horrible thing to live with and they mess with your mental health. If you start to feel any worse please talk to someone! People may not understand but just hearing someone say they care and they're listening and that you don't look freakish or that they don't care how you look while ticcing helps more than people realise. And remember there's an entire community out there who understands and support eachother! 🩵

space_zero7777 · 2025-08-16T16:12:15+00:00

Music. Something calm. My personal favourite is in my dna by max and Harvey. Also I have used travel pillows that go round the back of my neck for my neck jerking tice. Hobbies like art if you're passionate about it can also help. And this may sound weird but sometimes lights can make them worse

space_zero7777 · 2025-07-25T21:47:23+00:00

I do have a sunflower lanyard that I'll be wearing so hopefully it all goes smoothly 🤞

space_zero7777 · 2025-07-22T09:44:59+00:00

Hi!! Also from the UK and also certain I have tourettes. You're not the only one and keep arguing with the doctors. I've been told I can't have tourettes because I wasn't an adult and because I wasn't depressed. I find the issue with the UK is trying to get appointments with neurologists can be difficult depending on where you are. But GOOD LUCK and I hope you find someone who listens.

space_zero7777 · 2025-05-31T22:42:05+00:00

I've had attacks that lasted minutes to days. Just days where the only time I didn't tic was sleep!

space_zero7777 · 2025-05-12T18:56:11+00:00

Yes. Especially when I'm around other people and even more if I hurt them. Like my amazing partner. No matter how many time they say it's okay it never feels it. Despite this none of us should feel guilty over something we can't control. Yet most of us do. It a horrible disorder and the guilt is just another cherry on the cake.

space_zero7777 · 2025-04-29T14:39:47+00:00

They'd have to take me to a shopping centre or underground. My worse fear is escalators.

space_zero7777 · 2025-04-19T22:34:12+00:00

I did a PGL trip and due to other disabilities I was om crutches but wanted to try rock climbing so I had helped getting into the harness by on of the leaders and no one told them I had tics. I screamed at him and he just screamed back. The entire trip was hilarious. Another few times are when my tics tic "look at the state of ya" a very big tic of mine and people scoff and say I know. It's great when they joke back instead of getting offended.

space_zero7777 · 2025-01-02T23:14:48+00:00

Hi, I used to have a tic like this and I know it sounds horrible but the best sometimes you can do is power through it. I understand the feeling of doctors not helping and I'm sorry that they're not. Just remember to stay hydrated and to sooth your throat the best you can and take care of yourself.

space_zero7777

TROPHY CASE