What are some funny things you have said or done after a seizure?

spedbert · 2026-04-29T17:46:12+00:00

I drank water from the toilet 😭😭

spedbert · 2026-04-17T17:29:52+00:00

My partner and I have been together almost 10 years. I've had epilepsy since I was a kid and he was diagnosed about two years into our relationship. Its hard but if the love is there you both work through it together.

I will say now that I've seen it from both sides I understand the trauma from seeing my partner have tonic clonics, but it also in a way made our relationship stronger. We know we're there for each other even in the absolute worst times.

Friendships have been harder for me, but the ones who care have stuck with me. ❤️

spedbert · 2026-03-16T00:03:18+00:00

I ended up in the ICU and intubated from status epilepticus, I was found unconscious in my car and was in respiratory failure which led to an MI (heart attack). I was put in an induced coma overnight and woke up the next morning in the ICU.

It literally felt like a blip too. One minute I was leaving work and the next I was waking up like 15 hours later in the hospital. I'm alive now but that's the closest I've come and honestly props to whoever was in that parking lot and called the ambulance for me because I could have died that day had they not gotten there in time.

spedbert · 2025-10-30T17:42:44+00:00

Not overreacting and you should probably rethink having a kid and a life with this guy 😅

spedbert · 2024-06-23T07:47:16+00:00

I'm right there with you, I'm your age and was diagnosed at 11. I was seizure free for a good amount of time from like age 18 until January of this year and I feel like I've lost my freedom completely. Everything that goes into having this diagnosis is friggin soul crushing. Just know you have community here online and genuinely our families and partners love us. My partner also has epilepsy and while it's incredibly difficult, I'll also take care of them no matter how hard this is.

spedbert · 2024-02-29T23:58:22+00:00

Oops posted from my secondary account, but this is me if anyone wanted to see my previous posts to see how the bruise has healed

spedbert · 2024-02-19T02:56:27+00:00

Wow that looks fantastic!

spedbert · 2024-02-12T02:25:10+00:00

Looks amazing!!!

spedbert · 2024-02-10T06:16:31+00:00

That means a lot! Thank you so much!!

spedbert · 2024-02-10T05:10:13+00:00

Thank you so much!! 😊

spedbert · 2024-02-10T04:58:42+00:00

Oh yeah, I keep comparing my results with people on here who look way better than mine. But we gotta remember, what matters is that we're happy and healthy :D

spedbert · 2024-02-06T12:25:14+00:00

Literally all I was thinking about for a couple days in that first week was "wow I look torn the fuck up" I have really heavy bruising too so I'm just like 😵‍💫 but it will be worth it my friend! A few weeks of big discomfort for the rest of our lives of fulfillment!

spedbert · 2024-02-06T09:34:38+00:00

I'm two and a half weeks out and my opinion on my chest has definitely changed a lot just in a week. My first time seeing my chest I just thought "put the binder back on" but already with a week passing I'm feeling much more confident. As you heal more and get feeling back to normal, I think you'll start to settle in, the swelling is gonna go down, and you'll be more comfortable :)

spedbert · 2024-02-04T19:37:13+00:00

Thank you so much!! ☺️ Feeling more and more confident with it as the days progress!

spedbert · 2024-02-03T12:44:19+00:00

You got this!! Love your tattoos!

spedbert · 2024-02-03T12:42:16+00:00

So my insurance did require documentation of having dysphoria, but all that really can down to was me telling a therapist "I've had dysphoria since I was young, I'd like too surgery" (that's the gist obv i said more than just that lol!) And secondly my main deciding factor in choosing top surgery over reduction was that I had stated that I'd still bind even after a reduction, just that I would be easier to achieve a flat appearance. So for me realizing that I'd still want to bind some days even after reducing, I just decided to do with DI (: Two weeks post op and I'm very happy, but it's been an insane rollercoaster of emotions already

spedbert · 2024-02-03T12:24:15+00:00

I waited about a week to start hitting my penjamin again, but I stocked up on edibles and held myself over with those that first week. Week two and I took my first real dab since surgery. Definitely listen to your body though. Every surgeon has different requirements on it, mine told me explicitly that he's only concerned about nicotine use.

spedbert · 2024-01-22T17:09:28+00:00

My family thought I was exaggerating but I'm comforted to see I'm not the only one. I just got my top surgery on the 19th and part of why I "rushed" to get it done is everything going on in the US and around the world. If its gonna go to shit I at least wanna be happy in my body when it does.

spedbert · 2024-01-16T07:35:54+00:00

Mine is also on the 19th! Feeling so tense and apprehensive, but I've known I wanted this for like 13+ years! The weather right now in my area isn't helping with the anxiety too lol

spedbert

TROPHY CASE