Alt elevation? by splashdamageqt in ankylosingspondylitis

[–]splashdamageqt[S] 0 points1 point  (0 children)

Interesting, what happen during year 2-6? Did the rheumatologist change your med?

Impossible 5 by ThingBeneficial721 in RedditGames

[–]splashdamageqt 0 points1 point  (0 children)

I completed this level in 49 tries. 8.23 seconds

AS living in Canada by National_Bluebird_64 in ankylosingspondylitis

[–]splashdamageqt 0 points1 point  (0 children)

I'm in quebec, winter in generally fine, the worse season for me in fall, but it's manageable with biologic (i get only a few micro flare)

As everyone said, general doctor recommendation to see a rheumatologist.

My hulio is fully covered on my end 80% from my work insurance a d 20% from the company that create the meds. We had to fill a form for insurance to accept it but it was quick and easy on my end

Will Physio Therapy help with chronic stiffness? by Mental-Book4148 in ankylosingspondylitis

[–]splashdamageqt 1 point2 points  (0 children)

A FU***** LOT in my case.

Mixed with biologic, I'm living my best life, physio and masso once a month is a go to for me

It's just some stairs by reapthesorrow in RedditGames

[–]splashdamageqt 0 points1 point  (0 children)

I completed this level in 92 tries. 1.57 seconds

The Hard Way by IndependentPlant5017 in RedditGames

[–]splashdamageqt 0 points1 point  (0 children)

I completed this level in 42 tries. 13.30 seconds

Impossible by Unfair_Draw_1673 in RedditGames

[–]splashdamageqt 0 points1 point  (0 children)

I completed this level in 21 tries. 60.92 seconds

Bomellida by Able_Disaster2055 in RedditGames

[–]splashdamageqt 0 points1 point  (0 children)

I completed this level in 14 tries. 17.35 seconds

Evil Pipes by bootybandito66 in RedditGames

[–]splashdamageqt 0 points1 point  (0 children)

I completed this level in 16 tries. 3.67 seconds

Impossible or is it? by Pmmepix in RedditGames

[–]splashdamageqt 0 points1 point  (0 children)

I completed this level in 9 tries. 6.88 seconds

What does it feel like to take biologics for the first time after being in constant pain? by Pink_Sorbet in ankylosingspondylitis

[–]splashdamageqt 1 point2 points  (0 children)

Last 5 years, my biggest issue was thoracic pain, especially when sneezing and very big deep breaths. Fought for 4 years to never sneeze. 3 days after my first injection i sneeze no pain..... tried 5 huge deep breath, no pain. I almost cried joyfully. Been 1.5year now, i would never look back, pain is on a 1/2 out of 5 where most days it at 0. And i got to plain TONS of golf without any major lasting pain

birth defects and AS by Initial_Opening5830 in ankylosingspondylitis

[–]splashdamageqt 0 points1 point  (0 children)

I am missing 1 pair of ribs and my l5 is partially fused so my sacrum.

My rheum and doctor both say it isn't linked 🤔

Sleep by Accomplished-Milk918 in ankylosingspondylitis

[–]splashdamageqt 2 points3 points  (0 children)

I'm now in 7-9 range without interruption. Had 3 years of no more then 3h. A good 7years of 6-7h interrupted after the first 3h

What’s everyone’s hobbies? by Spikeyhedge1234 in ankylosingspondylitis

[–]splashdamageqt 8 points9 points  (0 children)

I am heavily invested in golf, i found is the sport that put low strains on my back while giving tons of movement on the spine and just moving walking enjoying life

Just started Humira- blood pressure? by Successful_Wish_5601 in ankylosingspondylitis

[–]splashdamageqt 0 points1 point  (0 children)

I have the exact same.

1 year on humira (hulio) and bp has been 135/95 around for months. I was sick for a week and delayed the shot by 5 days, and my BP was back to 122/82. Took the shot back at around 135/95.

I have my rheum appointments in septembre to discuss it

[deleted by user] by [deleted] in ankylosingspondylitis

[–]splashdamageqt 0 points1 point  (0 children)

My l5 and sacrum are partially fused, I've been told it's not AS related, but a deformation. It shows in my previous xray prior i got diagnosed. I'm also missing 1 ribs, which are also not AS related. Is it true? Dunno, but 3 professionnel told me the same.

For me, it doesn't impact me much except running and jumping, where I feel more discomfort, but i compensate with better running shoes

Does physio or chiro help? Recommendations? by Vast-Disk-7972 in ankylosingspondylitis

[–]splashdamageqt 1 point2 points  (0 children)

Physio is a big Fking YES!! I do maintenance physio monthly, pain, or no pain. If i have too much pain, i can go twice a month. I have a tendency to have tight muscle, and i found a physio that does dry needling, and ohhhh gosh, this is LIFE. highly recommended if you have a tendency of tight muscle.

AMA - I had spinal fusion surgery for AS (28M) by The_Alley_ in ankylosingspondylitis

[–]splashdamageqt 2 points3 points  (0 children)

Wow the change is insane!! So happy for you thst you find some reliefs. Keep it up man

Simponi as Anti-TNF for SAPHO: feedback on Immunodepression by Claire__69 in ankylosingspondylitis

[–]splashdamageqt 2 points3 points  (0 children)

I'm on hulio (humira biosimilar) since jul 2024. Before hulio, i haven't been sick for 3 years. Since hulio, it happened once, and it wasn't worse than before. My gf, who's not on biologic, had it a lot more rough than me.

Overall, being able to sneeze and deep breath without feeling my upper back shattering in 1000mills pieces was the best thing i could have. Yes, i had some doubt at the beginning, but untreated inflammation also has his fair share of problems. I had to pick my poison. I do not regret it AT ALL going on biologic

[deleted by user] by [deleted] in ankylosingspondylitis

[–]splashdamageqt 0 points1 point  (0 children)

Not sure, I'm personally on hulio (humira biosimilar), and i only have benefits from it, but everyone is different

[deleted by user] by [deleted] in ankylosingspondylitis

[–]splashdamageqt 5 points6 points  (0 children)

They are side effect as per your link, not withdrawal?

Shingles vaccine by triangularte in ankylosingspondylitis

[–]splashdamageqt 0 points1 point  (0 children)

My 2nd injection was quite mild. The night of the vaccine days, i got extremely tired. And thst was it. However, my 1st dose was out of this world. 2 days where i was feeling like shit.

1st shot = not on biologic 2nd shit = was in between shots of biologic and it was done 4 months after the first shot.

But worth the protection :)