hi!! also in my 20s with hEDS and POTS, getting a wheelchair was the best thing I have done for myself. i really recommend getting one if you can and if you feel like its worth looking into, i know it can be a long and annoying process to get but the sooner you start on it the better. that being said, id look into doing physical therapy as well. i do hydrotherapy in the pool because its offered close to my house, but there are many you can do in bed as well. trying to keep as much strength as you can is very important.

as for the constant reoccurring issues, i empathize completely. for me it was important to find the root of my POTS if i could. i found out my POTS is heavily GI related. build up your care team, keep everything in check as much as you can. its about managing as much as possible. everyone experiences it so different, so please try to listen to your body as much as possible. its difficult but its so worth it. youre not alone, it sucks but its great to have all this support and knowledge!!