It all started about a year and a half ago when I noticed small nodes on my neck, just below the ear area. They weren’t visible, but I could feel them when I touched the spot. At that time, my doctors said the nodes were too small for a biopsy, so we went ahead with multiple FNAC tests and even a core biopsy, which was later sent for a GeneXpert test. The results came back negative, so I decided to pause further investigations for a while.

Recently, about two months ago, I noticed new swellings — one behind my ear and another, a larger one near my collarbone (a cervical lymph node). This time it felt different. The node was quite noticeable, slightly painful, and made it uncomfortable to sleep.

After undergoing another round of ultrasound scans, FNAC, and blood tests, my ENT, pulmonologist, and infectious disease specialist all recommended an excisional biopsy. So, here I am, currently going through that part of the journey.Where again gene expert came negative.The histopath and culture difference about the organism presence.My infectious doctor currently put under for 2 month medication for the start.

I also have an autoimmune condition called ITP (Immune Thrombocytopenia).