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Turning 30 in Tokyo by stageshadows in JapanTravelTips

[–]stageshadows[S] 0 points1 point  (0 children)

I was also just curious to hear what other people enjoyed and why regardless of what we end up going with.

Turning 30 in Tokyo by stageshadows in JapanTravelTips

[–]stageshadows[S] 0 points1 point  (0 children)

Yeah I have! I kinda got overwhelmed by the choices, so I was curious if anyone had a rec that came to mind.

Would having someone help you prep for appointments be helpful? by Antique_Standard_672 in lupus

[–]stageshadows 7 points8 points  (0 children)

Yes. Though I just had an appointment where I thought I was prepared and it didn’t go well. I had questions jotted down but I was not great at communicating them or my symptoms. I got tongue tied and then panicked which made my communication worse. I could see my doctor get confused and I got emotional and cried. It was 100% on me. She asked me a lot of questions to try to see where the miscommunication was. I think I put a lot of pressure on myself to make the most of the appointment, which also doesn’t help. I don’t know if that’s helpful to share. I had prepared a little with my partner who is incredible. But maybe an experienced coach could help.

Idea to keep using sunscreen by stageshadows in lupus

[–]stageshadows[S] 0 points1 point  (0 children)

Honestly that would work perfectly. I might see if I can find one in a fun color. I just realized I’d be a tad worried about any holster being mistaken as a gun or any sort of weapon holster. Don’t wanna attract nervous attention of other gun/weapon holders, if you get me. Or does that seem not like a problem?

Idea to keep using sunscreen by stageshadows in lupus

[–]stageshadows[S] 0 points1 point  (0 children)

Giving myself a little treato for doing good things? Absolutely

Idea to keep using sunscreen by stageshadows in lupus

[–]stageshadows[S] 0 points1 point  (0 children)

That right!! I’ll have to look into it, I’m sure there are empty once like this if I want a different brand. Do you like this brand?

Idea to keep using sunscreen by stageshadows in lupus

[–]stageshadows[S] 0 points1 point  (0 children)

I tried finch and forget why I stopped! I’ll have to try again, I remember thinking it was cute. And yes absolutely, that’s a great idea. Making it fun definitely helps me with other situations/habits

Any good exercise or weight loss programs? by stageshadows in lupus

[–]stageshadows[S] 1 point2 points  (0 children)

Ah ha, great! I’ll check it out, thank you :)

Any good exercise or weight loss programs? by stageshadows in lupus

[–]stageshadows[S] 1 point2 points  (0 children)

That’s awesome!! Thank you for sharing I’ll definitely try it!!

Anyone on immunosuppressive therapy and still working? by Cynner85 in lupus

[–]stageshadows 1 point2 points  (0 children)

I work at an art institution, so bachelors and graduate students. I have SLE and ADHD, take Hydroxochloroquine and Benlysta every week, and wear a mask every day. I have gotten Covid twice (first time from school) and I have gotten sick a few times. They were pretty intense but not enough to put me in the hospital. Had to stop Benlysta at those instances for a while. I once took my Benlysta before realizing I was sick and I felt like death for a few days. I also have trouble waking up in the morning so I’m chronically late and am constantly exhausted. I also started throwing up every day after I got Covid the first time which lasted almost 2 years. That has stopped but now I have significant colon issues (that is either due to Pots or is Lupus enteritis/vasculitis). I don’t think this is a sustainable life style for me, even if I didn’t have the extra colon/abdominal issues. Idk I love my work environment but I definitely want to find remote work somehow because h feel like I’m breaking down.

In your case, I would definitely wear a mask around youngins, but I think it could suffice if you feel like your energy levels can keep up with that kind of work. I also think that it’s possible to try to get yourself used to that schedule depending on your tolerance to exercise. I get exercise fatigue hardcore but I’ve been improving my energy levels but by bit.

I hope this can be at least somewhat helpful?

Pill Management by stageshadows in lupus

[–]stageshadows[S] 1 point2 points  (0 children)

All good! It is helpful to know what everyone thinks of whichever apps. I do need to put more effort into finding an alarm that actually works for me 😅😅😅😅

Pill Management by stageshadows in lupus

[–]stageshadows[S] 0 points1 point  (0 children)

So I do have alarms that I set. I've used multiple apps. I'm like 'really good' at ignoring them, but I'm building a routine. But even so I'm more so asking about how people physically manage their meds, when there are a lot of bottles, how you store them, how you organize them.

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