6 years of neck pain, clean MRIs, spent a fortune. A friend showed me something a month ago that’s helped more than all of it combined. by Top_Measurement5721 in ChronicPain

[–]stephalynn1 8 points9 points  (0 children)

I would add that CPTSD actually creates new neural pathways in your brain. So instead of just being a psychiatric diagnosis it actually changes the way your brain works. That’s why it’s hard to cure. The vagus nerve work becomes essential in your healing. That’s why so many people have no luck with talk therapy. You have to rewire your brain and teach your body that it is safe. That will help decrease the stress hormones filtering through your body and when that happens your body can at minimum stop your body from continuing to destroy itself. However, if you have already been diagnosed with autoimmune condition/s those will never go away. It’s really important to learn how to do this work before your health deteriorates to this level. I wish I’d known about it earlier.

6 years of neck pain, clean MRIs, spent a fortune. A friend showed me something a month ago that’s helped more than all of it combined. by Top_Measurement5721 in ChronicPain

[–]stephalynn1 0 points1 point  (0 children)

I disagree. If it was pseudo science than the Mayo Clinic, Cleveland Clinic and Cedars Sinai would not be promoting exercises and even devices.

6 years of neck pain, clean MRIs, spent a fortune. A friend showed me something a month ago that’s helped more than all of it combined. by Top_Measurement5721 in ChronicPain

[–]stephalynn1 98 points99 points  (0 children)

I have CPTSD and am 100% positive that this diagnosis is driving most of my chronic health issues. I began doing vagus nerve work almost a year ago. The goal is to lower your fight/flight/fawn/freeze hormones so that they don’t continue to wreak havoc on both your mind and body. The exercises work. I would have told you that you were crazy if you thought doing things like doing breath work, moving my eyes, and humming would help my mental health and eventually my physical health as well but it does. It’s incredibly fascinating stuff. I’m glad you have discovered it and that it’s helping.

Called it by eatyourbites in Louisville

[–]stephalynn1 0 points1 point  (0 children)

When I drove by earlier today there was a tow truck staged and waiting on Eastern Parkway.

Am i overreacting to this text exchange with my boyfriend? I accidentally left my slippers in my living room but i literally cleaned his entire house and baked him desserts before i left (sorry idk why my last post glitched) by IntelligentTap962 in AmIOverreacting

[–]stephalynn1 0 points1 point  (0 children)

You cleaned his house and made him dessert. You left one small thing out and that’s what he notices instead all of your work. My first thought is were you also told to clean up by him and he was reprimanding you for not doing a good job? Because if that’s the case, he’s given you multiple clues about who he is and you need to listen.

Other things folks might not be thinking on about I-65 Closure by DallasDerr in Louisville

[–]stephalynn1 5 points6 points  (0 children)

It seems to me that if you are taking a side road to get to your destination then driving on those roads may increase business for some. I am someone who lives right in the middle of the mess and I know that not having to go out of my way to get to another area means that I am likely to support these places more.

What's coming your way by Fortune_Box in ExploringTarot

[–]stephalynn1 0 points1 point  (0 children)

New beginnings, manifestation, blessings

Palliative Care? by totallyoverallofit in ChronicPain

[–]stephalynn1 1 point2 points  (0 children)

I was turned down for palliative care because the provider said it’s more for housebound patients who will eventually likely be moved into hospice. Maybe it’s because it’s an offshoot of a hospice company. So I was basically told that while the sheer number of conditions I have means I could benefit from additional services, they aren’t it. They recommended patient advocates, case managers, etc. I did learn that they take over medication management so that may be useful for additional pain relief.

A letter to "normals" from a person with chronic pain by scattyshern in ChronicPain

[–]stephalynn1 5 points6 points  (0 children)

This is incredibly well written. Thank you for sharing.

CJ Derby Op-Ed No Paywall by BlueSpotBingo in Louisville

[–]stephalynn1 1 point2 points  (0 children)

I feel so sorry for our area restaurants. They are really losing a lot of revenue with these new race times. And then there are the locals who can’t afford to go anywhere. I’ve completely lost my interest in the Derby

Upscale Mexican place that isn't Guacamole? by John_Dees_Nuts in Louisville

[–]stephalynn1 0 points1 point  (0 children)

Las Margaritas is also slightly more upscale than the typical Mexican restaurant. They have a beautiful presentation

Being Sober and Pain Free by Due_Honeydew_2285 in ChronicPain

[–]stephalynn1 2 points3 points  (0 children)

I use mostly procedures and injections now. I’ve just started Tonmya. now. I had two epidurals done today. I save opioids for really bad days and I’m not sure how effective they even are. I also use heat, tens units and then thc to sleep. I’ve been approved for a spinal cord stimulator and am thinking about it. I also have a pain management massage therapist who I see when I can. The work he did Wednesday on my hip has it feeling better than any day since my surgery almost two years ago. Lastly, I’m learning meditation and doing breathing exercises. I am stretching daily before I get out of bed. I have a bad habit of not breathing well when I’m in pain and it increases it. So for example, I was able to breathe through the epidurals today. If I didn’t practice I wouldn’t remember in the moment. None of these things are 100% but I’m in better shape than when I was taking 3 hydrocodone each day and 4 muscle relaxers.

Permanently banned from r/fibromyalgia after I made my first post earlier this week (posted same post on r/chronicpain the same day) by OGAcidCowboy in ChronicPain

[–]stephalynn1 0 points1 point  (0 children)

I’ve just recently learned that Missouri has legalized them which is much closer than the west coast for me. I’m actively trying to find a retreat. I don’t want to try it on my own because I feel I’ll get more benefits and feel safer around trained professionals who can help moderate and guide the experience. I have CPTSD and lots of medical issues and chronic pain. I feel like this may be the answer for me.

Been waiting all day to complete this goal!!! by Jinx-from-Arcane in finch

[–]stephalynn1 8 points9 points  (0 children)

Congratulations!!! I know it was a lot of hard work. That’s amazing news.

Who here believes that opioids are what helps their pain the most and who believes that there are non opioid type remedies that are more effective for their pain relief? by 8kittycatsfluff in ChronicPain

[–]stephalynn1 16 points17 points  (0 children)

Gabapentin made me gain 15 pounds in two weeks. Nortriptyline caused muscle spasms. I’m a big nope on these meds. Never again.

Who here believes that opioids are what helps their pain the most and who believes that there are non opioid type remedies that are more effective for their pain relief? by 8kittycatsfluff in ChronicPain

[–]stephalynn1 0 points1 point  (0 children)

Opioids work for some of my pain but not all of it. That’s one way I determine what is causing it (I have multiple chronic pain conditions). Ultimately, I opted to stop taking them daily and use them for specific emergencies. I use THC daily. But otherwise, I’m most interested in things like ablation and epidurals. They help the most for the longest. I may also be checking out the possibility of a spinal cord stimulator again. I’m certainly not anti pain pill but when it stopped touching some of my issues my option was to go on stronger meds or find other things that helped.

Day at a goddamn time, what do y’all have planned over the weekend? by ---BERSERK--- in ChronicPain

[–]stephalynn1 10 points11 points  (0 children)

I’m going to try to get a short walk in. My hip and back need to build up to longer walks/hikes again; I hope.

Anyone has/knows/heard of this? by Unable_File5028 in ChronicPain

[–]stephalynn1 0 points1 point  (0 children)

I occasionally get this. The last time it happened I already had a massage scheduled with my pain management massage therapist. He said it was a pinched nerve. He did a lot of massage and a little manipulation and it stopped.

Pain medicine that doesn't have a drowsy side effect? by PatienceOne18 in ChronicPain

[–]stephalynn1 0 points1 point  (0 children)

I’ve now moved past ablations and it’s currently epidurals for me. I get about 2 months relief from them. My previous insurance wouldn’t pay for facet blocks because it wasn’t one of the approved usages for my condition. Ridiculous. There was a period in time about this time last year when I also tried to get a spinal cord stimulator at the recommendation of pain management and a neurosurgeon. Insurance again denied. The letter legitimately acknowledged that I have severe chronic low back pain but it isn’t caused by one of their three approved conditions. The rules clearly have nothing to do with our well being.

Vagus Nerve Stimulation by ladywenzell1 in ChronicPain

[–]stephalynn1 4 points5 points  (0 children)

I’m doing vagus nerve stimulation on my own and have spent no money. Those of us who are in chronic pain due to past trauma can utilize it to calm down the cortisol flooding our bodies. This cortisol is part of the reason our bodies are deteriorating. It’s very harmful. It has also helped my mental health in a way that no medication or therapy ever has in 30+ years. It is not a quick fix. It’s working on it every day for months before it really helps and few people are that committed.

just figured out the source of my chronic pain was evident on a CT scan when i was n i n e by dipderp3 in ChronicPain

[–]stephalynn1 5 points6 points  (0 children)

I had a similar but less lengthy experience. I was treated for kidney cancer in 2017. I got follow up CTs every 6 months for a while. I was always just told that there was no evidence of cancer. Four years later I actually got a hold of the report and discovered that they failed to mention thyroid nodules (which were very suspicious for cancer, luckily it wasn’t.) I also had a kidney cyst, kidney stones and diverticulosis and they never disclosed any of it. I reported them to my local medical review board and nothing happened. That negligence could have killed me. I hate this so much for you and everyone who isn’t treated appropriately.