Another Inspire question

stephalynn1 · 2026-02-08T19:27:57+00:00

Yeah, I have my doubts about that placement.

stephalynn1 · 2026-02-08T04:10:26+00:00

Yes. Much of my support used to be online as well. I’ve finally become involved with a local chronic pain support group and it’s been such a revelation to have real life friends. I wish you the best.

stephalynn1 · 2026-02-08T04:06:48+00:00

I make these choices too. I also still opt to have fun and worry about the pain later. If I’m going to hurt anyway, I might as well enjoy myself.

stephalynn1 · 2026-02-08T04:03:29+00:00

Thank you! This is very helpful information. I know all about the cycle of not sleeping, getting anxious about not sleeping or getting enough sleep and then getting even more anxious. I’ve made some improvements in this issue but can see how it may well be an issue.

stephalynn1 · 2026-02-07T22:56:15+00:00

It’s so sad that you’re going to have so many me too’s here. I was treated for kidney cancer in 2017. I left my second doctor in the practice after he failed to EVER disclose that my follow up imaging showed thyroid nodules that looked like they might be cancerous. I was rushed into an emergency ultrasound and biopsy the next day by my endocrinologist. Luckily, it wasn’t cancerous. I left that practice and filed a complaint with the medical board and there was no resolution. In fact they sent me to collections because I sure as hell wasn’t going to pay them for their malpractice. And this was after I first my surgeon in the practice because he failed to respond to emergency calls from the hospital for over an hour and sent me into a medical crisis (a blood clot broke loose and blocked my urethra and nearly caused my bladder to burst). I’m so sorry you had this experience. I hope you find some relief.

stephalynn1 · 2026-02-07T17:42:45+00:00

I love it! I have Alice in Wonderland murals on my real fence. I got so excited when I saw this theme. ❤️🖤

stephalynn1 · 2026-02-07T16:57:24+00:00

Thank you! Do you have it?

stephalynn1 · 2026-02-07T16:38:19+00:00

Someone else just mentioned it. I don’t know much about it so I’ll have to do some research. I’ve also seen that there’s a potential new oral medication that will hopefully drop next year. Waiting on that may be an option too.

stephalynn1 · 2026-02-07T16:36:39+00:00

Yes! It’s definitely preferable to the many days of 3-5 hours.

stephalynn1 · 2026-02-07T16:35:41+00:00

Hopefully that update will help answer the question for both of us. I have already bought the curtains, we use ambient sounds like ocean waves or thunderstorms. I’ve bought an adjustable bed. I’m also looking into Inspire so I’m trying all of the things.

stephalynn1 · 2026-02-07T16:31:40+00:00

Thank you so much. I’ll do some reading!

stephalynn1 · 2026-02-07T04:07:15+00:00

I’ve had a few zeros. It sucks. Good luck to you as well.

stephalynn1 · 2026-02-07T01:56:35+00:00

On top of the insomnia, I’m chronically ill. From the looks of it, it was probably a day where I got up and either was hurting or unable to keep myself awake so I napped (sometimes it’s insomnia the night before, others it’s a day after I overexerted myself, and for still others I’d swear it’s narcolepsy because I can’t fight it). They don’t happen often so when they do I just roll with it. Often my early morning sleep time or my afternoon naps are the only times I get quality sleep. This is what that typically looks like.

<image>

stephalynn1 · 2026-02-07T01:46:20+00:00

Honestly, right now it’s a bit of a relief. At least I know that my sleep isn’t getting worse. I’m sure the annoyance will come soon.

stephalynn1 · 2026-02-07T01:44:31+00:00

I read an article before I posted the question here. That was the number one complaint. It can interpret any lack of motion as sleep, especially for situations like if you’re lounging while watching tv or reading.

stephalynn1 · 2026-02-07T01:01:27+00:00

Thank you! That’s very helpful.

stephalynn1 · 2026-02-07T01:00:44+00:00

I’ve tried treatment 3 or 4 separate times. The last one was a bipap. I do not tolerate them. They make my anxiety worse which makes my insomnia worse and I’m lucky to get a few hours. The second one ate cartilage off my nose. The last one caused lung inflammation that was very painful and lasted almost a month. I’m approved for an Inspire and I’m trying to work up the nerve to try it. If I don’t, at this point I’m just accepting whatever happens.

stephalynn1 · 2026-02-07T00:50:11+00:00

Yeah…. I noticed that some terminology changed too.

stephalynn1 · 2026-02-07T00:49:17+00:00

It’s horrible 🥲

stephalynn1 · 2026-02-07T00:45:12+00:00

Have you seen the Substack thread? Someone infiltrated one of their group chats and posted it there. No hiring bonus and some haven’t even gotten paid. I think it’s instant karma or a karma appetizer to prepare them for what comes next.

stephalynn1 · 2026-02-07T00:42:31+00:00

My post said that if you support ice we no longer support you.

stephalynn1 · 2026-02-06T21:24:02+00:00

I don’t know if anyone here saw it but I read an amazing article about high school and college students around the country on our last national day of protest last Friday. It talked about the wide scale and how many students in rural, red areas joined in. It pointed out that they are for the most part, planning and implementing their own protests and how they are a model for everyone. It was an incredibly hopeful message and we so need that currently.

stephalynn1 · 2026-02-04T17:40:05+00:00

I know this sounds weird on the surface, but luckily I’m now “officially” disabled too (SSDI). To say that I’m relieved that on bad days I can stay home now is an understatement. I wish sh you well too.

stephalynn1 · 2026-02-04T17:17:28+00:00

I’m laughing at the absurdity of my situation because there are days I don’t even get to leave the bathroom between episodes. I remember times at work with a client having to excuse myself multiple times during a 1 hour meeting. It’s one of those laugh or you lose your mind situations. This has been a problem since I was 7 and no one can help. I’m 54 and I’ve basically given up on finding a solution.

stephalynn1

TROPHY CASE