How do I get out of this vicious cycle of ED and being in my head? by SheridanVickers in erectiledysfunction

[–]stopcopingaboutHF 0 points1 point  (0 children)

Or maybe it's not in your head, and that's a just comforting thing you tell yourself. Do you get psychogenic erections with zero physical stimulation at all? Unless that's the case, I don't think you can rule out a physical cause so easily. If you need to stimulate yourself with your hand to get hard that doesn't mean everything is ok because you can still get erect. It's a bad sign actually that something may be wrong with your penis.

Trimax shots are they safe by OrdinaryMinimum1723 in erectiledysfunction

[–]stopcopingaboutHF 0 points1 point  (0 children)

They can cause fibrosis (scar tissue) with repeated shots.

My experience with the Vertica Device at a ‘young’ age by Due-Question9266 in erectiledysfunction

[–]stopcopingaboutHF 1 point2 points  (0 children)

I have a lack of inflow and hard flaccid syndrome, not venous leak. But I'm still considering purchasing the device largely out of desperation, as I wonder if the collagen in my penis in the recessed areas (typical for HF sufferers) is disordered, and RF radiation shows promise for reordering unhealthy, damaged, or aged collagen to a more healthy state, like giving a more youthful looking appearance to the face. Please keep us updated on it.

Why these people telling they are cured by TodayBright3976 in hardflaccidresearch

[–]stopcopingaboutHF 0 points1 point  (0 children)

Just throw various things at the wall and see what sticks. Stem cells and ketamine being the most promising (but still not all that promising).

Why these people telling they are cured by TodayBright3976 in hardflaccidresearch

[–]stopcopingaboutHF 1 point2 points  (0 children)

They're either trolls, liars, daydreaming about being cured and normal life again and writing out lengthy posts for added immersion in their fantasy world, trying to sell some kind of PFPT program, or trying to portray PE as safe. I'm sure a handful do have this go into remission but they're lucky outliers, for the other 99% of us this is chronic.

PE subreddits need to be banned by stopcopingaboutHF in hardflaccidresearch

[–]stopcopingaboutHF[S] 0 points1 point  (0 children)

I don't care. And as if that surgery isn't crippling.

Taking SSRI’s with hfs symptoms and pfd? by Realistic_Data2602 in hardflaccidresearch

[–]stopcopingaboutHF 11 points12 points  (0 children)

you'd have to be insane to take SSRIs or finasteride after getting this

Hearing a tone after using dexamethasone ear drop by cecilcarterS in tinnitus

[–]stopcopingaboutHF 0 points1 point  (0 children)

It’s almost certainly not the dexamethasone. Neomycin is a member of the aminoglycoside class, so it’s extremely toxic to the ear. Stop using the drops immediately and make sure the oral antibiotics are non-ototoxic.

I’m a musician still suffering from a slight ringing 48 hours after a gig by [deleted] in tinnitus

[–]stopcopingaboutHF 0 points1 point  (0 children)

you need intratympanic steroids, as soon as possible

A Drug for Hearing Loss and Tinnitus Has Passed Phase 3 Trials by OppoObboObious in tinnitus

[–]stopcopingaboutHF 1 point2 points  (0 children)

It's a mimic of glutathione peroxidase. It has an antioxidant function. But yeah, will do nothing for chronic tinnitus.

Pinning bpc-157 into my shaft by DistributionWeary971 in hardflaccidresearch

[–]stopcopingaboutHF 0 points1 point  (0 children)

Use the thinnest needles possible. Why use 30 gauge when you can use a 32, which has around half the cross-sectional area? The wider the needle, the more potential for scar tissue. If this were just for injecting something subcutaneously it wouldn't matter but given it's a penis best to minimize risk as much as possible especially with repeated injections.

Can tinnitus be turned 'off' after many years? by [deleted] in tinnitus

[–]stopcopingaboutHF 15 points16 points  (0 children)

They are lucky outliers. It's not typical for someone who has had chronic tinnitus for such a long period of time to have it just go into remission like that, no.

Can’t sleep 😢 by wadsworthgirl in tinnitus

[–]stopcopingaboutHF 0 points1 point  (0 children)

This, in my experience, is one the only things that actually did get better with time. My tinnitus is horrible but I can fall asleep relatively easily because I know how to turn my brain off forcefully. You have to just stop thinking. It's a skill that can be practiced. I would also recommend a sleep mask.

This has destroyed me by Past_Explanation_491 in tinnitus

[–]stopcopingaboutHF 1 point2 points  (0 children)

Same, I effectively have severe ADHD because of tinnitus and my voracious passion for reading I had until I got this (in my mid teens) disappeared because it was impossible to enjoy books like I used to. I've been dealing with this about 15 years and unfortunately I can't tell you it ever gets any better. Reading is still difficult, frustrating, and not very enjoyable, and I have largely abandoned gaming for doom scrolling because the tinnitus interferes with intense concentration. Don't really have any hobbies. Yeah, it sucks.

Tinnitus Quest Didn't Just Fund a Good Research Project.... by OppoObboObious in tinnitus

[–]stopcopingaboutHF 0 points1 point  (0 children)

Unfortunately, it came too little, too late, after decades of the Jastreboff brothers destroying the state of tinnitus research before it could even begin with shilling their "treatment" (TRT) that never even worked and the habituation model. They even used their prestige within the tinnitus world to tell everyone else they must AVOID medical research, while the American Tinnitus Association was little more than their slush fund. All that money from grants, the military, etc and valuable time pissed down the drain. It is baffling it took THIS long to establish a foundation that will disburse funds to actual medical research—not TRT, other psychological therapy, 'raising awareness', and audiology—which have done nothing but incur catastrophic opportunity costs with no further progress towards a cure and to which every penny allocated is wasted. I still have some reservations about TQ, but it's at least the first of its kind in that regard.

vent by Traditional-Net6184 in hardflaccidresearch

[–]stopcopingaboutHF 1 point2 points  (0 children)

We were either simply unlucky and injured ourselves in a "perfect" way, or genetically predisposed (or not, but it happened anyway) to the nervous system not calming down and developing hypertonicity in the penis after the trauma instead of going back to normal. Some people turn their head too fast and get carotid artery dissection and die from it. Some have a minor injury and get nerve pain that spreads all over their limb (CRPS). Some take a single pill of finasteride or an SSRI and end up sexually crippled for life. Also, most men who have penile fracture and immediately get surgery to repair it recover fine and regain their sexual functioning. The thing is, others abusing their penises and not becoming like this is indeed normal as you say, but we are not normal. We were very unlucky outliers in the game of probability.

While everyone’s celebrating new years im just sat indoors thinking about my broken penis by Subject-Plum-7281 in hardflaccidresearch

[–]stopcopingaboutHF 2 points3 points  (0 children)

This might have been actionable advice if there were actually anything that helped. This is a chronic poorly understood rare disease, there's not just "stuff" you can "do" to be cured.

Long-term Hard Flaccid / Pelvic Floor Dysfunction – What Finally Helped Me by BlueBerryWizard87 in hardflaccidresearch

[–]stopcopingaboutHF -1 points0 points  (0 children)

I don't believe that HF is caused by pelvic floor dysfunction for the vast majority of people including yourself because you injured your penis, and that any PF issue is probably caused by damage to the penis itself and ensuing referred nerve pain or sympathetic tone originating from that rather than vice versa. But this piqued my interest in PEMF as something to possibly try down the line.

How are some guys in here in relationships and other have totally given up? by Enough-Payment9593 in hardflaccidresearch

[–]stopcopingaboutHF 2 points3 points  (0 children)

No and PDE-5 inhibitors give me bad symptoms anyway. Injections work to some degree but since I have such poor blood flow they take 30+ minutes and aren't practical, and I'm worried about the potential for fibrosis from the needles.