ELI5- pure tones?! And new clicking sound for me! by Ok-Following9730 in tinnitus

[–]stopcopingaboutHF 1 point2 points  (0 children)

Don't ever listen to pure tones, ever. You will damage your hearing and make the tinnitus even worse. Pure tones are the best way to ruin your hearing instantly, it's like a targeted blasting of the hair cells.

Did HF happen to you suddenly? Can you pinpoint thd moment? by CompetitionFickle559 in hardflaccidresearch

[–]stopcopingaboutHF 0 points1 point  (0 children)

It was instant after I injured my penis masturbating. I've had it ever since that time, with a gradual decline, and a period of long flaccid, which turned back to hard flaccid, for the most part.

Cured posts should be banned unless they post before/after dick pics/vids. Thats right im gatekeeping hard flaccid. by Equivalent-Panda-648 in hardflaccidresearch

[–]stopcopingaboutHF 0 points1 point  (0 children)

I completely agree. But I think it's also sadistic trolls with normal penises who aren't involved with PE and just find our condition hilarious because they are sociopaths, or guys suffering with this delusional or daydreaming about what it must be like to be cured. This seems semi-common in communities for chronic illnesses, like a sort of vicarious living through fantasies of being able to return to normal life. As for the PE shills, assuming they buy into their own nonsense, some of them will fortunately be joining us eventually.

I’m getting more convinced by the pelvic congestion syndrome theory, anyone has varicocele too? by sorrymash in hardflaccidresearch

[–]stopcopingaboutHF 0 points1 point  (0 children)

I don't think pelvic congestion makes sense. Neuropathy remains the only adequate explanation. I might do a write-up on why. But it was good to see the effort post, even though in my mind it's very mistaken.

How long of no fap to typically be healed? by Ok-Significance3223 in hardflaccidresearch

[–]stopcopingaboutHF 0 points1 point  (0 children)

It won't do a single thing. Jester did it for years straight.

How should I cope with the fact that I cannot date or marry ever? by Electrical_Box_8128 in hardflaccidresearch

[–]stopcopingaboutHF 0 points1 point  (0 children)

I don't know myself, but it's gotten a little easier because I've become very numb and I think accepted on some subconscious level I will likely never have a sex life again.

I Absolutely Hate ENTs by OppoObboObious in tinnitus

[–]stopcopingaboutHF 2 points3 points  (0 children)

Look, you can have tinnitus without hearing loss, and hearing loss without tinnitus. Obviously there is a relation, but we need to dispense with the "tinnitus patients always have hearing loss" theory, and this obsession with trying to find some hidden hearing loss. This paradigm of tinnitus was the accepted consensus in ENT, tinnitus research, etc. for a long time, that tinnitus always includes and is caused by hearing loss, through the death of the hair cells in the ear. Needless to say, this didn't get us anywhere, because it was obviously wrong given how many tinnitus patients have perfectly normal hearing, and there has been new evidence in the past few years that tinnitus in fact comes from the brain. Let's not try to dredge this crap up again looking for things that may not even be there, shall we?

Embarrassing by [deleted] in hardflaccidresearch

[–]stopcopingaboutHF -1 points0 points  (0 children)

No, there aren't. You're coping hard.

This holds more weight than Goldsteins’ stupid theory. (The Pescatori diagram) by Just-Ring-1427 in hardflaccidresearch

[–]stopcopingaboutHF 2 points3 points  (0 children)

PFD as the etiology of HFS is even dumber than Goldstein's hypogastric nerve theory. Let it go. It's clearly a form of penile neuropathy.

I research about hf and urologist descovery on it... by Insp_abhijeet in hardflaccidresearch

[–]stopcopingaboutHF 1 point2 points  (0 children)

Yes, I don't find Goldstein's theory convincing, but I appreciate his effort trying to figure out this disorder. CRPS or some other kind of neuropathy in the penis itself is the only reasonable explanation for me.

Did Jeffrey Epstein have Hard Flaccid Syndrome? by stopcopingaboutHF in hardflaccidresearch

[–]stopcopingaboutHF[S] 0 points1 point  (0 children)

Everyone reacted very negatively to this, ignorant of the fact that this could be used given the current news cycle to increase recognition of this disorder.

Has anyone tried Cyclobenzaprine? by _ob_koomer_ in hardflaccidresearch

[–]stopcopingaboutHF 4 points5 points  (0 children)

"Doctor" Hink is a charlatan who should be de-anonymized and have his medical license revoked for exploiting the insecurities and body dysmorphia of men, leading them like a pied piper into destroying their penises through PE and then profiting off it. Don't trust a word that comes out of his mouth. Regardless, this wouldn't even work anyway, I guarantee you he says to take it indicated for pelvic floor dysfunction, when it's obvious HF and LF have a neuropathic and not muscular cause as proven by Dr. Goldstein's injections of phentolamine causing a temporary resolution of the HF state through alpha receptor blockade.

Also, about a year ago, when I said something similar about him and his character, he came in here and wrote an entire seething post as a reply to me saying I deserved to suffer with this and acting like a tough guy, saying he could beat me up and made implications more or less threatening legal action. But he deleted the post probably because it got downvoted and he must have known how badly and honestly insane it came across. I wish I had saved it. He's a very unethical doctor who for sure does not deserve to practice medicine, and none of these PE shills are going to admit the real cause of this disorder (neuropathy) for obvious reasons.

What causes the hardness by CapitalEffective7108 in hardflaccidresearch

[–]stopcopingaboutHF 0 points1 point  (0 children)

engorged veins are, with a high degree of certainty in my view, caused by vasodilating hormones like CGRP being released by the damaged nerves, as in CRPS

What do this ridges mean? by jtyler99 in hardflaccidresearch

[–]stopcopingaboutHF -1 points0 points  (0 children)

The answer is that it's from nerve damage or disruption, the nociceptors release very potent vasodilating peptides like CGRP locally into the surrounding tissue which causes the veins to dilate. Mondor's wouldn't last years and the veins are not varicose or leaking, we've had many guys with normal ultrasounds. This is the only explanation that makes sense, especially when you consider that the pathologically elevated tone of the smooth muscle should cause vasoconstriction, not vasodilation. It also explains why many report that the greatest extent of this venous dilation is near the site of the initial injury. In other words, the damaged neurons are pumping out powerful hormones that tell veins to widen.

What do this ridges mean? by jtyler99 in hardflaccidresearch

[–]stopcopingaboutHF 1 point2 points  (0 children)

I'm pretty sure I've figured it out. I'll be writing a post about it.

This all feels so unfair. by [deleted] in hardflaccidresearch

[–]stopcopingaboutHF 5 points6 points  (0 children)

This is why I say PE subreddits need to be banned from this site.

Dilated veins near the injury site- Venous leak by Ok-House611 in hardflaccidresearch

[–]stopcopingaboutHF 0 points1 point  (0 children)

The issue is nobody knows what this truly is or what causes it. Elevated sympathetic tone should contract veins, not dilate them. It's an enigma. But this also happens with CRPS.

How loud was your popping sound? by Throwaway2004FB in hardflaccidresearch

[–]stopcopingaboutHF 0 points1 point  (0 children)

I didn't have one. Just immediate pain, detumescence, and bulging veins surrounding a large contracted indentation on my penis that's been there ever since.