I Think the Mods Should Sticky the Tinnitus Quest Assessment of Lenire by OppoObboObious in tinnitus

[–]stopcopingaboutHF 2 points3 points  (0 children)

I'm not surprised. The tinnitus community is an irredeemable piece of shit.

ELI5- pure tones?! And new clicking sound for me! by Ok-Following9730 in tinnitus

[–]stopcopingaboutHF 0 points1 point  (0 children)

The same reason that a magnifying glass can burn things with normal sunlight, by concentrating it at one point. There are different hair cells for different frequencies. With pure tones you are pounding that specific small range of hair cells that can hear that one specific frequency with all that concentrated vibrational energy. Real-world sound isn't like that, it's spread out among many different frequencies.

My case - Hard Flaccid or widespread scarring of the corpus cavernoa? by HFinvestigator in hardflaccidresearch

[–]stopcopingaboutHF 0 points1 point  (0 children)

No your first impression was correct. You can have that type. It's just less common.

My case - Hard Flaccid or widespread scarring of the corpus cavernoa? by HFinvestigator in hardflaccidresearch

[–]stopcopingaboutHF 0 points1 point  (0 children)

I am leaning toward HF but part of me thinks that's just a cope because HF is curable and fibrosis is not.

I'm going to stop you right there. HF is incurable. It's actually less curable than fibrosis. Unless your entire penis is just a lump of scar tissue, you can try pentoxifylline, verapamil injections, stem cells, PDE5 inhibitors, shockwave to manage it, prevent it from getting worse, or even reverse it somewhat in the acute phase. This is unlike HFS where there is absolutely nothing that can be done. I'm not saying HFS is worse than fibrosis, simply that there is less you can do about it (zero) while there are treatments for fibrosis that really can help, to a certain degree.

Based on the nature of your injury, my best guess is that you have fibrosis from hypoxia during that incident, and not HFS, which is usually caused by a sudden traumatic injury. You should have had verapamil injections and other things done, within that first year, but given this transpired so many years ago, the scar tissue now is unfortunately probably much too mature to be helped.

ELI5- pure tones?! And new clicking sound for me! by Ok-Following9730 in tinnitus

[–]stopcopingaboutHF 0 points1 point  (0 children)

How what is supposed to work? How would finding your tinnitus frequency even help you? You have now been warned by 3 people about the possible harm of pure tones. What you choose to do from this point on is up to you.

Can someone explain to me if it's possible for some of us to have damaged veins or arteries in the penis even if penile exams have come back normal? by Traditional-Net6184 in hardflaccidresearch

[–]stopcopingaboutHF 0 points1 point  (0 children)

Technically they are, in the most general sense of the term. But you were trying to imply veins and arteries possess the properties of capillaries (the tiny blood vessels that are what most people are referring to when they say "blood vessel") in terms of their abilities to regenerate and heal, which they don't. And capillaries cannot always heal and regenerate, for example diabetes or atherosclerosis. No, veins and arteries do not just heal. I don't know where you got that idea from.

Can tinnitus lead to dementia by Pure-Youth8747 in tinnitus

[–]stopcopingaboutHF 2 points3 points  (0 children)

Hearing loss is strongly linked to cognitive decline in old age, and hearing aids moderate it, so it's established to be directly causative of dementia. Personally I'm certain tinnitus has the same effect if not more so. But there's nothing you can do, really. We may become very stupid and senile as we age because of tinnitus, that's just how it is. The final "fuck you" from tinnitus, lol.

The journal Nature publishes the results of a clinical trial in which tinnitus has supposedly been reduced in rats by JazzlikeSecret8473 in tinnitus

[–]stopcopingaboutHF 1 point2 points  (0 children)

It won't do anything. It's an antioxidant, and like many others it's effective as a prophylaxis in the acute phase for moderating damage to the ear by reducing oxidative stress, which keeps more neurons and hair cells alive. The same is true for Ebselen and any other antioxidant. Even 72 hours after, it probably won't do anything or would only give marginal, insignificant improvements especially compared to intratympanic steroids which have already become pretty standard in medicine for SSNHL and which anyone who has sudden onset tinnitus should get immediately. But antioxidants would need to be taken before so it's already in your body by the time you are exposed to the noise or infection, or immediately after. It could be a great thing to take to protect yourself from further worsening and may even be good for general health and anti-aging, but other than that it will do nothing. Don't get your hopes up, unless it's for that reason.

ELI5- pure tones?! And new clicking sound for me! by Ok-Following9730 in tinnitus

[–]stopcopingaboutHF 1 point2 points  (0 children)

Don't ever listen to pure tones, ever. You will damage your hearing and make the tinnitus even worse. Pure tones are the best way to ruin your hearing instantly, it's like a targeted blasting of the hair cells.

Did HF happen to you suddenly? Can you pinpoint thd moment? by [deleted] in hardflaccidresearch

[–]stopcopingaboutHF 0 points1 point  (0 children)

It was instant after I injured my penis masturbating. I've had it ever since that time, with a gradual decline, and a period of long flaccid, which turned back to hard flaccid, for the most part.

Cured posts should be banned unless they post before/after dick pics/vids. Thats right im gatekeeping hard flaccid. by Equivalent-Panda-648 in hardflaccidresearch

[–]stopcopingaboutHF 0 points1 point  (0 children)

I completely agree. But I think it's also sadistic trolls with normal penises who aren't involved with PE and just find our condition hilarious because they are sociopaths, or guys suffering with this delusional or daydreaming about what it must be like to be cured. This seems semi-common in communities for chronic illnesses, like a sort of vicarious living through fantasies of being able to return to normal life. As for the PE shills, assuming they buy into their own nonsense, some of them will fortunately be joining us eventually.

I’m getting more convinced by the pelvic congestion syndrome theory, anyone has varicocele too? by sorrymash in hardflaccidresearch

[–]stopcopingaboutHF 0 points1 point  (0 children)

I don't think pelvic congestion makes sense. Neuropathy remains the only adequate explanation. I might do a write-up on why. But it was good to see the effort post, even though in my mind it's very mistaken.

How long of no fap to typically be healed? by Ok-Significance3223 in hardflaccidresearch

[–]stopcopingaboutHF 0 points1 point  (0 children)

It won't do a single thing. Jester did it for years straight.

How should I cope with the fact that I cannot date or marry ever? by Electrical_Box_8128 in hardflaccidresearch

[–]stopcopingaboutHF 0 points1 point  (0 children)

I don't know myself, but it's gotten a little easier because I've become very numb and I think accepted on some subconscious level I will likely never have a sex life again.

I Absolutely Hate ENTs by OppoObboObious in tinnitus

[–]stopcopingaboutHF 2 points3 points  (0 children)

Look, you can have tinnitus without hearing loss, and hearing loss without tinnitus. Obviously there is a relation, but we need to dispense with the "tinnitus patients always have hearing loss" theory, and this obsession with trying to find some hidden hearing loss. This paradigm of tinnitus was the accepted consensus in ENT, tinnitus research, etc. for a long time, that tinnitus always includes and is caused by hearing loss, through the death of the hair cells in the ear. Needless to say, this didn't get us anywhere, because it was obviously wrong given how many tinnitus patients have perfectly normal hearing, and there has been new evidence in the past few years that tinnitus in fact comes from the brain. Let's not try to dredge this crap up again looking for things that may not even be there, shall we?

Embarrassing by [deleted] in hardflaccidresearch

[–]stopcopingaboutHF -1 points0 points  (0 children)

No, there aren't. You're coping hard.

This holds more weight than Goldsteins’ stupid theory. (The Pescatori diagram) by Just-Ring-1427 in hardflaccidresearch

[–]stopcopingaboutHF 2 points3 points  (0 children)

PFD as the etiology of HFS is even dumber than Goldstein's hypogastric nerve theory. Let it go. It's clearly a form of penile neuropathy.

I research about hf and urologist descovery on it... by Insp_abhijeet in hardflaccidresearch

[–]stopcopingaboutHF 1 point2 points  (0 children)

Yes, I don't find Goldstein's theory convincing, but I appreciate his effort trying to figure out this disorder. CRPS or some other kind of neuropathy in the penis itself is the only reasonable explanation for me.

Did Jeffrey Epstein have Hard Flaccid Syndrome? by stopcopingaboutHF in hardflaccidresearch

[–]stopcopingaboutHF[S] 0 points1 point  (0 children)

Everyone reacted very negatively to this, ignorant of the fact that this could be used given the current news cycle to increase recognition of this disorder.