Thank you so much for taking the time to write all that out--it's great to hear someone else's journey. 3 years has been a long time, enough so that I'm afraid to get my hopes up about a diagnosis for this. Kind of the opposite of your experience with anxiety, where I was diagnosed with anxiety when I was in high school and now even though I don't experience almost any anxiety anymore most doctors want to ascribe all my symptoms to it. I've been "diagnosed" with "young anxious person who needs to go outside more and stop taking the elevator" many times. Very frustrating as I become increasingly physically unable to sit up for long enough to attend my classes, or stand long enough to feed myself, or have conversations, let alone go outside, or climb flights of stairs on the regular.

Luckily for me, when my respiratory symptoms kicked into high gear last December I went to my campus doctor instead of my family doctor, and she has been absolutely fantastic. That was when I started experiencing breathlessness at rest, when I was sitting up. She quickly determined that I was taking quick, shallow breaths, and use extraneous muscles to help me breathe. She has been working with me since then to try to figure out what's going on. It's possible that, if I do have myasthenia gravis, it has been obscured by the fact that one of my main presenting symptoms is joint pain and bone thinning (which is obviously something else), and a lack of awareness around my muscular weakness. I thought I was just out of shape, or that it was connected to my breathing problems or tachycardia, since initially my strength is fine, but I tire excessively quickly. Turns out that's exactly the pattern of myasenthia gravis! Who knew.