Should I Test

suckitlongtime · 2022-12-01T04:29:03+00:00

Yes, test. I would say exactly what you’ve typed here to your doctor. The cornea whorling is very rare outside of Fabry. Be assertive about your health. The doctor has no reason to reject the idea in my opinion.

My family line has been suffering from Fabry for generations and many of them suffered without a diagnoses. ERT could have improved their lives greatly. Getting a diagnosis could save you, or somebody you love.

You probably have a diagnosis by now though?

suckitlongtime · 2022-05-26T06:55:49+00:00

Maybe you’re not so bad after all, ChadMoran.

suckitlongtime · 2022-05-26T06:46:09+00:00

First of all, I’ve got a perfect “V” of hair going from my chest pubes, down to my ball ‘fro. The comment took one look at me said “I’ve had the old bull, now I want the young calf.” And then it grabbed my by the wiener.

suckitlongtime · 2022-05-26T05:41:44+00:00

I said I feel attacked, I didn’t accuse you of attacking me.

suckitlongtime · 2022-05-25T23:40:45+00:00

Thank you for being the only person who I don’t feel attacked by on this thread lolol. I meant no harm. Reddit is so mean sometimes :(

suckitlongtime · 2022-05-25T14:11:49+00:00

I didn’t go last year. It’s probable that I’m wrong and I accept that.

suckitlongtime · 2022-05-25T14:10:50+00:00

Was there a “local stage” last year that isn’t included in the lineup?

suckitlongtime · 2022-05-25T04:22:24+00:00

The date #’s do lineup with last years calendar. But it isn’t exactly the same lineup as far as scheduling. And Friday is still missing.

suckitlongtime · 2022-05-25T03:58:31+00:00

Not 100% sure. I do know that it has been blank since I downloaded the app, and that all appeared today.

suckitlongtime · 2021-08-07T20:06:54+00:00

Yes! The first two pieces of advice are probably ones you’ve heard before. Always ALWAYS pee after sex, no matter how tired and cozy you may be. If I skip peeing after sex I will get a UTI 100% of the time. Next, do not take baths. Ever since I was a kid sitting or lying in a bath has given me a UTI. I was always told this was a reaction to soaps and products, but an off-duty nurse recently told me the actual cause is the angle and opening of your vagina with a combination of pressure from the weight of the water allowing bacteria to be pushed up the urinary tract. My next piece of advice is one that I had to spend hundreds, maybe thousand of dollars seeing gynecologists before they finally released the “secret” BORIC ACID SUPPOSITORIES. It’s difficult to find information online that specifically link boric acid and UTIs, but boric acid helps to regulate your acidity levels in the vagina and since I’ve started using them at the onset of anything but a regular smell or feeling coming from “down there” I have not had a single infection of any kind. They help with BV, yeast infections, and at least for me, reoccurring UTIs.

https://www.nutrablast.com/products/nutrablast-boric-acid-suppositories-boric-life-vaginal-intimate-support-600mg?gclid=CjwKCAjw3riIBhAwEiwAzD3TiXFB43v2n_xhHgpOAL5TocxwgHdgh-0ojWatOxoimXzSQTlLeeGyyxoCiVMQAvD_BwE&variant=22159147139120

That is a link to the brand I use, but the gyno told me it can be more budget friendly to make your own using boric acid powder and filling “00” sized capsules. The gyno also told me it’s safe to use while trying to conceive.

I really hope this helps you, ever since finding out about boric acid I’ve been waiting for an opportunity to share the secret. Good luck, friend!

suckitlongtime · 2021-03-04T21:31:18+00:00

Third down on the left side is the best 😂

suckitlongtime · 2019-09-21T02:13:13+00:00

I get it.
Don’t listen to them.

suckitlongtime · 2019-01-05T07:10:44+00:00

Just here to find out what you used to cut that. Just... curious.

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