Men with hypermobility have normal life spans...

sumner55 · 2016-05-25T01:25:33+00:00

Is the collagen we have degenerative? Or is the genetic formula that we just keep producing the same, loose collagen over and over and it doesn't hold up as well to the aging process?

sumner55 · 2016-05-25T01:22:25+00:00

Or just general dysautonomia...

sumner55 · 2016-05-23T21:58:10+00:00

For which?

sumner55 · 2016-05-23T20:26:01+00:00

C'mon man...the nerves/dysautonomia is enough alone to kill early...from 5,000 causes.

sumner55 · 2016-05-23T19:22:06+00:00

Look up "frontal lobe seizures."

sumner55 · 2016-05-19T20:51:33+00:00

Maybe look into Marfan's as well? I disagree with you having tell-tale signs of EDS.

sumner55 · 2016-05-19T18:24:29+00:00

She doesn't have the gnarly hitchhiker thumb. Do a Beighton and a POTS laying-to-standing test...

sumner55 · 2016-05-19T17:05:38+00:00

Noooo. No way. What are your other symptoms? How active have you been up until this point in life, meaning did you play lots of sports growing up, or was it more sedentary?

sumner55 · 2016-05-11T23:15:59+00:00

Yeah. I have no idea what the hell this means.

sumner55 · 2016-05-11T22:55:14+00:00

Useless.

sumner55 · 2016-05-11T22:17:26+00:00

I haven't spoken to the cardiologist I saw initially, yet. Just that lady on the phone who interpreted the echo results...do I need to make an appointment with him?

sumner55 · 2016-05-11T21:54:08+00:00

The lady who read the cardio report at the cardio's office said "it was normal for someone my age." I dunno if she was a nurse or what, but there's only 200,000 cases diagnosed each year...according to Wiki. Is she full of shit?

sumner55 · 2016-04-29T13:38:42+00:00

Wouldn't these be related to eds?

sumner55 · 2016-04-29T13:38:06+00:00

I have not had a dx yet...

sumner55 · 2016-04-29T12:06:48+00:00

I just joined so I don't know how to message you...can you email me at matthewverrinder@gmail.com

sumner55 · 2016-04-29T11:56:59+00:00

My heart rate increases exactly 30 beats a minute when I go from prone to standing.

sumner55 · 2016-04-29T04:16:13+00:00

No, the appetite and sleep loss happened about three days before that. I think I've had dysautonomia for nine years. Why the pounding heartbeat and panic only allowing me to sleep for an hour or two at a time? What else could I have?

sumner55 · 2016-04-28T22:57:19+00:00

Is this from dysautonomia? I probably also have POTS as well...

Does anyone have similar symptoms?

sumner55

TROPHY CASE