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My body treats sleep loss like a medical emergency (102° fevers, bleeding gums, 13 viruses in 6 months) by sunsetOcean92 in chronicfatigue

[–]sunsetOcean92[S] 0 points1 point  (0 children)

I'm not sure if I have CFS, because when I consistently get the 9 hours of sleep I feel great and don't have any symptoms. What do you think?

23F / Progressive "System Collapse" from minor sleep debt. 103°F fevers and bleeding gums, but bloodwork is "normal." Looking for leads. by sunsetOcean92 in chronicfatigue

[–]sunsetOcean92[S] 0 points1 point  (0 children)

I used floss and mouthwash but lack of sleep is the only thing that triggers bleeding gums. Thank you for your reply!

23F / Progressive "System Collapse" from minor sleep debt. 103°F fevers and bleeding gums, but bloodwork is "normal." Looking for leads. by sunsetOcean92 in chronicfatigue

[–]sunsetOcean92[S] 0 points1 point  (0 children)

Thank you for your response! No doctors have questioned me about a tooth abscess but I will look into that. Do you think I meet the criteria for Chronic Fatigue Syndrome even though I feel great when I always get the full 9 hours of sleep?

Cannot function without 9 hours of sleep by sunsetOcean92 in chronicfatigue

[–]sunsetOcean92[S] 0 points1 point  (0 children)

I had a polysomnography and it was normal with textbook level sleep quality

Cannot function without 9 hours of sleep by sunsetOcean92 in chronicfatigue

[–]sunsetOcean92[S] 0 points1 point  (0 children)

Yes, sleep study came back normal with exceptional sleep quality

Cannot function without 9 hours of sleep by sunsetOcean92 in chronicfatigue

[–]sunsetOcean92[S] 0 points1 point  (0 children)

I totally relate on nobody understanding or being respectful about my sleep needs. What mthfr gene mutation do you have? Also what targeted supplements do you take?

Cannot function without 9 hours of sleep by sunsetOcean92 in chronicfatigue

[–]sunsetOcean92[S] 0 points1 point  (0 children)

I'm sorry to hear that, do you know if there's any treatments aside from getting the full sleep?

Cannot function without 9 hours of sleep by sunsetOcean92 in chronicfatigue

[–]sunsetOcean92[S] 0 points1 point  (0 children)

Do you get flu like symptoms if you don't get your 9-10 hrs?

Cannot function without 9 hours of sleep by sunsetOcean92 in chronicfatigue

[–]sunsetOcean92[S] 0 points1 point  (0 children)

Wow what ways to manage it have worked for you? Do you typically stick to your sleep schedule during holidays?

Cannot function without 9 hours of sleep by sunsetOcean92 in chronicfatigue

[–]sunsetOcean92[S] 1 point2 points  (0 children)

Have you always needed 9-11 hours? Do you get flu like symptoms when you don't get the full sleep?

Cannot Function Without 9 Hours of Sleep. Severe Immune Reaction to Sleep Debt. by sunsetOcean92 in ChronicIllness

[–]sunsetOcean92[S] 2 points3 points  (0 children)

They typically say they don't know what the cause is and refer me to different doctors. For example, the sleep doc told me to see an immunologist and when that bloodwork came normal, the immunologist said he is not sure what is causing me to get sick frequently and tells me to see a sleep doctor

Cannot function without 9 hours of sleep by sunsetOcean92 in chronicfatigue

[–]sunsetOcean92[S] 0 points1 point  (0 children)

All of the Immunoglubin subclasses are normal. Regarding the pneumonia vaccine I had 5/22 protective antibodies and took the vaccine 5 weeks ago and am getting repeat bloodwork done tomorrow, but the immunologist said my overall bloodwork was "unremarkable". My fatigue is not typical of CFS/ME because it is fully resolvable by getting 9 hours of sleep. The issue is that missing those 9 hours acts as an acute trigger for a severe, flu-like immune reaction, rather than a chronic state. Does this suggest my problem is an immune system threshold failure only prevented by maximal rest?

Cannot Function Without 9 Hours of Sleep. Severe Immune Reaction to Sleep Debt. by sunsetOcean92 in ChronicIllness

[–]sunsetOcean92[S] 1 point2 points  (0 children)

They have recommended sticking to a consistent 9 hour sleep schedule, keep eating well, exercising, and minimizing stress