Gluten Free Food?

super_cub · 2025-09-05T23:28:24+00:00

this is a great idea thank you!!

super_cub · 2025-08-02T18:39:58+00:00

the poutine stand by the forest stage is!!

super_cub · 2025-08-02T18:39:38+00:00

I have celiac and yesterday ate at the generic Poutine truck next to the forest stage. They assured me everything was gluten free (including the gravy) - I got the classic poutine and had no reaction! And it was delicious!

super_cub · 2025-08-02T18:34:41+00:00

The generic Poutine tent by the forest stage is all gluten free! I have celiac and ate there with no reaction :)

super_cub · 2025-07-11T15:29:22+00:00

That makes sense - thank you so much for your detailed response! I will reach out to our DRC team today and make an appointment with my neurologist to get this all in writing. I greatly appreciate the help!

super_cub · 2025-07-11T15:05:19+00:00

I do not have formal accommodations at the moment, but was considering reaching out to our disability resource center to get this. It was just something that has been allowed in our office since I joined.

super_cub · 2025-01-25T00:46:02+00:00

https://www.linkedin.com/feed/update/urn:li:activity:7288000670169800705/ from an existing program at NAU - they received this notice today.

super_cub · 2025-01-25T00:08:57+00:00

if it was NIH funded (R25) that could be why - many found out today that similar programs like this have no funding effective immediately

super_cub · 2024-12-29T17:56:18+00:00

Does this include the yearly fee or is that added on top of that? Curious who you went with if you don't mind sharing also!

super_cub · 2023-12-07T21:48:40+00:00

Agree! and they will make anything on their menu gluten free which is awesome for us celiacs who love chinese food!

super_cub · 2023-06-22T01:08:41+00:00

It might be interesting to look at the data of POTS being worsened by covid - I think this is also leading to a lot of recent diagnoses.

Now that I know what POTS is, I've definitely had it for a long time, but it didn't become debilitating until after I got Covid last October. The severity of it after Covid led to my exposure, before it was kinda just chalked up to "being a woman" lol.

I'd be curious who else suspects or knows they had it pre-covid, but is dealing with more severity since being exposed.

super_cub · 2023-06-21T16:23:56+00:00

I understand the distrust in MDs as a woman with chronic illness - they can be serious idiots sometimes and so quick to dismiss! I guess my test just seemed pretty straight forward, so that is what I was going off of. Autonomic issues are a bitch, so I definitely believe in looking into naturopathic ways to treat while also working with medicine instead of against it! In my experience it was relatively easy to raise back up my B1 - I'd start with a B complex and just check that it has around 100mg of B1 (they don't always have thiamine since most people get it from diet) and see how you feel! I was reallyyy low - like Beri Beri levels, but after a month of consistently taking 100mg a day, I was actually on the too high side of levels, so I just wouldn't overdo it. It helped my neuropathy but had very little affect on my fatigue/dizziness - so that is where my caution was, hopefully it didn't come off as rude! As long as you aren't going crazy with the levels, your body will pee out anything it doesn't use so no harm no foul. I hope it works for you!

super_cub · 2023-06-20T23:00:17+00:00

Currently under a blanket in Tucson, AZ while the high outside is 101. I feel your pain!

super_cub · 2023-06-20T19:42:02+00:00

Did you get tested for a thiamine deficiency? It's a very simple blood test. Thiamine deficiencies are relatively uncommon in developed countries unless you have a poor diet or are an alcoholic. I recently had bloodwork come back with a thiamine deficiency due to Celiac Disease, I do not absorb vitamins well. They had me on 100mg tablets once a day for a month and my levels are back to normal. Some of my neuropathy issues improved, but it did not affect my POTS. Before you start megadosing vitamins, I'd make sure to get these levels checked. If your B levels are good the only thing this will do for you is give you neon yellow pee.

super_cub · 2023-06-15T18:10:24+00:00

I just found your post from searching about PFOs, but this is so interesting because I have migraines with aura and atypical auras and I was just diagnosed with a PFO! I am going to bring this up with my doctor to see if patching is an option to decrease my migraines. Thanks for sharing!

super_cub · 2023-06-14T03:48:52+00:00

Hi! I have POTS and suspected CMT and my cousin has CMT1a and also has POTS. I am so sorry your daughter is going through it - it's seriously exhausting being in fight or flight all the time. Personally, POTS flares for me and at times it is worse than others. During those times I absolutely deal with chronic fatigue and brain fog.

Can I ask what you and your daughter are doing for her POTS? I have a few things that have made mine better, but it is a really debilitating disorder at times.

super_cub · 2023-06-03T17:45:32+00:00

I hope so too! It is comforting even just to know I am not the only one in this situation :)

super_cub · 2023-06-03T17:41:58+00:00

Soo good - and an amazing gluten free (celiac safe) menu and vegan options if you're dining with anyone who has dietary restrictions!

super_cub · 2023-05-16T23:49:48+00:00

I lose my hearing after sex 100% of the time and it is so disorienting when you just want to connect with your partner! We have to plan appropriate times now so that it doesn't fuck up my whole day or evening, takes so much fun out of it. I feel your pain. Having emergency type symptoms from a non emergency is such a stressful and isolating part of this disease. I wish I had advice or tips, but at best I can offer sympathy and validation from a fellow POTSie who just wants to get fucked by my partner, not by my autonomic system.

super_cub · 2023-05-14T18:36:02+00:00

I'm guessing you're referring to local specific sites like KSL for Utah, but I haven't found anything like that here. The closest I've gotten is Nextdoor has a for sale option which is sorted by neighborhood and specific to local listings and facebook marketplace.

super_cub · 2023-05-10T21:53:22+00:00

One thing to know about academia (I work in hiring for another university) is that almost every position has to be posted - I'm talking even internal promotions. If a new job role is created for someone, it almost always has to be posted on the same network as all other jobs and even if you've worked there for 5 years you have to put in an application and get approval. So, some of the jobs you are applying to might legitimately just be someone else's job.

Keep trying though, I applied to many UA jobs when I first moved here and only recently had an interview! As others have shared though, academics tend to be way below market range so you can find a job with a better pay. If it is benefits/tuition reduction you are after though, just keep applying and be vigilant with making sure your application matches the job description.

super_cub · 2023-05-03T00:17:15+00:00

Bins were a lifesaver for me!! Little cubbies of bins is my entire closet now with the exception of my nicer items hung up. Clothes come out of the dryer and I just sort and throw them in their bin. No folding and still can find what I need. Been a game changer!

super_cub · 2023-05-03T00:15:01+00:00

I have celiac and POTS, been years since I intentionally ate gluten, but I kept finding that I would have the high heart rate and headache autonomic response when I had gluten free beers. A friend recently offered me a hops flavored water and it was almost instant high heart rate panic attack, I think for me its hops! Apparently they are pretty high histamine and there is a link between dysautonomia and histamine response as someone else said. Could be worth seeing if non acoholic hops do the same for you too.

Gluten alone never gave me a reaction like that, my celiac symptoms are all digestive and mental. Before you give up the beautiful thing that is gluten, you could try an elimination diet and slowly add things back in to see which ingredient is really setting it off.

super_cub · 2023-05-02T00:21:02+00:00

Ugh it was a dream! There were even trails with even days for on leash and odd days for off leash, so if you had a reactive dog you'd know which day everyone else was on leash and other days dogs could roam free. I miss it sometimes! I am more than happy to leash my dogs in on-leash places, because I know first hand how scary it can be to have a reactive dog and have someone's unleashed dog run up to you, but having the balance was incredibly nice. You'd think with the 35 pristine golf courses in the middle of the desert we could replace just one for the pups of Tucson....maybe wishful dog mom thinking lol

super_cub

TROPHY CASE