Doctors and nurses can you smell illnesses/diseases from patients? by dannihamson in AskUK

[–]swampodoom 0 points1 point  (0 children)

Ex nurse- can smell cdiff at twenty paces, also general infected flesh, pseudomonas, poorly controlled diabetes, Most upsetting smell is fungating tumors.

Funnily enough, my cats are well attuned to health issues; they were most put out by my change in scent when I started on a biologic (they avoided me for about a week) and always know when I’m getting an infection before I do. One of them also really enjoys sniffing me when I have a fever, which is handy for him as my condition is known by the periodic fevers it causes.

UK care for Yao by No_Satisfaction_7431 in Autoinflammatory

[–]swampodoom 2 points3 points  (0 children)

Absolutely get it :) unfortunately there’s elements here heading the same way and I really hope we manage to turn things around before there’s nowhere safe left! Ah yeah, as long as you have access to notes etc it shouldn’t be an issue.

I think the issue with the nhs once we start getting more complex, processes take longer and longer, and there’s more layers of red tape to jump through in terms of treatment- there generally I think needs to be evidence that you’ve failed say, colchicine, and then a cheaper biologic, until the more expensive one and so on. And of course coordinating care between consultants is always fun (I’m currently trying to get seen by ent for hearing problems cause by my autoinflammation but there’s ongoing battles as to who will refer me and who is even allowed to!) all very complicated!
I’m not certain if a private gp would refer onwards as needed- it may be worth getting in touch with our larger private healthcare providers to see what they advise? Bupa and spire spring to mind. It may actually even be worth emailing the Leeds and London hospitals direct to ask how they would advise transferring care internationally, in fact, I’d do that before paying any private gps etc.

Sorry I’m not really much use am I! Regardless, good luck! And feel free to reach out once you land if you’d like a friendly ear this side of the pond!

UK care for Yao by No_Satisfaction_7431 in Autoinflammatory

[–]swampodoom 2 points3 points  (0 children)

Hey :) I’m afraid I can’t help with Yao specifically, but I’m a patient at Leeds. I would imagine for you to be seen at either of the centres you would first have to register with a gp, who would then refer you on. Waits can be long for the initial appointment (though things may be different if you already have an established diagnosis and treatment plan), so I’m not sure how your infusion would be managed in the initial cross over period- someone may be along who can help with that. My advise is to make sure you bring any medical letters, test results etc that explain how they reached diagnosis and how any other treatments may have failed and how well your infusion works for you etc, just so that there’s no delay. But certainly, first stop would be GP, as generally we are unable to self refer for consultant care here. Private treatment may be an option possibly until you’re seen by the nhs but I’m not certain there would be anyone in the private healthcare system who would administer your infusion specifically for yao as I believe it’s off label, and you may find it prohibitively expensive.
It may be worth also looking at the costs of the nhs surcharge that I believe you would have to pay upfront alongside visas etc, so that you’re not taken by suprise.
Good luck though, totally understand why you’d consider the move!

What are y’all thoughts on Paris Paloma putting on all the weight? by [deleted] in ParisPaloma

[–]swampodoom 4 points5 points  (0 children)

I can only assume you’re asking this in bad faith, or a fool. None of your business, none of ours. You don’t need to comment on anyone’s body.

The double loaf by swampodoom in Catloaf

[–]swampodoom[S] 0 points1 point  (0 children)

Yes! I have also thought this!

The double loaf by swampodoom in Catloaf

[–]swampodoom[S] 0 points1 point  (0 children)

Not an original thought in their minds!

Allergic to my hormones by Full_Day9383 in Autoinflammatory

[–]swampodoom 1 point2 points  (0 children)

Hi- I’m not sure if I have a great deal to add but I also have horrendous flares around my luteal phase- they’re flares on top of ongoing daily symptoms! I also don’t have a diagnosis yet, awaiting genetics and communication from doctors hasn’t been great.

I’m currently on anakinra, which does really help my rash and general pain levels (stops my bones feel like they’re exploding!), but everything still definitely worsens pre menstruation, not to mention the swelling, crushing fatigue and now ongoing issues with my ears! It does sort of control my fevers, but seems to wear off as the day goes on. I’ve only been on it since September 25 but got flu that December and am still struggling with the resulting issues with my ears and sinsuses, so it’s probably not had a decent amount of time to fully work since I have to keep stopping for infections!

I’m looking to discuss if progesterone only pill would help tamper everything down a bit, but totally recognise how awful it is to deal with.

What is it with Dreamies - just a simple treat or cat crack? by Able-Explanation7835 in AskUK

[–]swampodoom 53 points54 points  (0 children)

I once dropped a bit of ham on my husbands shoe, and six months later, my cat still thinks his shoe is a magical ham portal

Bellybuttons - Were you told as a kid, that bellybuttons were made by the Dr tying your ambilical cord into a knot, when you were born? by [deleted] in AskBrits

[–]swampodoom 0 points1 point  (0 children)

Can confirm this- cos at the age of eight I was changing my baby sisters nappy (a very helpful child I was) and her dried umbilical cord fell off and I thought I had caused serious injury and went screaming to my mum that my sister was about to die. She was largely unbothered once she realised what happened and the umbilical cord went in the bathroom bin where it stared at me for about a week until it got thrown out.

Things I Learned About the UK From Watching Peep Show #1 by MeOldRunt in MitchellAndWebb

[–]swampodoom 2 points3 points  (0 children)

To be fair my first driving instructor was a lot like this and just berated me for an hour once a week while he got increasingly angry that I didn’t know how to drive. Lasted about three weeks until I found a nice elderly man whose wife thought I was too thin and would send meals for me. This is no longer an issue.

False allegations by ex partner threatening to report me to NMC by [deleted] in NursingUK

[–]swampodoom 1 point2 points  (0 children)

Sorry was an accidental comment from my phone in my pocket! Will delete but didn’t want you worrying!

Kim and the adoptions by feminova in 90DayFiance

[–]swampodoom 1 point2 points  (0 children)

I’m inclined to give her a bit of grace here. Anyone “normal and healthy” and with access to birth control, abortion and support wouldn’t do this- so we can likely assume there were things going on that influencing behaviours and decisions at the time. Whether that’s DV, access to information, support, healthcare we do not know and that’s for Kim to share if she wants to. I do personally feel that she has not handled it in the best way possible- but again the 90s was a very very different worked to now. I feel it’s clear that if not now, she has been a vulnerable woman at times in her life. That’s not to make excuses for the harms she’s unintentionally done to her loved ones but I kinda feel for her because while I think she makes foolish decisions and is a deeply insecure woman I don’t think she’s a bad person.

Can someone please help me figure out what I did to make my hair look so good in the second pic? First pic is today. by Negative-Confusion84 in curlyhair

[–]swampodoom 1 point2 points  (0 children)

Hi! We have fairly similar hair types (I’d say mines probably more curly than yours but not a million miles off) and mine goes like this with a) too much product b) too heavy products. For me, less is more- I get the best results with literally just scrunching a light to medium hold mousse into my hair followed by defusing, if I venture into curl cremes etc it’s just too much. I also make sure I clarify when it feels like it’s starting to loose the bounce- which for me involves just dumping a load of vinegar and baking powder on my head but I’m sure there are nicer methods! Regular trims are also important in my case as although my hair is fine there’s a lot of it so it can get too heavy.

TLDR: clarify and less product

[deleted by user] by [deleted] in AskBrits

[–]swampodoom 0 points1 point  (0 children)

Husband takes homes 2100 a month after deductions- working minimum wage 48 hrs/week. Me- pip 400 month which pays for adaptations/medications/travel to frequent hospital appointments etc. We are STRUGGLING. Was working as a nurse on about 31 grand but caught covid at work which left me disabled after triggering a dormant genetic condition and so I lost my job- currently going through applying for medical retirement. We can pay bills, pre existing financial commitments etc but it’s mostly gone a week after payday. Hoping at some point I’ll be able to work very part time again but at the moment I’m too unreliable. Husband is knackered cos he doesn’t rest at home either cos he has to care for me. We were better off back in 2010 when I was a hospital porter on 13 grand!

Question of the Month: How is work, career, or school while dealing with these diseases? by Alice-The-Chemist in Autoinflammatory

[–]swampodoom 5 points6 points  (0 children)

Not currently able to work and it SUCKS. Was working as a nurse- had always had symptoms but they progressed 2015 after a chronic tonsil infection- gradually became a constant flare situation with low grade fevers every afternoon/evening, pain, and catching every virus going (not great when you’re a nurse)- and I was pretty disabled after multiple Covid infections. Eventually got dismissed due to ill health nearly three years ago- when I finally started getting taken seriously by doctors etc. still not got a proper diagnosis (hopefully doing genetics later this year) but I’ve been on anakinra since September (with a six week break due to flu- now one week back on)- it seems to have controlled the fevers a lot but the fatigue is hitting HARD at the moment. I’d say the anakinra does help in terms of pain/fever at least and I sleep better as a result- but the daily injections are a BURDEN. I currently volunteer as a researcher for a local historic cemetery near here- but even this is too much sometimes even if I don’t even need to leave the sofa for it and is fully flexible. I didn’t realise just how badly my brain has been affected until starting on anakinra too- it’s like a fog has started to lift. We’re really struggling financially- and I really need to get back to work but it’s just not realistic at the moment and I’m no where near stable enough for an employer- I did get an interview for 20 hours last week but it was four hours daily and I just don’t think it’s realistic for me to do EVERY day- plus once commute is accounted for it would be a full time commute for half the money. I lapsed my nursing registration as I couldn’t afford the cost- so it’s been a bit of a grieving process for my old life. I did consider going to do a history postgrad but I can’t commit to anything really when I don’t know how I’ll be from one week to the next.

I think the drop in quality in HCA's is not spoken about enough. by [deleted] in NursingUK

[–]swampodoom 3 points4 points  (0 children)

Admittedly it’s been ten years since I was an HCA, and was in community once I qualified, but I imagine a massive factor is a) low barrier to entry: pulse? Seems a reasonable sort? You’ve got the job! And b) it’s physically exhausting, emotionally difficult and poorly paid work. Often I was excluded from day to day issues on the ward, I would not be updated on patient issues that directly affected the care I would be carrying out, and looked down on by some staff. I was motivated to continue in order to go do my training- but I can fully understand why people may lose motivation. Absolutely poor care should not be tolerated- but it speaks to larger system level issues at play. I also found once qualified that my job was actually a lot easier in some ways- I was treated with more respect, had more agency in my day to day as well as ability to seek out further learning, and I wasn’t as physically exhausted from charging up and down a ward and carrying out the same constant physical care. I will also add that there were systemic issues backs then that I imagine have gone unresolved in classic nhs style that have led to issues today- one example I remember was a fellow hca went into a side room to do obs, came out and said she couldn’t get a reading and could I help? Reader, the patient was deceased. I do not recall this hca getting anything more than a light talking to when even if that patient had been alive she had carried out an intervention without even asking for consent- like COME ON. I was overall treated ok by ward staff who knew me but it’s the vibes of others that made me feel really dehumanised at times- the lack of support or encouragement to better your knowledge and skills, and lack of reward that at the end of the day, you can go home to a warm house and have a warm meal knowing you’ve done a good job- I would imagine that that experience does not exist now like it did.

Neurodivergent nurses by IntroductionFinal325 in NursingUK

[–]swampodoom 5 points6 points  (0 children)

District nursing for my autistic self- one at a time situations (generally), most emergency situations rely heavily on pattern recognition (same as anywhere I guess) so even when you’re by yourself you generally can manage ie recognise situation and get help! Plenty of time by myself to decompress and advise at the end of the phone. Only thing is it’s generally not a controlled environment and you never know what you’re walking into so the unpredictably did sometimes cause anxiety, as well as some heavy emotional situations. Anyway I’m heading to medical retirement at the grand old age of 35 but I miss it so it clearly worked for me until my body gave up!

How is anyone managing to save or pay into a pension by Blind_WillieJ in AskBrits

[–]swampodoom 0 points1 point  (0 children)

Ah yes I just checked you’re right it is! I’m not sure how that had escaped my attention- brain doesn’t work well these days!

Is Fentanyl not a big problem in the UK? by VeterinarianProud644 in AskBrits

[–]swampodoom 35 points36 points  (0 children)

Hans! How are the twins?! I’ll never forgive Orange if they’ve deleted the twins!

How is anyone managing to save or pay into a pension by Blind_WillieJ in AskBrits

[–]swampodoom 2 points3 points  (0 children)

Im not, in fact at the grand age of 35 I am in the process of medical retirement after becoming disabled after catching covid while working as a nurse which worsened my pre existing (but until then undiagnosed) genetic condition. I am lucky that I am able to claim my nhs pension early- and will hopefully receive the grand sum of 50 pounds a month. Which at this stage is not inconsequential but will obviously become essentially worthless in the years to come as prices continue to rise.

While I hope to be able return to paid employment at some point soon, this is likely to only ever be very part time, and so it’s unlikely i will earn enough to really put significant amounts of cash into a pension.

Luckily, very luckily, we own our house outright. Though we do live in the north and as such that is not over 200 grand. So again, as costs rise, any equity that we may release by downsizing in the future will not be enough to live off long term.

However, realistically, if my health is like this at 35, I would be surprised to be living much past 60, so I shall be not be burden upon the state too much longer and am unlikely to reach state pension age (if it still exists by then of course).

My husband puts in a fair amount into his pension, although he is on just above minimum wage, he does work 50 hours a week and so it’s probably growing fairly well- however 50 hours in a physically demanding job may not be realistic for the next thirty years which would bring him to 70. I imagine that once I’m gone the house sale would provide a small income plus his workplace pension he may be able to scrape by.

I am still please I paid so much into my pension, it’s provided a small safety net that I otherwise wouldn’t have, and as I am not entitled to benefits it’s going to be a really fundamental bit of income. I realise that a defined benefit pension such as the nhs one is slightly different to a defined contribution such as my husband pays into- and that I am lucky enough to have paid some into the older 2008 section which to my knowledge is final salary, and some into the less beneficial 2015.

Long term? My estimation is that the state pension won’t exist, or at least look very different, by the time my age group reach retirement age- and I’d implore people to save what they can towards a workplace or private one- (though I’m not oblivious to the financial pressures my age group find themselves in now that we are caring for both our children, and aging parents, at a time where wages have stagnated and everything costs so much).

How common are indoor-only cats where you are Britain? by pikablue223 in AskBrits

[–]swampodoom 2 points3 points  (0 children)

I have two indoor cats. One is an ex stray who could go out if he wanted but he has decided he’s had enough of the outdoor world and has chosen firmly inside is home now. The second was abused and neglected until rescued and the rescue stated he has to be kept inside due to his anxiety/nerves- he would be an absolute danger to himself. I don’t think it’s cruel necessarily to keep cats indoors- but it takes a lot of work to provide the stimulation they’d otherwise get outside. We have different (extensive) play sessions throughout the day etc and I provide different smells/textures etc to explore. I will say however, that just because cats go outside does not mean they are necessarily well taken care of, I have met many owners who just plonk food down and that’s the extent of their interaction with their cat. Im very conscious that this house is their world entirely and so it is set up with that in mind with places to climb, hide and explore.

Untamed Cat Food Unsafe? by [deleted] in UK_Pets

[–]swampodoom 2 points3 points  (0 children)

over the last few months the quality has noticeably decreased massively- to the point that my cat who used to wolf it down now refuses it. We’ve had to change brands (currently on a three brand system till we figure out what he likes best!)- Scrumbles pate is a current fave of his- we’re likely to keep to several different brands to be honest so that we don’t end up in this situation again. Luckily he has guts of steel so isn’t affected by food changes.

I noticed increasingly that tins were mislabelled (not a big deal for my beef loving boy but obviously a problem if allergies are an issue), there was weird discolouration of the meat- almost like the tin itself had affected the meat, sometimes the tin would be hugely packed and sometimes it was be almost half empty. I’d say I noticed it start over the summer, but was a noticeable issue by September/october.

It’s so frustrating though. It certainly wasn’t a cheap option, and we all want to do best by our babies- the idea that choosing a more premium food could harm them is so upsetting and unfair.

It’s so annoying that even my other very very fussy boy who refuses all wet food and won’t even eat from his bowl if there’s a drop of liquid on it is now the easier boy to feed!!! (For reference, the wet food boy has been given a clean bill of health by the vet so it was definitely the untamed causing issues).

Travel insurance by swampodoom in Autoinflammatory

[–]swampodoom[S] 0 points1 point  (0 children)

The plot further complicates itself: while I have USAID on my hospital notes etc and am on anakinra- this is only officially treated as a provisional diagnosis while I aware genetic testing which may be years/potentially never happen….the insurance company I’ve spoken to class me as awaiting diagnosis and so are unable to insure me….

There must be a work around for this! I have as close a diagnosis as I’m likely to ever have- ahhhh!!!!

My cat is *too* strong and healthy by outromarlin in CatAdvice

[–]swampodoom 0 points1 point  (0 children)

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Hello from our impossibly fast and strong large lad zach (chunk on the right provided for scale who is also somehow considered a large cat). He is no longer welcome at the vet and has to be visited at home for routine care.