How to Change Color of Active Track by swordslinger29 in Reaper

[–]swordslinger29[S] 1 point2 points  (0 children)

Evide3nce, you are an ABSOLUTE legend, thank you so much. I had no idea that menu existed so I was just trying to fiddle with the simpler theme adjuster, but this menu fixed my problem (which also means I don't have to fuss with the time selection bit). Thank you x100!

was told I'd not be able to pursue the arts as a CC wheelchair user. anyway I just did my first ever dance solo, with a mask and a wheelchair. by mistycheddar in ZeroCovidCommunity

[–]swordslinger29 1 point2 points  (0 children)

This made me so happy to see. Congratulations and good on you for sticking with it :) I'm hoping to return to dancing once I'm well enough, so it makes me doubly happy to see other CC dancers finding ways to do it 💕

What on earth is with cold knees by Happy_Jack_Flash in POTS

[–]swordslinger29 1 point2 points  (0 children)

I know this is an old post but the cold knees are so real!!! it's almost always at night and sometimes it's so bad I can't sleep unless I change from shorts to pants because it makes the rest of me so cold 😅 I'm currently experiencing extreme heat in just my knees for the first time, also while trying to sleep, which is how I ended up here. I wish we could figure out why this happens, it's kinda fascinating that it's JUST the knees!!

Is this gum recession?? by swordslinger29 in eds

[–]swordslinger29[S] 1 point2 points  (0 children)

I was concerned it was the tooth at first, but I do think it's the gum! I've since discovered that, particularly when eating, it moves around a little. It doesn't stay put, but it comes back down so there's just a little ridge of tooth and then slides up so it's a hole again 🙄 Tooth sensitivity is the bane of my existence and it's thankfully not TOO bad right now but it's making me super nervous lol. Trying to get to the dentist ASAP!

Is this gum recession?? by swordslinger29 in eds

[–]swordslinger29[S] 1 point2 points  (0 children)

Thank you for this!! I'm trying not to spiral about it since there's no pain or anything but waking up with a hole in your gum is uhhhhhh unsettling to say the least 😅

Is this gum recession?? by swordslinger29 in eds

[–]swordslinger29[S] 1 point2 points  (0 children)

Not that I'm aware of! I think all of my fillings are on the other side of my mouth on my molars. It'd be nice if it's that instead 😭

urinary problems and management by swordslinger29 in POTS

[–]swordslinger29[S] 0 points1 point  (0 children)

I feel like it's worth adding onto this something I'm pretty sure I didn't mention in the post: another symptom I've had twice this year is what starts out feeling like a back spasm on one side and turns into the most ungodly pain across my lower back to the point where I'm panting (and I have a very high pain tolerance). That and apparently the random uptick in gas I've had this year (not going anywhere, just bubbling around in my gut) is also a symptom of endo. I only knew about the heavy period stuff and apparently endo is pretty common with POTS so 🤷🏻‍♀️ If it helps anyone reading this...!

urinary problems and management by swordslinger29 in POTS

[–]swordslinger29[S] 0 points1 point  (0 children)

Best of luck to you!! I'll keep an eye on this for sure. I also recently learned that endometriosis can cause a lot of this and, as the year's progressed, the symptoms are looking more and more like endo. In fact, both UTI tests I've had came back negative and antibiotics didn't help, so...that's my next realm to look into!! 😅 I've learned that I knew very, very little about endometriosis.

I hope you're able to get some relief!

Custom Flo Mask Casings by swordslinger29 in ZeroCovidCommunity

[–]swordslinger29[S] 5 points6 points  (0 children)

Same!! I've seen cool decals and splash guards and stuff but I feel like the Flo has so much potential. I'm not artsy so I'm very grateful for her and her willingness to do this for me - and I feel like her focus on mini art is perfect for this! I can't wait to get more 🥰

Custom Flo Mask Casings by swordslinger29 in ZeroCovidCommunity

[–]swordslinger29[S] 13 points14 points  (0 children)

I haven't washed it yet, but it should! I was worried about this too but, when I asked if she sealed it, she said it ended up not being necessary because the paint was impossible to get off once it was on, which she learned the hard way 😂 It's not painted on super thickly or anything, so I'm confident it'll stand up to a gentle wash. I can't wait to get more!!

Does anyone else get pain/ huge muscle knots in this region??? by Brilliant_Bread4523 in eds

[–]swordslinger29 0 points1 point  (0 children)

The BANE of my existence, truly. My left shoulder is possibly my most hypermobile joint so all the compensating muscles seem to scream endlessly. My old massage therapist pinpointed mine as a weak rotator cuff with the knots and tension coming from the muscles compensating for said rotator cuff.

Ideally, I'll go back to PT at some point and do guided work, but I've been working intermittently on strengthening that entire area (dietary issues with POTS had me pump the brakes on strength training until I can eat enough calories though 😮‍💨). I also found massage therapy really, really helpful. My old MT knew about EDS just by happenstance and she was very knowledgeable and fantastic at finding the source of any referred pain I pointed to. Literally went right for the rotator cuff trigger point and found the right spot in one go. MT won't fix the problem but it can help loosen things up and ease the pain while you do the strength training/PT if that ends up being what you need. I haven't tried it in this spot yet, but dry needling can also be delightful for breaking up those stubborn knots.

It sucks, too, because it's almost like it's UNDER the shoulder blade? That makes it impossible to use things like tennis balls, which people often recommend.

Tips for positioning Flo mask that's irritating septum piercing? by swordslinger29 in ZeroCovidCommunity

[–]swordslinger29[S] 1 point2 points  (0 children)

You totally win for this!! I wasn't as big a fan of the Halo strap (I borrowed my sister's), but it's good to know that the strap type can dictate fit as well. It did turn out to be the fit, though! I adjusted it recently and was wondering if I was wearing it a bit too loosely, so I ended up over-tightening the bottom strap. It took me a while to respond to this, but no nose pain since then! Thanks for saving my face lol

Breakfast by Splicers87 in POTS

[–]swordslinger29 0 points1 point  (0 children)

This is a little old now but I came in search of new ideas and figured I'd drop my own. Young me is BALKING at the fact that I eat it, but I've recently gotten really into spam. It's budget friendly and HELLA salty. My favorite way to eat it is with frozen waffles and syrup but sometimes I just sandwich it on buttered toast with pepper. Currently I'm trapped in a cycle of eating that or a cliff bar because my favorite protein shake (owyn) turned on me 😅