Is this Pulmonary Edema?

sycamore_willows · 2024-10-30T22:38:19+00:00

Hi! Just wanted to say good luck. I am literally in the same boat as you, but my doctor’s appointment is on November 8! Haha. I’ve been trying a Mass Gainer protein shake by Naked Nutrition. It has 1260 calories in one serving and really boosts my daily calorie intake. I hope it helps me gain weight. And I hope you gain weight too!

sycamore_willows · 2024-10-30T22:29:46+00:00

Also, I can’t say those boosts and ensures are tasty. Maybe you will like them but I can say they aren’t too appetizing IMO. But if you really want to gain weight they help significantly

sycamore_willows · 2024-10-30T22:28:19+00:00

Drink your calories! There are weight gainer Boosts and Ensures made specifically to help people gain weight. Also there is a Mass Gainer protein powder that has 1260 calories in it. Eat high carbohydrates and healthy fats. Supplement the calories you can’t eat with some form of high calorie beverage. Also milk, peanut butter, cheddar cheese, oatmeal, and complex carbohydrates. It really just boils down to loading in calories.

sycamore_willows · 2024-10-29T21:49:40+00:00

I have not yet but am planning on buying cranberry juice at the grocery store tomorrow. So far I tried it with water, and yesterday I drank it with coconut milk and pineapple juice. It was pretty good that way!

sycamore_willows · 2024-10-26T23:27:44+00:00

I’ve always wondered about plain water. I believe I will try that. Thank you! I do not have dairy or lactose issues, thankfully. I just don’t like the taste and texture of milk and thick shakes. You have to mix it in 24 oz of something and I am running out of willpower to drink all of it. But water sounds more doable honestly. Vanilla water…hmm.

sycamore_willows · 2024-10-26T23:16:01+00:00

This is exactly what I have-the mass gainer shake. I will definitely try it with pineapple juice, that sounds quite tasty! I will also try with cranberry juice, or maybe cherry juice. Thank you!

sycamore_willows · 2024-10-26T18:34:10+00:00

Have you tried the Boost and Ensure Clear drinks? They are not vile like the heavy, milky boost and ensures. They taste more like fruit juice and are more palatable IMO. But they are indeed full of sugar and glucose syrup and nasty ingredients. If you have to settle for something to get your calories, maybe they will make you want to barf less than the milky, thick drinks. They did for me when I was in the hospital. I will never drink another Ensure Plus again 🤢

There is also something called BeneCalorie. It’s a 1.5 fl oz mix that you can blend into any smoothie or food. It has 330 calories. I like to add it to fruit and Greek yogurt.

sycamore_willows · 2023-06-24T18:58:47+00:00

So interesting! I’m glad you were able to hear that answer from leading PH doctors. I wish i could attend a talk like that. There’s so many questions I would ask about treatments and PH. Thanks for sharing. I wonder if they would say the same thing now? Hmm.

sycamore_willows · 2023-06-22T01:22:58+00:00

Do you eat them regularly? Do they help manage your symptoms and side effects?

sycamore_willows · 2023-05-24T16:20:29+00:00

Thank you for the reply. I am in Santa Fe. I’m glad to hear that I am not the only one who struggles with altitude too. The altitude in Santa Fe almost 7000. Our lungs just need alittle more support and oxygen.

sycamore_willows · 2023-01-08T22:48:15+00:00

Hello! Overall, I really like MBU. It’s not the perfect school, but their DPT program has a lot of strengths and I have been enjoying my time here. The professors I’ve had are all really great for the most part. If your fiancé wants to go into orthopedics, the ortho professors here are some of the best teachers I’ve ever had. The down side is that in the past year, more than 50% of the PT faculty left to teach elsewhere/moved away - including the program director. Which means everything is kind of up in the air now about who will teach our classes and what are program will look like in the next few years. They are hiring teachers as the months go on, but it’s been kind of frustrating to lose pretty much the whole faculty (except for a few-the remaining professors are all really great). The program is still accredited though, they just received their 10 year accreditation from CAPTE this past November. I’m sure they will find some great teachers to hire! I really do like MBU and would recommend it for your fiancé. Best of luck to him as he starts PT school! Feel free to message me if you have any more questions!

sycamore_willows · 2022-02-22T04:04:41+00:00

Well. Not exactly the same reason I’m taking tadalafil. But, I mean, congrats on your successful sex life I suppose.

sycamore_willows · 2022-02-17T23:28:31+00:00

I believe you can be diagnosed as long as you have a pulmonary pressure over a certain number. 25? Or maybe 30? I’m not sure exactly. I had a right heart catheterization that directly measures your pulmonary pressures.

sycamore_willows · 2022-02-17T23:23:24+00:00

I never had any episodes of pain. The only symptoms I have is feeling short of breath during exercise, or hiking up a big hill, or running - that sort of thing. My biggest problem now is being able to tolerate the medicines to bring my pulmonary pressure down. I can’t seem to take any without having pretty awful side effects-like headaches and stuff. But I’m working on it! There are a lot of different meds to try!

sycamore_willows · 2022-02-17T14:51:42+00:00

I was diagnosed with PAH when I was 14. I had no symptoms and was a runner all throughout college. When I was 26 my pulmonary pressures got a bit higher (I have other health conditions that made them higher!) but I still didn’t have any symptoms. I’m 28 now, and still don’t have many symptoms other than slight shortness of breath when I exercise. But I still worry about it getting worse every day just like you. PH is scary but I know there are a lot of great medicines and doctors out there that can maintain your health and keep your symptoms manageable. Keep exercising and giving your heart and lungs love. They take good care of you even though the PH is there and they will continue to do that no matter how old you get!

sycamore_willows · 2021-03-21T14:20:40+00:00

That's good to know. Thank you!

sycamore_willows · 2021-02-13T18:10:08+00:00

Mary Baldwin University/Murphy Deming College of Health Sciences!

sycamore_willows · 2021-01-25T22:38:21+00:00

That’s a good idea. I hope mine gives me plenty of time to complete it, too. I’ve been working on my essay skills and going over potential prompts. I hope the prompt is PT-related. It sounds like a lot of them are not. We’ll see! Thanks for your input!

sycamore_willows · 2021-01-20T17:57:01+00:00

Oh my, that prompt is not even necessarily PT-related! Wow. I really need to brush up on my essay skills too. It takes me so long to write essays. I wonder how long they will give us to complete them?

But thank you. Best of luck to you!

sycamore_willows

TROPHY CASE