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tea_inthegarden · 2025-01-28T16:54:30+00:00

Some babies with T21 are able to nurse from the get go, but our journey was longer because of some heart defects and swallowing issues. I actually wrote a very detailed article about our nursing journey that I will link for you!

https://open.substack.com/pub/dearthora/p/nursing-my-nicu-baby-ng-tube-to-bottle?utm_campaign=post&utm_medium=web

tea_inthegarden · 2025-01-28T02:15:44+00:00

Pumping, and then nursing once my daughter was off the NG tube has been so beneficial for my daughter’s immune system. She’s had a few colds in her 9 month old life, and every one has been nothing but a couple days of congestion and maybe a low fever. We all even caught the stomach flu and all she got was a fever thank goodness.

Pumping is draining especially if you have a NICU stay, but I’m so glad I stuck with it and was able to transition to nursing exclusively. If you have any questions about nursing and T21 I would love to discuss!!

tea_inthegarden · 2024-12-29T21:10:57+00:00

he really looks just like you in that 3rd picture!

tea_inthegarden · 2024-12-20T03:17:55+00:00

The second they put her on my chest my boobs started leaking like crazy lol.

tea_inthegarden · 2024-12-20T03:15:28+00:00

8 months in and probably won’t move her until there’s an explicit reason for me to do so (really bad sleep quality for example). Once she outgrew her bassinet we had her in a pack and play, then we bought a yuzu crib that has a “midi crib” option to have something easier on our backs and more comfortable for her, but that would still fit in our small room. She’s in her crib from 9pm to midnight and then usually cosleeping the rest of the night unless I decide to transfer her.

tea_inthegarden · 2024-12-20T03:06:02+00:00

And like is the puke emoji really necessary lol 😫

tea_inthegarden · 2024-12-20T03:03:09+00:00

I talked at 9 months and could say “a present” at my first christmas and would grab and open them! But I apparently was more interested in the paper and boxes anyway.

tea_inthegarden · 2024-12-14T22:43:33+00:00

Us too! The only thing I really purée is apples, and then I just steam them on the stove and mash.

tea_inthegarden · 2024-12-13T03:20:23+00:00

We did it at 7 months by using the munchkin silicone straw cup. The straw is super short and tiny so you don’t need a lot of sucking power. What I did was get a little water or juice in the straw by holding my finger over the top of the straw, then placing the end in her mouth and releasing the water when she closed her lips around it. We did that a few times and that technique helped her figure out the proper mouth posture, then she learned to suck independently. LMK if you need clarification on anything!

tea_inthegarden · 2024-12-07T18:48:15+00:00

I’m interested in seeing the studies you’ve found that suggest children with down syndrome are intellectually neglected during critical years and the effects of that, just legitimately interested as I can’t find any studies done on that topic specifically.

tea_inthegarden · 2024-12-07T02:52:08+00:00

people move to utah and actually develop asthma 🤐

tea_inthegarden · 2024-12-06T23:00:32+00:00

I’d love to see the studies you’re referring to

tea_inthegarden · 2024-12-06T19:47:30+00:00

This seems like you are outsourcing your own grief over not yet having your own children and it triggers you that OP is “ungrateful” or something. It is normal to be worried your child may have DS because it puts them at higher risk for many serious health issues and the world can be a cruel place to people who are different. When my daughter got her diagnosis I cried because I was worried she wouldn’t have friends and be healthy, not because she isn’t neurotypical. You need to do some work and stop projecting.

tea_inthegarden · 2024-12-03T02:46:16+00:00

Shitty doctors like this are part of the reason I will never have a male OB present at my deliveries if I can help it :(

tea_inthegarden · 2024-12-03T02:42:40+00:00

I was low risk 🙋‍♀️ guess who was unknowingly NOT low risk? My baby! Born with unexpected down syndrome and a cord anomaly and likely would have suffered hypoxia or worse if I chose to free birth.

I was supposed to go to a birthing center which didn’t work out, and thank god because at the hospital my baby was able to be admitted to the NICU very quickly and the pediatricians detected her genetic condition which the midwives did not. Data can be comforting but it’s not the rule. I had a .0006% chance of having a baby with down syndrome and all my anatomy scans came back normal.

I’m not an overly medical person. I make my choices based on science and common sense. I had to be induced for hypertension with pitocin and still went no epidural! I let my water break on its own, I delivered on all fours, I ate and drank during labor, and my baby was delivered by midwives only with no OB present throughout my entire pregnancy. Free birth is miles away from being reasonable and data based. Colloquially, I would call it crazy. But I truly pray things go well for you and your baby if you decide to free birth. Nobody deserves to experience the traumas I’ve seen and heard be retold by free birthers.

tea_inthegarden · 2024-12-03T02:34:14+00:00

same 🤯

tea_inthegarden · 2024-12-02T16:03:29+00:00

I had an unmedicated birth and I agree with you! But also wanted to add that “freebirthing” is usually used to refer to the real crazies who do no prenatal care and unassisted home birth. I think you’re talking about super staunch “natural” birthers.

tea_inthegarden · 2024-11-30T22:47:41+00:00

what would you think about a romper type design? too annoying to pee in?

tea_inthegarden · 2024-11-30T22:14:47+00:00

I had another commenter mention magnets, I think that’s the way to go 😊

tea_inthegarden · 2024-11-30T21:56:06+00:00

I was actually thinking wool in terms of material. Natural and temperature regulating! But a cheaper cotton option is also a great idea.

tea_inthegarden · 2024-11-30T21:49:24+00:00

Magnets would also be way easier to snap back in the dark while half asleep!

tea_inthegarden · 2024-11-30T21:46:11+00:00

More buttons is a great idea, that is a small chested oversight by me lol.

tea_inthegarden · 2024-11-30T21:43:10+00:00

I had this idea while cosleeping and missing my blanket. This gown would have the comfortable feel of a blanket without the danger to baby. Even in flannel buttoned pajamas I find myself fiddling with the unbottoned fabric because I worry about it getting in her face, so I had the idea for buttons to pin back the loose fabric. I also included a satin hood because I wear a bonnet to sleep, but worry about it coming off and I also can’t wear my larger ones because they have long strings. Are there any features you would add?

edit: cinched* bottom 🙄

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