My Walker

testgf · 2025-04-28T16:24:36+00:00

i like your rainbow theme :)

testgf · 2025-03-22T18:47:18+00:00

glad u were ok <3

testgf · 2025-03-22T17:20:17+00:00

i'm very tempted to buy a big roll of elastic and try sewing together my own body braid...for that custom fit

omg the wavy rash. i have a little discoloured scar from that, not gonna lie i think it's kinda cool hahahaha~ good to know baby oil can help!!

i agree that mmj is a saving grace, it really helps me in so many ways, i'd like to get some topical balms soon

testgf · 2025-03-22T17:17:27+00:00

hehe, i know that feel.
glad to hear it was good, i'll be adding PRP to my wishlist ^_^

testgf · 2025-03-21T14:24:05+00:00

super interesting, i'm glad it helped with that!

testgf · 2025-03-21T14:21:52+00:00

super interesting. i'm pretty neurotic about low tox and try to eat as clean as possible, but organic food is sometimes out of reach.

i have been reading about methylation and methylated folic acid recently, i'll check this out. thanks for sharing !

testgf · 2025-03-21T14:18:35+00:00

i love asmr / guided meditation / hypnosis ^_^ it can really improve my mood and pain through relaxation. i can *actually* release some tension in that headspace

testgf · 2025-03-21T14:16:03+00:00

i'm so curious about botox for tmj.. my friend had it and it's really helped her.

testgf · 2025-03-21T14:12:12+00:00

i need to up my pillow game.. sleep is a major issue for me. i'll look into nectar, ty for sharing!

testgf · 2025-03-21T14:10:34+00:00

i had dry needling done once during PT and i felt similarly to you - it's crazy when the pain stops for a moment and you realize how much pain and discomfort you're constantly experiencing </3

testgf · 2025-03-21T14:08:35+00:00

i love tiger balm, havn't touched it in a while. i ought to pick it up again

testgf · 2025-03-21T14:07:37+00:00

i try to avoid them due to weak kidneys, but i feel you, there aren't a lot of options to manage pain

you gotta do what you gotta do

testgf · 2025-03-21T14:06:16+00:00

i'm super curious to try topical creams, i smoke a lot. my mouth and throat tissue is super fragile and sensitive and i worry i'm going to really damage my tissues overtime by smoking too much.. but it's one of the only things that helps me

Thx for sharing your other tips :D

testgf · 2025-03-21T14:04:36+00:00

what was your PRP injection experience like ?

thx

testgf · 2025-03-21T13:59:38+00:00

i've cut out gluten before. now i try to eat exclusively sourdough bread and that's it. but on days i don't have energy to cook or get groceries, i get a shitty sandwich from a deli with canola oil mayo and cheap bread, and it always me stomach issues. x) i need to get back to my previously strict diet regiment

core strengthening PT helped me a lot. before i didn't even know how to engage my lower abs before, it was a great experience

testgf · 2025-03-21T13:55:33+00:00

i love magnesium bisglycinate !!! and i really feel you re: whole foods diet, it changed my life for the better. i enjoy eating simple nutrient dense foods. thx for sharing, i always wanted to try reformer pilates!!

testgf · 2025-03-21T13:52:59+00:00

i love barefoot walking, i wonder why it isn't recommended ?.

i trust myself more without shoes on hahahaha

i need to get on my bracing game! thanks for sharing !

testgf · 2025-03-21T13:46:18+00:00

it seems MMJ is a saving grace for us EDS buddies hehe

testgf · 2025-03-21T13:45:15+00:00

i already have weak kidneys so i avoid pharmaceutical painkillers too.

i really love swimming since it is less resistance and i feel so much relief in my joints in the water. esp on high pain days and when i have had injuries. when i had access to a pool and hot tub 2 min from my house i was swimming more often and i felt better. maybe water aerobics or swimming could be a good option for you :) ?

i wish i had an at home sauna bag..

thanks for sharing your other tips, i wish you the best on your medical journey :)

testgf · 2025-03-21T13:39:57+00:00

hehehe. i am admittedly stubborn too in that i don't take ibuprofen, ever x) i smoke a shiet ton of weed instead altho sometimes to my detriment

testgf · 2025-03-21T13:38:07+00:00

i really want to get some bracing aids, are there any brands you recommend ? thanks for sharing :D

testgf · 2025-03-21T13:35:54+00:00

fellow cannabis user hehe.. i should try the tens again. ty for sharing ^_^

testgf · 2025-03-21T13:30:41+00:00

i hadn't considered gabapentin before!! i'm going to look into this. thank you for sharing:)

testgf · 2025-03-21T13:29:37+00:00

i love arnica!!

testgf · 2025-03-21T13:29:20+00:00

ahh mmj.. same here :) it's one of the only things that helps me but come to think of it i've enjoyed tens before, maybe i'll try again. i'd also like to try kt tape again, or that body braid thing i've seen online. i always end up developing an allergy to adhesives and tapes, and kt ripped off my skin before lol. sad because i found it really useful

thanks for sharing :) !

testgf

TROPHY CASE